Adult with CP

Tarakona80

Hi all I'm new here so please be patient!

I am an adult living with CP. I remember when I was a kid, there's was lots of physio exercise and a few tantrums on my part! After all what kid truly understands why mum and dad are making them wear silly boots and do weird painful stretches?

The problem is that as I have got older, new "interesting" developments have occurred. There doesn't seem to be ANY help out there for adults and if you do manage to pin down a doctor for more than 2 seconds of "here take this pain killer" they just say that CP in non degenerative so it can't be that ( or go completely the other way and blame it for everything) but at no point ever stop to try offer real solutions that don't involve more and more stronger pain killers. 

Does anyone have any suggestions ( no matter how crazy) on what I can do to ease things or what I can expect to appear as I get older?

Seriously, anything at all at this stage!

Cheers in advance

Richard_Scope

Hi @Tarakona80
Welcome to the community and thanks for posting!
I have had the very similar experiences with G.P.s as you have. It is massively difficult to specialise in CP as it affects every individual differently. We have some great posts from other members around managing their CP
https://community.scope.org.uk/discussion/28690/things-that-you-have-found-helpful-for-managing-your-cp#latest 
Great to meet you and if need anything else get in touch!