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Baclofen
I've been on this for thirty years - 25ml a day
Does anyone have trouble sleeping?
when I increase the doseage I'm like a zombie !
any ideas
Does anyone have trouble sleeping?
when I increase the doseage I'm like a zombie !
any ideas
Replies
I also take baclofen for muscle spasms in my back and legs and stiffness do they help you sleep I have insomnia too really annoying I feel asleep after my hosp assesment for removal of my neuromodulator in about 3 weeks.
Colourfull.
i was seen last week by Dr Stephenson in the Spasticity Clinic at RLHIM, in Great Ormond Street and when I made the suggestion that the Baclofen was keeping me awake she became verbally argumentative.
I was referred to her by my other consultant at Stanmore and offensively she asked me 'what do I want from her?'
I'm no bloody doctor...
Baclofen can have a side effect of sleeplessness. I would discuss this with my G.P. in the first instance. Were you given any potential solutions by the consultant at the Spasticity Clinic at all?
Specialist Information Officer - Cerebral Palsy
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I'll try it again but, from previous experience taking a higher dose tires me. I work and drive so I can't risk being tired.
The top **** from the spasticity clinic at RLHIM - she tries you on the obvious medication and where complications arise she does not want to know!!! She does not want to explore
That is really disappointing to read but unfortunately not uncommon. I have had similar experiences, not with Baclofen but with other issues related to my CP. I would have a chat with your G.P. at the very least, so they are up to speed with where you are at in terms of the sleeplessness. Also, make it clear that you received a less than satisfactory response from the consultant. Stay in touch and let us know how you get on.
Specialist Information Officer - Cerebral Palsy
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Hi @Nicky_Nicola
Disruption of sleep patterns is a known potential side effect of baclofen:
https://www.rxlist.com/baclofen-side-effects-drug-center.htm
Like @speedincaesar said it is disappointing that the Consultant isn't advising what might be possible to support you with this. No idea if it would be appropriate for you but I do know that some people who need the benefits of baclofen but struggle with side effects get fitted with a pump that delivers the dosage throughout the day and night, see:
https://www.scope.org.uk/support/families/therapies/intracathal-baclofen
Best Wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist