Avascular necrosis — Scope | Disability forum
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Avascular necrosis

Debso12
Debso12 Community member Posts: 2 Listener
edited May 2018 in Disability rights and campaigning
Hello and good morning 
Not getting much sleep lately all due too Avascular Necrosis 
I'm awaiting on a hip operation
Anyone else had this ? Operated on too?
Thanks Deb so 
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Comments

  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
    Hello @Debso12 Pleased to meet you welcome.

    Sorry you are not too good and I wish you well.

    I hope you find advice and information from our community.

    I am sure the community will respond to your questions.
    Community members who can relate to your condition.

    Have you seen the posts Talk about Specific Conditions.

    Any of those threads.

    Understand if any of those are worth a look for support.

    Hope that helps

    Take care

    @thespiceman
    Community Champion
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  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @Debso12, welcome to the community!

    We don't appear to have had anybody mention this condition on the community so far, would you like to tell us some more about it?
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  • Markmywords
    Markmywords Community member Posts: 419 Pioneering
    edited May 2018
    Hello @Debso12,

    Yes 10 years of taking steroids has trashed my skeleton. One of a multitude of side effects of treatment following a bone marrow transplant.

    I was due for a double hip replacement some years ago. I never went through with it as the life of an artificial joint is only around 15 years and following a dose reduction I actually recovered some bone. Although this is unheard of for hips apparently.

    The surgery will help for a while but unless the cause is stopped, deterioration of the surrounding bone will begin again.

    There doesn't seem to be anything that can be done to ease the pain. I find myself having to turn over many times during the night while in bed.
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  • kugakid
    kugakid Community member Posts: 2 Listener
    @Debso12 hey hope your op went well I'm in the same boat as you.  Had two hip replacements a right partial shoulder and need two knees due to steroids for my Eczema.  
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  • Adrian_Scope
    Adrian_Scope Posts: 9,776 Scope online community team
    Hello @kugakid and welcome to the community. :)
    Community Manager
    Scope
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  • kugakid
    kugakid Community member Posts: 2 Listener
    Thanks Adrian_Scope
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  • trac66
    trac66 Community member Posts: 1 Listener
    Hello Deb, I have been diagnosed with avn and I am waiting to see the consultant as I have no blood flow through my left hip joint and diagnosed with arthritis now due to fighting for an answer for over 18months, I also don't sleep and find myself trying to turn as it feels like my hip is on fire. I hope you get news of your operation soon.
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  • Hannah_Scope
    Hannah_Scope Posts: 5,879 Disability Gamechanger
    Hello @trac66

    I'm sorry to hear you have been fighting for so long. I hope the appointment with your consultant comes round soon! 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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