Have you heard of Phrenic Nerve Palsy?
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Hi @roe, thank you for taking the time to share this with us all!
We are very glad to have you with us on the community.
I have used the Spoon Theory for many years and love the concept. Like you said, it is a good way to explain to family and friends as well.
Hope to see you around!
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Lol hi again forgot to say i am also being investigated for apaeno and initial tests are registering 53 a minute ..which seems weird but as my dad died of sleep apaeno im happy to follow spec recommendations which will be a trial cpap machine.
My gp called me a PERFECT STORM yesterday lol but im determined to live as long as i can even if im huffing and puffing.
So any tips for making this sht easier..hit me up..
Oh do you guys do a meet and greet some where on here?2 -
Hi @Roe, we currently don't do meet ups due to the large area that the community reaches. Please do feel free to have a look around and get involved with anything that takes your fancy!
We always have a range of discussions going on in the coffee lounge, and we are always around to help.
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Hi @Roe, gosh I hope you improve and you can manage your symptoms. The best thing for me to help with my breathing was getting off qvar (brown asthma inhaler) and instead I now take symbicort. It's like magic with comparison to qvar which did nothing for me. I am asthmatic so the nerve palsey plus asthma don't go well but the symbicort did help me loads. Not sure if they do a meet and great. I'm sure someone in scope could answer that however. I think people on here from all over the world!1
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Hi, I'm new, I've had Phrenic nerve palsy for 8 years, it took a huge fight for 18months to be diagnosed, then 2 years 6months after it happened I had diaphragm plication surgery.
Symbicort is amazing, I have asthma as well and if I don't take my pump I feel it.0 -
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