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Hi,My name is Lisa Powell

OkkerOkker Member Posts: 1 Listener
Hi there, first time I have used this site, I had a Brain anyeusm 6 years ago, I am 47 now, I had brain surgery to remove the clot and had a Stent and coil inserted, has taken a long time to become myself again,  I have been left with dystonia in my right foot which is now being treated with botox, it would be nice to get in touch with people with similar disabilities. 

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,258 Disability Gamechanger
    Hello okker and welcome

    Plenty of folk here to talk to, if you have any questions or need help just ask
    CR
    Be all you can be, make  every day count. Namaste
  • JennysDadJennysDad Member Posts: 2,308 Pioneering
    Hello @Okker and welcome to the community. I am very glad you have found us.
    You have found a safe place here, are among friends and we are very glad to have you.
    I've found posts on a number of different kinds of brain damage and you might want to have a look at the link to posts on Neurological Conditions here https://community.scope.org.uk/categories/neurological-conditions where you may find conversations you'd like to read or even take part in. It's a good way to make yourself known to others.
    Okay, I'm hoping this helps, but keep in touch and don't hesitate to be in touch and to tell us or ask us anything at all.
    Warmest best wishes to you
    Richard
  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Hi @okker, and welcome to the community!
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Okker

    It’s great to meet you this afternoon.

    Yes I had my Brain AVM burst in 1998 & I had my first Surgery in 1999.

    They used “Glue” (Supper) to block in the hope that it would “shrivel up & die”

    Well ok until 2004/5.

    Please please let me know if I can help you in anyway???

    I have meet many patients with very similar problems so hopefully I can offer my help & support?????
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