If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
loss of senses

Ami2301
Community member Posts: 7,942 Disability Gamechanger
Hi all,
i have had central vision loss for almost a year, I was diagnosed with optic neuropathy in November, my optic nerve is severely damaged. I am also moderately-severely deaf, have been since Christmas 2016. I have no balance too.
Is there anyone who suffers with the same or similar problems? I feel so alone with all these issues
Ami xx
i have had central vision loss for almost a year, I was diagnosed with optic neuropathy in November, my optic nerve is severely damaged. I am also moderately-severely deaf, have been since Christmas 2016. I have no balance too.
Is there anyone who suffers with the same or similar problems? I feel so alone with all these issues

Ami xx
Disability Gamechanger - 2019
Comments
-
Hi @Ami2301
Im sorry you havent had a response to this post, it sounds really tough to deal with. So many people feel isolated and alone and though no one has come forward with the same impairment as you, I hope you will join in with other discussions as there can be so much support across different impairmentsScope
Senior online community officer -
Hi I seem to have lost my hearing, sense of smell and balance over the last few years .
My balance is often all over the place and mostly I walk like I'm drunk .
It can be really frustrating .
I was given balance exercise that help and tried low salt no caffeine low dairy diets but mostly they don't work .
You just have to take each day as it comes .
Sue -
The ears control balance, so that link makes logical sense, at least.
But why do so many mention allergy/food intolerance linked to loss of sense of smell, do you think?
Brightness
Categories
- All Categories
- 12.8K Start here and say hello!
- 6.5K Coffee lounge
- 33 Games room
- 422 Cost of living
- 4.4K Disability rights and campaigning
- 1.9K Research and opportunities
- 209 Community updates
- 9.1K Talk about your situation
- 2.1K Children, parents, and families
- 1.5K Work and employment
- 784 Education
- 1.6K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 609 Dating, sex, and relationships
- 370 Exercise and accessible facilities
- 756 Transport and travel
- 30.3K Talk about money
- 4.2K Benefits and financial support
- 5.1K Employment and Support Allowance (ESA)
- 16.3K PIP, DLA, and AA
- 4.6K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 854 Chronic pain and pain management
- 156 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 322 Sensory impairments
- 815 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.