PIP, DLA and AA
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Distance ? Mobility

april123april123 Member Posts: 137 Pioneering
edited April 2018 in PIP, DLA and AA
How do they work out reliably and  what is the normal unaided persons time by meters ? I have nerve pain perminat and when I walk it can cause shooting pains that stop me full stop. I am trying to work out 50meters with 2 rest in approx 10 mins is acceptable. Is there any where I can find this out. 
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Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Enhanced mobility is 20 metres or less for PIP. 20-50 metres is Standard mobility.

    Remember if you can't do something reliably, in a timely manner, without pain and discomfort then you're classed as no being able to do it.

    As you say 50 metres, think how often you would be able to do this. Could you walk this distance 2-3 times a day without pain? If you can't then you're classed as not being able to do it. Hope this helps.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    edited April 2018
    The guide most often refered to is

    Fast walking                  - 90 metres per minute
    Slow walking                 - 60 metres per minute
    very slow walking      - < 45 metres per minute

    so if you take 10 minutes to walk 50 metres, that is 5 metres per minute
    Therefore you walk 20 metres in 4 minutes
    The length of time that it take you to cover the distance includes stop and rest time where necessary

    CR

    Be all you can be, make  every day count. Namaste
  • april123april123 Member Posts: 137 Pioneering
    I will add this in MR I have doctor call tomorrow will require private letter of evidence on effects of meds and cocktail of pain killers as someone forgot to put it in report along with a few other things let's hope they help as it happened so long ago all medical out of date for them. Will let you know how my MR letter is coming on.

  • april123april123 Member Posts: 137 Pioneering
    So you divide the time it takes, by the distance you walk, to get meters per minute.
    So they take how far you can walk per minute against the average person so it doesn't matter what you think you can walk really in that respeck ?
    So even though I ticked 20/50 would this not be classed as unacceptable in Thier own rule book in reliably as in pain through the out as well. Which is noted in report.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    In my experience they make it up regardless. I ticked the less than 20m box, the assessor said I slowly but steadily walked 25m, holding onto my husband and crutch and I appeared to be in pain, the dwp assessor said I could walk 50 - 200m, I have absolutely no idea what she’s based her figure on. I’m in constant pain, for each step I take I feel pain like a knife sticking in my back and knees. I stumbled at least twice that I can recall but she didn’t record this as the assessment had finished. My report is a complete work of fiction! 
  • april123april123 Member Posts: 137 Pioneering
    Sorry to hear that it's just a joke 
  • april123april123 Member Posts: 137 Pioneering
    @Tigermoth42 did you stop at all in-between, the more I read the more upsetting it is to see so many people being trooden on and not listened to.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @april123, thanks for your replies my lovely. On the way in I had to sit down for a while before I walked to the assessment room (which wasn’t that far) and, as I said before, on the way out I stumbled at least twice that I can recall, and had to stop to regain my balance in spite of holding onto my husband and had to stop for a while outside, I just wanted to get out of there to be honest. Had he not been there I may well have fallen, it’s just an awful experience all round. I thought the assessment went well, if ‘well’ can be described as crying through most of the interview, but how wrong I was. I’m waiting on a copy of the assessor’s report as I’m most interested to see what she actually wrote (in spite of knowing that it’s going to upset me further). 
  • april123april123 Member Posts: 137 Pioneering
    Fingers crossed @Tigermoth42, I'm waiting for a call from doctor today to request medical evidence of meds etc as they have mine wrong plus support on anxiety , 
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    HCP's are issued a fishermans  ruler to measure distance walked  :)

    CR
    Be all you can be, make  every day count. Namaste
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    @CockneyRebel mine definitely had one of those! 
  • april123april123 Member Posts: 137 Pioneering
    I'm still waiting I know I won't called that it's a long day.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    @april123 if I could cross my fingers for you I would, so I’m metaphorically doing it, hope you get the call and the letter x
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    The criterion is how far can you walk not for how long. The time it takes different people to walk 20m for example varies enormously.  Assessors and tribunals ask for how long to try to trip you up.  Always insist on relating time to distance, not give just a time.

    At my tribunal I insisted on relating time to distance.  I was awarded enhanced mobility.
  • april123april123 Member Posts: 137 Pioneering
    Call arrived yesterday at 6pm doctor will do me for letter, one step toward I thought. Husband takes alladetails etc to doctors for me .today, then post man arrives, date to return mobility car etc etc, so two steps back.
  • april123april123 Member Posts: 137 Pioneering
    When moving across from DLA to PIP and you get award letter but you are requesting MR do they still pay untill they send you there MR report how does it all work.
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    DLA stops 4 weeks after assessment date.  If you have a PIP award this starts 4 weeks after DLA stops.
  • april123april123 Member Posts: 137 Pioneering
    Will pip rate continue even if you send in letter for MR 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    Asking for MR makes no difference.  You continue to get PIP.  PIP would only stop if DWP removed your award after MR - but most awards stay the same after MR.
  • april123april123 Member Posts: 137 Pioneering
    Even if I go to appeal will it still continue
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    Until appeal hearing, then what you are paid after that would depend on tribunal's award.
  • april123april123 Member Posts: 137 Pioneering
    Thank you @Matilda much appreciated.
  • april123april123 Member Posts: 137 Pioneering
    Went to CAB this morning but he don't seem very sure about my mobility chances so not sure what to do still waiting for private doctors letter 
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    I’ve got myself in a right mess by saying I could walk for 5 mins not really having any idea how far I could walk in that time as I was so stressed out. I struggle to walk 20m and that’s with a crutch and my husbands arm. I kept saying I don’t know but she pushed and pushed until I said anything to shut her up. Got my assessors report this morning and her assumptions as to what I can do most days is so out it’s not true. Apparently anxiety isn’t included in the pip assessment but surely that’s a form of psychological stress. She’s said I go out alone when I don’t and can plan and follow a journey when I categorically said I couldn’t. I’m in such a state again with it all. Still waiting for MR decision. 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    edited April 2018
    If you have to go to appeal remember 69% of appeals succeed.  Asking for how long someone can walk without relating it to distance is a favourite ploy so they can assume you can walk farther than you can.

    At my PIP tribunal hearing I insisted on relating time to distance.  I was awarded enhanced mobility.

    Always relate time to distance.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    @Matilda, thank you so much for your reply. It’s just wrong that they seem to try and ‘trip you up’ with asking a question to which there isn’t really a definitive answer. Some days I can barely walk at all as the pain in my ankles, knees and back is so bad it makes me feel sick. Hope you enjoy your weekend 
  • ataloss2018ataloss2018 Member Posts: 48 Courageous
    @Matilda can you explain some more on what you mean about relating time to distance. Thanks.


  • april123april123 Member Posts: 137 Pioneering
    It's such a mixture of emotions it's like being on an emotional merry go round.  Im dont know if I should just go for reliability in moving around now but then if I dont try I would never know ?  I have never aplied for daily living only had enhanced mobility. Some how have enchanted daily none of the ones I thought I should get and the lowest points of things I thought I don't need.  Standard mobility. Do try MR or just hand car back and prepare for 2 years time ? Anders on a post card.
    Thank you for letting me babble on.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    the general gauge used for walking time/distance

    Fast walking                90 metres per minute
    Slow walking               45-60 metres per minute
    Very slow walking    < 45 metres per minute

    So the assumption is that if you can walk for one minute, you can walk at least 45 metres, so do not qualify for enhance rate. The assumption is flawed in that you might only manage 15 metres in a minute, but they seldom explore this unless you bring it up.
    So relating walking distance to time

    Yes I can walk 15 metres in a minute
    or
    I can walk for 1 minute but I need to rest in the middle but I can manage 20 metres
    or
    I can walk 40 metres in 2 minutes but I would need to rest for 5 minutes before I could do so again

    CR

    Be all you can be, make  every day count. Namaste
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    @april123

    Never just say you can, for example, walk for one minute without also saying what distance you can cover in one minute. If it takes you one minute to walk 20m, before you need to stop and rest, say so.
  • april123april123 Member Posts: 137 Pioneering
    Been looking at the reliability in my walking and asked the man at my appointment, but he said that's in DLA so he has really confused me and I'm thinking have I a case or not ?.
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    Thank you, @Tigermoth42. Have a good weekend yourself.
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    @april123

    Disability Rights UK site has a good guide to all stages of PIP including descriptors and reliability criteria.
  • april123april123 Member Posts: 137 Pioneering
    Still trying to work it out all I know is they googled 60y it took me 10 mins and 2 stops. Then up puts 15m in 15 seconds took me later to get up and get my balance. 
  • april123april123 Member Posts: 137 Pioneering
    Sorry about spelling it keeps changing it's like code
  • april123april123 Member Posts: 137 Pioneering
    Was looking for CAB guidence didn't get it so 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    The assessor and DWP probably are talking BS.  You know how far you can walk and how long it takes you.
  • april123april123 Member Posts: 137 Pioneering
    I will be going against CAB advise but I felt I know more than him cause ive been stalking the sites. But I would never have said that I respect he gave me his time.
  • april123april123 Member Posts: 137 Pioneering
    Hello all, could any one confirm for me, durring the moving around activity is this from when your sitting. As getting up to stand and your balance before walking. Or is from when you have balanced and walk please woody trying to word MR and used as much fact and reliability.
  • april123april123 Member Posts: 137 Pioneering
    Well hello, just thought I would update and let you know I have decided to appeal on relibily as I feel I didn't complete the activity of 20/50 in a timely manor. Looking back 50 meters in 10 mins requiring 2 stops in pain. How's everyone getting on or feeling

  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @april123, good luck with your appeal.
    Im not sure about distance etc, Iv mental health problems.

    it sound very complicated and confusing when you’v to calculate distance, time etc.


  • april123april123 Member Posts: 137 Pioneering
    Hi, susan, I will be a lawyer by the time I'm finish lol. We can only try , my head is all over the place . But the more I read the more I'm convience I didn't meet or complete the crietera. Have just sent in appeal form so not really sure what s next.  How are you doing
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    April,
    maybe try getting advice from CAB about help and support with the appeal.
    There is another place but my heads went blank!!
    It’s all very stressful, I know.
    youl just now have to wait on a date but try and get letters to support your appeal, GP, hospital etc. Send any supporting info when you get your date for appeal. Youl have plenty time, think there’s a massive backlog, depending where you are in the country, i was lucky only a 3 month wait.


  • april123april123 Member Posts: 137 Pioneering
    Susan48 already been CAB for MR but he didn't seem to know much about the reliabilyre he should you can only use it in DLA only. So going to just poor on with hubbies help
    How did yours go

  • april123april123 Member Posts: 137 Pioneering
    What .Part of the world you in Susan
    I got to try find out Birmingham wait time 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I’m in Scotland.
    there plenty on this site about the appeal process though and help to prepare. 
    I didn’t have professional help either, most of it alone except the f2f and appeal.
    I won my appeal thankfully but found the process overwhelming .

    im only now starting to get over it, 4 months later .

  • april123april123 Member Posts: 137 Pioneering
    I'm so pleased you won and delighted your putting it behind you so unfair to make us all feels so uck
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    Thanks.
    I understand the logic, wanting to see a person etc to actually see there is a disability but seriously, they make you feel like a liar, cheat and question everything you’v told them.

    Who in there right mind, says me with mental health problems lol, would put themselves through all that heartache to cheat the government out of money!

    I do hope you don’t have to wait too long, maybe call the tribunal office and ask roughly how long the wait is in your area
  • april123april123 Member Posts: 137 Pioneering
    Susan48 I will wait a few weeks then I will. To know your not a liar as it's happening to many times and we have each other for sopport at least we can sleep with a clear concious can they. And karma is not nice 
  • YadnadYadnad Posts: 2,856 Member
    Matilda said:
    If you have to go to appeal remember 69% of appeals succeed.  Asking for how long someone can walk without relating it to distance is a favourite ploy so they can assume you can walk farther than you can.

    At my PIP tribunal hearing I insisted on relating time to distance.  I was awarded enhanced mobility.

    Always relate time to distance.
    Who actually goes out with a tape measure to work out distance and a stop watch to record time?

    I certainly don't  and I doubt many others do. Both distance and time are pure guess work.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Couldn’t agree more @Yadnad. I could imagine the assessors have an idea of how far it is from their reception to the assessment room but, as my husband said, if I hadn’t struggled to get to the room and subsequently back to my car, I’d still be there now and they weren’t going to hold the f2f in reception. Hope everyone has a peaceful day. Much love to you all. 
  • Jaytbm1Jaytbm1 Member Posts: 72 Pioneering
    @susan48 Glad you won your appeal, it gives hope to the rest of us waiting for a date to go to Court. The whole process is a shambles, causing more stress to people who are already ill . They do make you feel like a cheat , I have been upset ever since my assessment. Even with letters from my specialist, telling them I can’t walk without pain and have suffered from Rheumatoid Arthritis for over 30 years , affecting  all of My joints they still say it’s not enough evidence. I am shocked by the amount of people who are going through this ordeal . Good luck to everyone going through this , hope that this system gets changed ASAP. Though I am not holding my breath . I think sadly we are an easy target . 
  • tina1888tina1888 Member Posts: 85 Courageous
    Tigermoth I agree completely with u... they simply make it up put in whatever figure suits them. I have osteoporosis in both knees and hip and have type 1 diabetes 4 30 years which has caused severe nerve damage I am in pain when I sit stand walk all the time but they said 50 to whatever meters.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @tina1888 so sorry to read about your difficulties my lovely, have you appealed their decision? It’s absolutely dreadful that people are being put through this nightmare, all for a little bit extra to help make lives easier. I agree with you, they do make it up, I swear they just pick a number regardless of what you say. My original decision by the dwp was 50 - 200 metres, based on the assessor writing that I walked 25 metres at a steady pace holding a crutch and my husbands arm. I actually staggered whatever distance it was, stumbling at least three times, how they arrived at a figure of 200 metres is beyond me. Needless to say it was changed on MR to 20 - 50 metres. Why didn’t they put that the first time? (rhetorical question 😊) It would have saved me the severe anxiety I experienced for nigh on eight weeks and them the extra time to reassess. It’s a complete joke, the whole system is not fit for purpose and disabled people are being made to suffer needlessly. Sending you hugs x
  • tina1888tina1888 Member Posts: 85 Courageous
    It's just awful x yes I am waiting for the date 4 appeal which I'm dreading. My assessor gave me the minimum of 2 points 4 a number of things that got me the care part but there was no way I was just 2 points on some of those.
    I have mobility due to osteoporosis and nerve damage but also psychological issues which worsen my symptoms for example I have OCD over testing for my diabetes I'm so scared of hypoing I will not leave the house on my own. 
    I got 4 points she said along the lines of I could take familiar journies fine. It was lies.
    Thanx for getting back to me it honestly is great to have found this group and people who are going through similar things x
  • YadnadYadnad Posts: 2,856 Member
    edited June 2018
    tina1888 said:
    I have OCD over testing for my diabetes I'm so scared of hypoing I will not leave the house on my own. 
    You should go and see your GP or Diabetes Nurse. You are being a prisoner in your own home for no good reason.

    You should never have a hypo if you have full control of your diabetes. The whole idea with the modern range of insulins as well as the methods used to inject is that your diabetes should not compete with you living a normal, active and full life.
    I am a type 1 and have an attitude that I will eat and drink anything I like in any quantity in the knowledge that I have the tools that allows it.

    Obviously Diabetes can cause other issues which can impinge on your lifestyle. But in the main being a type 1 diabetic on its own is not a life sentence nor is it a disability..

    I use two types of insulin, Lantus and Novo Rapid and carry them along with the testing strips and sharps with me at all times. In fact people that find out that I am a diabetic are amazed at what I eat and how busy my lifestyle is. I am 70 so not a young strong chicken! 

    In all of the three PIP reviews I have been through, my diabetes has never been mentioned for the reason that it is an inconvenience but nothing more than that.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @tina1888 do keep us posted with your progress my lovely. I’m so sorry to hear about how your diabetes affects your life, I can’t imagine how hard you must find it with your ocd. I understand the osteoporosis, I have it too together with fibro, ddd, nerve damage, depression and anxiety. This group is fab, I’m so glad I found it, it kinda helps knowing you’re not alone, looking forward to chatting with you ❤️
  • april123april123 Member Posts: 137 Pioneering
    Susan48 have rang and checked appeal received in time and accepted.  They said the DWP will be given 4 weeks to either change it or go to court. If they choose court they will send me all documents involved and the waiting time in Birmingham is approximately 30/37 weeks.
  • tina1888tina1888 Member Posts: 85 Courageous
    @Yadnad thanx for your opinion and advice. The thing is type 1 diabetes is different to every individual.  Everybody can cope with things at different levels.
    It's great your diabetes doesn't affect you very much. That's brilliant there could be many factors in this. The length of time you have been diabetic. The longer you have the more damage gets done to your body.
    Eating what u like and taking whatever amounts of insulin you like is not the answer. This can cause blindness Alzheimer's and a list of other problems. 
    I hope when I go to appeal whomever is hearing it understands that it affects everyone differently and sees me on the difficulties that I have.
  • april123april123 Member Posts: 137 Pioneering
    @tina1888 I'm type 2 but I agree it affects us all different good luck in your appeal
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    april123 said:
    Susan48 have rang and checked appeal received in time and accepted.  They said the DWP will be given 4 weeks to either change it or go to court. If they choose court they will send me all documents involved and the waiting time in Birmingham is approximately 30/37 weeks.
    Hi @april123,
    glad you got the info about your appeal and aprox time scale.
    hopefully it won’t come to that.
    the bundle of documents it huge , I couldn’t read it all but youl have time.
    its a long time to wait but will give to time to get evidence collected to support your appeal.
    Keep us posted 
  • april123april123 Member Posts: 137 Pioneering
    I've been on DLA indefinitely for 15 years for mobility and had all treatment not much more to add

  • YadnadYadnad Posts: 2,856 Member
    edited June 2018
    tina1888 said:
    @Yadnad thanx for your opinion and advice. The thing is type 1 diabetes is different to every individual.  Everybody can cope with things at different levels.
    It's great your diabetes doesn't affect you very much. That's brilliant there could be many factors in this. The length of time you have been diabetic. The longer you have the more damage gets done to your body.
    Eating what u like and taking whatever amounts of insulin you like is not the answer. This can cause blindness Alzheimer's and a list of other problems. 
    I hope when I go to appeal whomever is hearing it understands that it affects everyone differently and sees me on the difficulties that I have


    I agree Type 1 does affect people in different ways. It is a damn nightmare to be honest with numb toes and Peripheral Arterial Disease of both legs. However there is no way I will sit down and put up with it. It's more a mind over matter thing.

    The advice of my diabetic nurse and the hospital consultant to primarily to keep my blood sugar levels somewhere between 6 and 8. Of course it does go up to 28+ at times especially if I have been out to a function and did not put enough insulin in before going.

    I was told that I can eat and drink anything just as long as I make sure that I have enough insulin in my body. Many is the time that I put in 12 units of Pro Rapid only to find that when I get home another 10 units are needed. This replicates what the Pancreas does - it pumps in as much insulin as is needed. The only drawback I have with Diabetes is getting the level right at night time. On average I have a couple of hypos a week (blood/sugar level goes down to about 2) normally at about 3am when I get it wrong. Get up, get a cup of tea with sugar and a slice of toast with jam does the trick.

    To be honest and despite my disabilities I want to live as near a normal life as is possible - the future will have to look after itself in time to come.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @april123 they did the same to me, changed mobility from standard to enhanced once they received the appeal papers. Sadly my car went back seven weeks ago and the award is only for 2 years but better than nothing. So happy for you my lovely x
  • tina1888tina1888 Member Posts: 85 Courageous
    That is wonderful for both of u x i got 8 points for mobility but feel i should have got enhanced.  I am appealling but terrified. Im scared of the whole process.
  • april123april123 Member Posts: 137 Pioneering
    @Tigermoth42 to receive there pay out would of gone back in June but we decided to hold on till last min, so was due back in Oct. If appeal went ahead we would of lost car by the time we got hearing.  Wonder now if enhanced on both they will change or backdate time limit on the assessment like they have for mental illness on mobility. Have to wait for mobility to contact about car now.  Sorry they didn't give you enhanced first time round and saved you loosing your car.
  • april123april123 Member Posts: 137 Pioneering
    @tina1888, thankyou I was terrified of the whole thing and wasn't going to appeal. Then with support and advice plucked up the nerve as I knew in time I would of been disappointed in myself. Was surprised when I got the letter why they dont take MR sereous and stop putting us through so much stress. I used works and pension info it gives you all the info good luck.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @tina1888, thank you so much, I had 4 points at the original assessment, this was upped on MR to 10 and finally, when the dwp decided not to defend my appeal, it went up to 12. I’m obviously delighted at the decision but somewhat miffed that they couldn't have awarded it in the first place saving me all the additional stress and anxiety and losing my lifeline car. It is such a scary thing to have to go through, have you got someone going with you? 

    Hi @april123 thank you so much too. You’re the only other person I’ve heard about who’s had the appeal cancelled, maybe things are changing at last. We can but hope! 

    Sending you both hugs 🤗
  • tina1888tina1888 Member Posts: 85 Courageous
    Just my husband for support. Your result is amazing.  I dont understand when the assesor can clearly see and hear how your illness affects you they dont give it at the start. 
    I suppose that is what in a way is giving me hope the fact that i got 8 points when its so hard to get any. 
    Im hoping that the appeal board understand a bit better but as i say im terrified x 
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @april123 that’s fantastic news I bet your so relieved.

    Thank you for the update and I hope the DWP are starting to look at people’s claims again before going to tribunal x
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    DWP are worried about the high appeal success rate.  Makes DWP look like the basket case they are.  So they are making offers to reduce the number of appeal.


  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @Matilda well said!! Loving the phrase ‘basket case’ did make me chuckle, sums them up just right! @tina1888, I wish you every success my lovely, my husband has supported me by writing 2 brilliant letters, it’s such a stressful thing to have to go through when you’re already struggling. I said somewhere before - disability isn’t a lifestyle choice - it’s sad that there are some bad apples who fraudulently claim and then force those most in need to jump through hoops just to get a bit of help. I read a post from someone who said a good friend of hers got her kids to lie in order to claim pip for them. Just makes my blood boil. Do keep us posted, imagine them all sitting there naked, I find that takes the edge off my nerves 😁
  • tina1888tina1888 Member Posts: 85 Courageous
    Wow that would be a dream if that happened to me. Them changing their minds.
    Can i please ask did u all do the appeal process yourselves or did u get help?
    Thank u xx
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
    @tina1888

    Did mine myself as there is limited f2f help in my area.  I had help from Disability Rights UK site, CAB site, BenefitsTrainingCo on Scope, Scope staff on the forum especially [email protected], numerous members of the Scope community.  Attended hearing without support and my award was increased from standard both components to enhanced both components.

    Tribunals are impartial, just there to find out what you can and can't do.  Be prepared to answer a lot of questions but keep your nerve and stick to your guns.

    You might be asked for how long you can walk, not how far.  Giving just a time might make them think you can walk farther than you can.  Say that it takes you X seconds or minutes to walk Y meters.  
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    @tina1888 we did it ourselves. I sent supporting medical evidence from my pain consultant, mental health team and X-ray report in with my MR that resulted in the award being raised from standard living only (previously enhanced on both) to enhanced living and standard mobility. They capitulated just over a week ago, I presume once they’d received the paperwork from the court. 
  • Jaytbm1Jaytbm1 Member Posts: 72 Pioneering
    @Tigermoth42 and April did you receive your bundle of letters for appeal . I have received mine , a few weeks ago . Just wondering if that might happen to me. Thanks 
  • tina1888tina1888 Member Posts: 85 Courageous
    @Jaybm1 hi i have not recieved any paper work either....
  • Jaytbm1Jaytbm1 Member Posts: 72 Pioneering
    Maybe they are reconsidering those who they haven’t sent any court papers out to @tina1888 Good luck , The whole thing is so nerve wrecking. Xx
  • tina1888tina1888 Member Posts: 85 Courageous
    @Jaytbm1 how long have u been waiting? Im approx 4 something months.
  • Jaytbm1Jaytbm1 Member Posts: 72 Pioneering
    @tina1888. I am about the same , have been told it could be at least 8 months. I am in Chester 
  • YadnadYadnad Posts: 2,856 Member
    They are offering a way out of the appeal system only because the DWP know that the appeal judgement will probably go in the claimant's favour.
    If the DWP think that a case needs to be fought (because it is unusual) or that there is limited evidence to support the claimant's claim then they will take it all the way to the Tribunal.
    Even if you drop off evidence days before the hearing, a copy of what you have sent is given to the DWP to review. Based on that new evidence you may find that the DWP will at the last minute make an offer or change the decision.
  • Jaytbm1Jaytbm1 Member Posts: 72 Pioneering
    Thank you @Yadnad good to know x
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Do you have any mental health issues that affect your mobility ?
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • 11faerie111faerie1 Member Posts: 24 Listener
    My mental health affects my ability to leave the house, they took away mobility component because at home f2f I walked assessor the 5 steps to the door to let him out.He said I walked at a "normal gait". 
  • MatildaMatilda Member Posts: 2,616 Disability Gamechanger
  • april123april123 Member Posts: 137 Pioneering
    @Jaytbm1 1 I was waiting for paperwork to arrive from DWP but they changed award and cancelled appeal. I'm still in shock

  • april123april123 Member Posts: 137 Pioneering
    @tina1888 I did it myself after using works and pension info plus all the support and advise from here 
  • 11faerie111faerie1 Member Posts: 24 Listener
    I only got my decision yesterday  but yes I will.i need to visit citizens advice on Monday..I'm not sure how to go about it correctly.
  • april123april123 Member Posts: 137 Pioneering
    @11faerie1 what did you get hope your CAB better than mine I knew more than he did so done my own MR then letter to appeal
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    I got standard mobiliy at tribunal for mental health that’s why im asking 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • TopkittenTopkitten Member Posts: 1,263 Pioneering
    I wish I hadn't read all this now as I will just worry more.

    Still waiting for my initial response from my application. How far can I walk without too much pain? 0 metres but I live in a place where I cannot use my wheelchair so I have to walk to get a drink or something to eat or go to the toilet or answer the door. I get no help and that always makes people think I am not so bad except that lies on my reports have blacklisted me from having a Social Worker. I walk because I have no choice and then spend hours sitting in a recliner to recover from each hellish trek I have mentioned. Even so, I have had ambulance crews doubt me because I managed to answer the door which is 10 metres away at least, ignoring the fact that they rang 2 or 3 times before I got there.

    I currently have a motobility vehicle because driving is mostly not a problem thanks to cruise control but, if the decision goes badly and I lose it, I cannot replace it if I have to appeal as I cannot use taxi's due to MH issues and no one helps me.

    It seems I am just a mass of fear and misery these days.

    TK
    "I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
  • YadnadYadnad Posts: 2,856 Member
    Topkitten said:

    I currently have a motobility vehicle because driving is mostly not a problem thanks to cruise control but, if the decision goes badly and I lose it, I cannot replace it if I have to appeal as I cannot use taxi's due to MH issues and no one helps me.
    Are you saying that you cannot be driven by car due to mental health difficulties yet are so mentally alert and physically able to drive a car even if it is an automatic one?
    Using the cruise control function is only best used on long distance driving where the road is clear and open.
    To use it in any other way is a nightmare in that the foot brake cancels it and then you have to put it back on watching all of the time that the speed it is set for is suitable for the road conditions that you find yourself in.


  • tina1888tina1888 Member Posts: 85 Courageous
    @Yadnad do u sctually help anyone one here with any of your comments? To me u just trole through making people feel worse. 
    You understand your situation no one elses so please if u cannot find it in your heart to say something positive and help someone just keep your opinions to yourself!!!
  • tina1888tina1888 Member Posts: 85 Courageous
    @Topkitten ive just had my comment deleted for standing up for u. So i will send u a hug.
    Its a pity @Yadnad horrible unhelpful messages are not deleted so quickly. 
    Maybe they admin?
  • YadnadYadnad Posts: 2,856 Member
    tina1888 said:
    @Yadnad do u sctually help anyone one here with any of your comments? To me u just trole through making people feel worse. 
    You understand your situation no one elses so please if u cannot find it in your heart to say something positive and help someone just keep your opinions to yourself!!!
    Yes I do with factual, honest and reality opinions. If posters only want to hear the positive aspects and never plan for the negatives then they are deluding themselves.
    We don't live in a world (DWP world that is) where every thing in life is clear cut justice. Bad things happen to good people.
  • tina1888tina1888 Member Posts: 85 Courageous
    @Yadnad no its not factual or honest it is your opinion. You must be such a negative person you tried to do it to me on my post " oh i dont even mention my diabetes" i dont let it affect me etc. As i said before good for u. Amazing!
    People on here are on for a variety of reasons most are looking for help a kind word. Unless you can offer this keep your negative opinions to you
     Compation, care empathy are really great qualities to have u need to work on that.
  • Tigermoth42Tigermoth42 Member Posts: 242 Pioneering
    Hi @Jaytbm1, I didn’t get the bundle of paperwork from the dwp as they decided not to defend the appeal, I just had a letter (of several pages) setting out their decision and how they arrived at it. 
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