Avascular necrosis

Debso12

Hello and good morning 
Not getting much sleep lately all due too Avascular Necrosis 
I'm awaiting on a hip operation
Anyone else had this ? Operated on too?
Thanks Deb so 

thespiceman

Hello @Debso12 Pleased to meet you welcome.

Sorry you are not too good and I wish you well.

I hope you find advice and information from our community.

I am sure the community will respond to your questions.
Community members who can relate to your condition.

Have you seen the posts Talk about Specific Conditions.

Any of those threads.

Understand if any of those are worth a look for support.

Hope that helps

Take care

@thespiceman

Pippa_Alumni

Hi @Debso12, welcome to the community!

We don't appear to have had anybody mention this condition on the community so far, would you like to tell us some more about it?

Markmywords

Hello @Debso12,

Yes 10 years of taking steroids has trashed my skeleton. One of a multitude of side effects of treatment following a bone marrow transplant.

I was due for a double hip replacement some years ago. I never went through with it as the life of an artificial joint is only around 15 years and following a dose reduction I actually recovered some bone. Although this is unheard of for hips apparently.

The surgery will help for a while but unless the cause is stopped, deterioration of the surrounding bone will begin again.

There doesn't seem to be anything that can be done to ease the pain. I find myself having to turn over many times during the night while in bed.

kugakid

@Debso12 hey hope your op went well I'm in the same boat as you.  Had two hip replacements a right partial shoulder and need two knees due to steroids for my Eczema.  

Adrian_Scope

Hello @kugakid and welcome to the community.

kugakid

Thanks Adrian_Scope

trac66

Hello Deb, I have been diagnosed with avn and I am waiting to see the consultant as I have no blood flow through my left hip joint and diagnosed with arthritis now due to fighting for an answer for over 18months, I also don't sleep and find myself trying to turn as it feels like my hip is on fire. I hope you get news of your operation soon.

Hannah_Alumni

Hello @trac66

I'm sorry to hear you have been fighting for so long. I hope the appointment with your consultant comes round soon! 

icebergdate6

Hi, I too have avn in both hips. Took 2 years from onset to get diagnosed. Unfortunately I am one of the super unlucky, I cannot have a replacement due to having multiple conditions that risk my health and recovery. I can only sleep on my back, use a wheelchair and just get on with it.

I'm 7 years down the line now. I can still drive  and have a life of sorts. I kayak, have an allotment and work quarter time (4 hrs a week.) The pain can be off the scale at times but I've got used to it to a point and pain medication helps. As long as I can keep on going I will be OK, that's the main thing. 

I hope you all find a pain free way forward and know your not alone

Albus_Scope

Heya @icebergdate6 welcome to the community.

Thanks for sharing your story and I'm hoping you're doing well.