PIP award triggering ESA reassessment????

Katmalan

Hi, I'm new and this is my first post.

I'm really worrying and it really is making me ill. I had to fill a 'form' which was in fact, a 40 page book!!! To apply for this PIP.

I've been in a wheelchair for 22 yrs with multiple spinal problems. I also have a lot of other conditions.

Everyone tells me not to worry and that they won't stop my DLA going to PIP! But I'm reading different.

I'm terrified they'll stop it and I'll lose my wheelchair! The NHS wheelchair breaks down 9 times out of every 10 I use it, so I got one off motability. 

If they take it, I'll be housebound and I'm worried sick about it! They've had the form back a week now, any idea how long it is until they let us know?

I can't sleep for worrying! 

Thanks in advance! 

poppy123456

Katmalan said:

Hi, I'm new and this is my first post.

I'm really worrying and it really is making me ill. I had to fill a 'form' which was in fact, a 40 page book!!! To apply for this PIP.

I've been in a wheelchair for 22 yrs with multiple spinal problems. I also have a lot of other conditions.

Everyone tells me not to worry and that they won't stop my DLA going to PIP! But I'm reading different.

I'm terrified they'll stop it and I'll lose my wheelchair! The NHS wheelchair breaks down 9 times out of every 10 I use it, so I got one off motability. 

If they take it, I'll be housebound and I'm worried sick about it! They've had the form back a week now, any idea how long it is until they let us know?

I can't sleep for worrying! 

Thanks in advance! 

Hi,

It would have been better to have started a new post with your question. Asking questions on the end of someone elses post mean they could be missed.

There's no timescales for this. Expect a face 2 face assessment as most people have them. Did you send evidence to support your claim? They very rarely contact anyone for evidence and the onus is on you to make sure it's sent.

Once you've had the assessment it can take anything from 2-8 weeks, sometimes longer for a decision to be made. Your DLA will continue until a decision is made on the PIP.

Here's some links that may help.

https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/your-assessment/

There's also a PIP self test that you can complete, this will give you some idea what you could possibly score.

http://www.mybenefitsandwork.co.uk/pip/indexxx.php

Remember that PIP isn't about a diagnosis, it's how your conditions affect you daily. Good luck.

Katmalan

Bless you  thank you! You can tell us my first time then! lol

I'll read the link now. 

Thanks! 

Katmalan

The thing about points. Do you know how many you need  to go onto PIP?

My DLA didn't have points you see.

Thanks 

poppy123456

You need 8 points for standard and 12 for Enhanced in either Mobility and/or daily living. Complete the PIP self test in the 2nd link i posted for you and this will tell you how many points you could possibly score.

Katmalan

8 - 12 points for each tick you mean? Or 8 - 12 in total?

Cos I'm maxed out than 12 points in total.

And thank you! Again! 

poppy123456

There's 2 parts to PIP daily living and mobility and you need at least 8 points in total for each part. If you don't score at least 8 points in the whole of the daily living part then there will be no award. The same for mobility but you can be awarded either part or both or course.

Have you completed the PIP self test? If you have then it tells you at the end of the test what you could possibly score for each part in total and whether or not there could be an award. It will also tell you whether it could be standard or enhanced. 

http://www.mybenefitsandwork.co.uk/pip/indexxx.php

I'd advise you to do some research, there's plenty of advice on websites about the PIP claim process. CAB have a great website which will tell you all you need to know. Having a better understanding of what it's all about will help. Please don't assume that you'll be awarded because you were previously claiming DLA. The descriptors have to apply to gain those points and for this you'll need evidence to support your claim.

Katmalan

Hi again!
No  that's the thing, I'm expecting them to stop it because that's all I'm hearing...

I'm scared they will because my wheelchair will have to go back then I'll become a prisoner again!

This is my greatest fear .. 

I'll go to all the links  you've sent me!

And thank you again. 

poppy123456

No problem. As i said, make sure you send evidence to support your claim.

Katmalan

I  didn't send anything, I've nothing to send to them. I didn't know we could send hospital ltrs etc.

But I did give them full permission to pull all my files, scans  xrays, contact all my drs and specialists, everything about me is there. 

I could have seen my gp but the form said not to delay sending them back through waiting for proof to send them. 

But I'll fight it, regardless, if they refuse me.

I did that form you linked me too, on the first part I scoredscored 62 points.

On the 2nd part I scored 22 points. 

But hearing all that I've heard, they won't care anyway and throw me off! But yeah, I'll fight it. 

Thanks again for your help. 

johnanfield

they do not care how ill you are .its basically a money go round with you picking up the tab

Katmalan

I know, that's what I'm picking up all over the place.

poppy123456

Katmalan said:

I  didn't send anything, I've nothing to send to them. I didn't know we could send hospital ltrs etc.

But I did give them full permission to pull all my files, scans  xrays, contact all my drs and specialists, everything about me is there. 

I could have seen my gp but the form said not to delay sending them back through waiting for proof to send them. 

But I'll fight it, regardless, if they refuse me.

I did that form you linked me too, on the first part I scoredscored 62 points.

On the 2nd part I scored 22 points. 

But hearing all that I've heard, they won't care anyway and throw me off! But yeah, I'll fight it. 

Thanks again for your help. 

They very rarely contact anyone for evidence as i clearly stated in my first reply to you. The onus is always on the claimant to make sure that evidence is sent to support your claim. I strongly advise that you gather some evidence ready to take with you to the assessment, however they very often refuse to accept it on the day. Hopefully for you this won't be the case. On the front of the PIP2 form that you filled in it does clearly state the additional information that you can send with your form. It says do send additional information about how your condition or disability affects you. This means evidence.

Having scored that amount of points in daily living i'm assuming that you don't understand PIP and the descriptors at all. I've read and heard a lot of stories about PIP and i must be honest i've never ever known anyone score that high. Looking at the descriptors myself a few minutes ago and you must have ticked the boxes scoring the highest points in most of the activities through out the daily living part.

Even scoring 22 points in the mobility part seems very high.

You have to be realistic here because if you don't then you're going to have problems with your claim.

May i ask if it's mental or physical health you're claiming for?

Do you have anyone helping you with your claim and did you get help filling out the form or did you did that yourself?

LittleGizmo86

@Katmalan hello and welcome.

I am not sure what i wrong with you but that seems like a very large amount of points to claim. I used to support a guy who was totally paralyzed and used a ventilator to breethe and he probably had about that many points?

Im affraid i agree with poppy i dont think you understand PIP very well. To back up the points you think you can make you will need to send in evidence. You really needed to have sent evidence with your form. They really really rarely contact anyone for info... the certainly will not look at your xrays or scans. You can try and take evidence to you face to face assessment but I had extra evidence that came available after i applied to go with the stuff i sent when i applied and i took it to the assessment but she wouldnt take it. Did you not get any advice before applying?

Katmalan

No, I just filled the forms in and answered the questions truthfully.

If they don't check it out  whywhy do they ask for dress and specialists contact information?

Well, I'm not worrying about it, it's making me ill. 

If they take my wheelchair we'll just have  find a way of replacing it.

Thanks forfor all your input though. Appreciate it. 

poppy123456

Sometimes they will ask medical professionals for evidence BUT it's very rare that they do this. Like i said it clearly states on the form what additional information to send.

You didn't answer my question, are you claiming for mental health or physical health?

johnanfield

I my self are claiming esa for mental &physical.& when I went for reassessment in may THIS year was questioned like I had committed a very serious criminal offence these H C P nurses could not care less if they push you over the edge.

Pippa_Alumni

Please do keep us updated @Katmalan, and we'll advise where we can. I hope today is as kind as possible to you.

Katmalan

Hi Pippa, thanks, I will keep you posted. But I've no idea from they receive the forms as to when we hear the decision? 

I'm lying here in pure agony at the moment because my back feels  like its snapped at the base. It's one of those, 'scared to move moments'.

I'm terrified ill kiss me powerchair you know. That will be what finishes me. Because if I lost that, I may as well give up, cos I'll never get out.

They'll be confining me to the 4 walls of my home.

I've had an NHS powerchair for 22 years now, but almost every single time I use it, it breaks down. I got scared to go out in it. My poor hubby has to then push me in it. And it's heavy! And I'm heavy!

So I won't get out. I just won't. And though I don't go out very much and I'm home for weeks on end, at least I know its there when I can.

So if they take it, that'll be me finished.

But I'll let  know.

I did respond to your last post explaining some of my conditions, but I can't see it here?
 
Kat

BenefitsTrainingCo

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  Katmalan,
  
  If you do have medical evidence (consultants' letters etc) I would send those in. Make sure it's all headed up as relating to your PIP2 form, & put your NI number on it as well as your name & date of birth - just helps to keep everything together.
  
  If you need to have your face to face assessment at home, you should say so. As Poppy says, whilst the assessment company can write to professionals for more evidence, they don't do this very often. And the more evidence you can provide, the better. 
  
  I hope everything goes better than you're hoping - I do understand your fears, but see what happens. If you do not get the rate of benefit you think you should, then don't hesitate to seek advice about challenging that decision. There's lots of experience on this forum.
  
  Will