Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

CP

Options
karenlane
karenlane Community member Posts: 2 Listener
edited March 2018 in Cerebral palsy
Karis Lane my daughter was part of the spastic society human rights campaign back in 1992 to promote equality for people with cp...karis is now aged 27. Today we paid privately to see an orthopaedic consultant as NHS appointments for adults with orthopaedic problems. .please note not CP specific are only held once per month with the next available appointment for my daughter being May 23rd 2018!! Too long to wait when you are in severe pain.
I really agree with the posts that have been placed on the scopes online community page that it is about time that Scope started to look after and support more adults with cerebral palsy as NHS ADULT CP SERVICES ARE NON EXISTENT! 

Comments

  • Richard_Scope
    Richard_Scope Posts: 3,634 Scope online community team
    Options
    Hi @karenlane
    Welcome to the community and thank you for your post. I can understand the frustration that you and Karis are feeling, the same happened to me in 2000. The wait for surgery was huge and I was off work because it was too painful to sit in my wheelchair. As soon as my family offered to pay my surgery was arranged for the following week with the same orthopaedic consultant.
    I have recently joined Scope as the Specialist Information Officer for CP. Previously I was a Community Champion so I am aware of the discussions that have been posted around the subject of treatment for people like your daughter and I.
    I am really keen to work with everyone who has experience of CP to build upon what Scope already offers. I would love for you and Karis to be part of it.

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • karenlane
    karenlane Community member Posts: 2 Listener
    Options
    Sure ..karis is more than happy to get involved 
    Karen
  • BeccyJ
    BeccyJ Community member Posts: 59 Courageous
    Options
    Thanks for the support @karenlane.  
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.