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Specialist in CP?

heidibuckell
heidibuckell Member, CP Network Posts: 9 Courageous
edited February 2018 in Cerebral palsy
Hi, I was wondering whether anyone has ever come across a doctor who specialises in Cerebral Palsy. I am 38 years old and would value the opportunity to talk to a specialist, mainly about living with CP as you get older. (Obviously I am still relatively young but I will not be getting any younger!) and have noticed that most of the help/advise is designed for children.
 At the moment I have a problem with my jaw which I posted about last month in the 'coffee lounge.' I am going to see a Neurologist this week but he/she will be a 'general' neurologist and therefore just wondered whether there is a more specialist medical professional 
Best wishes 
Heidi 

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,798 Disability Gamechanger
    Hi @heidibuckell,

    Apologies if you've tried this already, but have you considered talking to your GP about your needs and asking for a referral to a specialist? It may be that they know somebody suitable who'll be able to help. Alternatively, you may like to look at this organisation's page on their services for adults with CP.
  • Bill
    Bill Member Posts: 30 Courageous
    Hi @heidibuckell ,
    I guess that you were welcomed in the replies to your first post. If not, let me welcome you to the community.
    Scope, is a pan disability charity, (which now covers all conditions) and I, as an older (61) member with CP, have not found " ...a doctor who specialises in CP... ". There are people with plenty of experience which can probably help, but it seems doctors use CP as a 'catch all' term, not a condition that they specialise in. I'm sorry that I do not have a more positive response, but the community is strong in other areas.
    I hope this is useful.
    Bill
  • Richard_Scope
    Richard_Scope Posts: 3,115

    Scope community team

    Hello @heidibuckell
    Great to talk with you. There are not many if any people you specialise solely in Cerebral Palsy as it can have many different effects on individuals. Any consultant worth their salt should be aware of your CP before the consultation and then factor that into any treatment plan. This is what I have found, when I have had problems escalated to consultant level. We are both of a similar 'vintage' so I am happy to talk through the wonderful ageing process with you.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • heidibuckell
    heidibuckell Member, CP Network Posts: 9 Courageous
    Hi, quite new on here so don't know whether how you reply to individuals but thank you for your replies, I didn't think there was a doctor who specialised in CP but just thought I would ask. (I am not a fan of doctors anyway!)
  • Richard_Scope
    Richard_Scope Posts: 3,115

    Scope community team

    Hi @heidibuckell
    Your replies are seen by all on the thread or those who have set their notifications to follow this discussion. You can tag people by using the @ and then their name.
    I completely agree with you on the doctors front!

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
  • heidibuckell
    heidibuckell Member, CP Network Posts: 9 Courageous

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