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Advice on coping with Fibromyalgia?

gvenus
gvenus Member Posts: 3 Listener
I suffer with Fibromyalgia. Any advice on coping with this would be greatly appreciated.

Comments

  • JennysDad
    JennysDad Member Posts: 2,299 Disability Gamechanger
    Hello @gvenus and a wamr welcome to the community. It is good to have you with us.
    I'm sorry to hear you have this very painful condition, but we have a number of members who suffer from it and who will welcome you with open arms :smile:
    A good starting place is probably 'Dealing with chronic pain' (it's not the only place but I know a lot of 'fibro' posters tend to communicate there). Take a look at some of the conversations and resources and - if you feel up to it - chip in.
    You're safe among friends here, gvenus, so please don't be shy of asking us any questions or telling us anything about yourself. ~The better we get to know you, the more easily we may find ways of supporting you.
    Warmest best wishes to you,
    Richard
  • gvenus
    gvenus Member Posts: 3 Listener
    Thank you for your response. I shall look at your suggestion.
  • Ritzy
    Ritzy Member Posts: 36 Courageous
    Hi @gvenus I also suffer with Fibro., and it's one of those conditions that unless you suffer from it, it's hard to explain to people how you are feeling, as every day is different and every sufferer has Fibro in different degrees of chronic pain.  Chronic fatigue can be one aspect of having the condition and the the GP's/Specialist's  always mention different medication to take to try and help you, this can take months of trying different ones to see which one will suit you.  There is light at the end of the tunnel though, talking with people who understand helps, I have found this site very helpful, welcome to the site.  Let me know if this has been helpful 
    Kind regards
    Ritzy 
  • debbiedo49
    debbiedo49 Member Posts: 2,904 Disability Gamechanger
    I dont know whats going on but since my diagnosis recently for Fibromyalgia, my pain and symptoms have increased. My meds have increased and im getting 6 hours sleep in a row instead of 4 which is better. In a way I feel both happy and sad about finally being diagnosed but not sure how to cope with the pain and symptoms. I keep thinking that I am going to be cured then going duh no I am not. Anyone else feel weird or worse after diagnosis please? I think I need counselling to cope with the long term implications and also pain management. I am finding it harder to do things like my part time work and my part time course nevermind everyday living. Tomorrow I have 4 activities. I just want to go to bed lol.
  • gvenus
    gvenus Member Posts: 3 Listener
    Thank you Ritzy for your input very helpful x

  • Valerie_8
    Valerie_8 Member Posts: 4 Listener
    Hi Debbie, 
    I felt overwhelmed with life after diagnosis. I too have fibromyalgia 14 yrs now. Beware if not coping with it well, it comes with anxiety and depression. 

    Going to group, pain management, trying all kind of therapies, including alternatives is our option, as personally i dont trust medicine unless you find some that helps. 

    A positive outlook on life is crutial, easy say than done. I really wish community get together to put pressure on research. I struggle to not know why i suffer like this with no source of the problem, no understanding, no real relief. 

    Im still struggling to balance my activities, when on good days i do too much and on bad days i do so less its unavoidable that i need to rest as i have a lot of fatigue. 

    I hope this helps.
  • debbiedo49
    debbiedo49 Member Posts: 2,904 Disability Gamechanger

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