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Recent diagnosis of CP in my baby

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JennaBuc87
JennaBuc87 Community member Posts: 1 Listener
edited April 2018 in Cerebral palsy
hello

my son of 4 months has recently been diagnosed with Cerebral Palsy,

where do I start with any help and support?

Im still digesting this information and im very sad.

thanks 

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,665 Disability Gamechanger
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    Welcome to the community @JennaBuc87 and congratulations on the birth of your son!!

    I'm sorry you are feeling so sad, I can understand that a diagnosis can feel overwhelming, but we have so many awesome members who have CP and also parents of children with CP who Im sure can give you real life experiences that will ease your mind.

    We have lots of information here about having a child who has just been diagnosed here.

    Our member @cordypants joined us in January and talked about feeling at a loss after the diagnosis of CP in her daughter, you might like to look through their post here.

    We also have @Richard_Scope on the community who has CP and is our specialist information officer, so may be able to offer some more support and information.

    I look forward to chatting with you soon :)
    Scope
    Senior online community officer
  • Richard_Scope
    Richard_Scope Posts: 3,636 Scope online community team
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    Great to meet you @JennaBuc87

    Receiving diagnosis can really lead to a lot of mixed emotions; on the one hand, you now know that your feelings were right but on the other, you now have to move forward with everything the diagnosis might mean for you and your family. Feeling sad is completely natural and you must not beat yourself up for feeling that way.
    Here is a great article that talks about receiving a CP diagnosis for your child and the effects on you as the parent.
    http://cpdailyliving.com/coping-with-the-diagnosis/ 

    Don't feel alone. We are here to talk to, whenever you need.

    Stay in touch

    Scope
    Cerebral Palsy Programme Lead

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  • Jean_OT
    Jean_OT Community member Posts: 513 Pioneering
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    Hi @JennaBuc78

    Welcome to the community.

    If you think it would be helpful to talk your feelings over on the phone you could contact the Scope Helpline:

    https://www.scope.org.uk/About-us/contact-us/helpline

    Best Wishes

    Jean

    Jean Merrilees BSc MRCOT

    You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist

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