Does anyone here have dysarthria? — Scope | Disability forum
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Does anyone here have dysarthria?

phnix210
phnix210 Community member Posts: 2 Listener
I was wondering if anyone else has dysarthria. I've been tested for this, that & the other but all come back negative. My doctors are saying it's down to stress & anxiety (I'm on anti depressants) but it's like a vicious circle cause I get stressed about my dysarthria. Was wondering if there was any help for me out there??

Comments

  • JennysDad
    JennysDad Community member Posts: 2,299 Disability Gamechanger
    Hello @phnix210 and a warm welcome to the community. Good to have you with us.
    I had to look up dysarthria - a new one on me :smile: and I found it described as a neurological problem that results in difficulty speaking? Do tell me if I'm wrong.
    I'm wondering how the name of the condition came up in context. Did a doctor say they were investigating it as a possibility and then come back with the 'no, its stress and anxiety' response? And you refer to 'doctors', plural. Is this from seeing different GPs at your local practice, or are you in consultation with more than one doctor - a GP and a specialist, for example? If it's the first, you see, and a multi-partner practice, you might need to get a second opinion from elsewhere.
    These are only thoughts, because this is not at all my expertise.
    Depression and anxiety as medical conditions we encounter a lot here and I'm sure you'll have no difficulty connecting with others here with similar diagnoses.
    Keep in touch, bear with us, and don't hesitate to get back to us if there is anything more you can tell us or want to ask us.
    Very warmest best wishes to you,
    Richard
  • phnix210
    phnix210 Community member Posts: 2 Listener
    That's right it's a neurological condition, the easiest way to describe it is that something affects the muscles in my mouth, jaw & tongue to stop them working properly. I referred to doctors plural as seen my gp and 2 different conultant's at hospital. I was 1st investigated as gp thought I'd had a stroke due to slurred speech, I had a mri which showed no abnormalities in my brain, so doctors said it was dysarthria. Due to no abnormality on mri they are saying it's stress/anxiety that's caused it. I don't think it is stress/anxiety caused, I believe it's something else. But what I don't know, I've had all sorts of tests done and they all come back normal. Just want to speak to someone who's going through the same thing. There's no support group out there, nothing
    Maxine 
  • JennysDad
    JennysDad Community member Posts: 2,299 Disability Gamechanger
    Hello Maxine, @phnix210, and thank you for getting back tom e. It's good to hear from you.
    There's no point my not being honest with you - I've run some searches here for dysarthria and have not found a lot that I can refer you to. I'm going to tag in a lady here who knows the site better than I do (I'm relatively new) and who will either be able to tell you something more or point you in the direction of someone who can @PippaScope (this effectively marks it for her attention, so you don't need to do anything further, she will get back to you).
    We have two threads/categories that would appear to be relevant, even if dysarthria isn't mentioned much: the first is Neurological Conditions at https://community.scope.org.uk/categories/neurological-conditions and the second, perhaps broadly more relevant to you given the situation with your doctors, is Undiagnosed and rare conditions https://community.scope.org.uk/categories/undiagnosed_rare_conditions. It might be worth putting a post in there.
    Now, whatever happens, please keep in touch, and we will keep trying to find you what you are looking for. I am searching as we speak :)
    Warmest best wishes to you,
    Richard
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
    There's some information about dysarthria on the NHS website including treatment and tips that might help?
    Scope
    Senior online community officer
  • Vickiniaz
    Vickiniaz Community member Posts: 2 Listener
    i am new to this forum 

    Dysarthria affects different people in different ways. Some people sound like they're mumbling or slurring their words. ... Their voices may sound unusually hoarse, breathy, or strained. Dysarthria can affect more than just speech.

    Symptoms of dysarthria are mostly changes in speech, and include the following:
    1. The speed of speech may be different (faster or slower).
    2. The speech is often difficult to understand.
    3. Speech might sound slurred, mumbled, or choppy.
    4. The person may have trouble moving the lips, jaw, and tongue.

    I am suffering from Dysarthria with nasal voice,  when i speak its hard to understand sometime its fast pitch and some time its slow with nasal voice even on phone its more difficult.
    problem in languages
    Ladakhi  :Basic 
    Kashmiri: Basic  
    Urdu :Basic 
    Hindi : Moderate 
    English :Moderate 
    Nepali :Fluent 

    its hard to understand some words and hard to pronounce and mispronounce words or first letter of word,I get aggressive after some minutes of conversation when i fail to express and fail to let person understand what i am  trying to say.

    The Biggest Communication Problem Is That We Listen To Reply, Not To Understand. George Bernard Shaw once said, “The single biggest problem in communication is the illusion that it has taken place.” Picture this: someone is speaking to you, expressing their thoughts carefully for you to understand.

Brightness

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