4 day course on re-educating the brain that pain isn't real - it's just a word. — Scope | Disability forum
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4 day course on re-educating the brain that pain isn't real - it's just a word.

Yadnad
Yadnad Posts: 2,856 Connected
edited May 2018 in PIP, DLA, and AA
Seems that the NHS is following in the footsteps of the DWP in looking at pain.
I have been told to attend a 4 day seminar arranged by the Pain Clinic. 
It seems that the pain I am feeling is not pain really but is a particular feeling that my body has not learnt how to ignore it!
Forget the medication, all that is required is to forget the pain exists.
By carrying out various activities and learning to understand how the brain thinks there is pain is a sure way of the brain being able to not recognise it.
Seems that mindfulness meditation for 3 minutes, stress management, eating and drinking the right foods and drink and sleep management will re-educate the brain.

I'm waiting for the DWP when claiming DLA, PIP or AA to surmise that there is no such thing as pain!.

Has anybody else been through this type of re-wiring of the brain?
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Comments

  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    I think you should take tazer with you. Put it up their jaxy and tell them : the pain isnt there. Your imagining it.
    I think wed all like to see that so maybe take your phone and put the results on youtube/facebook
  • Yadnad
    Yadnad Posts: 2,856 Connected
    Misscleo said:
    I think you should take tazer with you. Put it up their jaxy and tell them : the pain isnt there. Your imagining it.
    I think wed all like to see that so maybe take your phone and put the results on youtube/facebook
    I might well do that (not the tazer bit although it would amuse me to see the results if it was an ATOS assessor!). The Richardson gang in the 60's & 70's in London had a similar way of dealing with people that they didn't like - they used two wires, connected them to a power socket and attached the other ends to their not friends crown jewels! I'm only going out of interest. Personally I don't believe in all this mumbo jumbo - my brain feels pain and that's it - it's real!

    I would add that I have to find my way there and back at my cost - they haven't even given me any directions of how to get there. What I do know is that it will be a minimum of 3 buses!
  • Misscleo
    Misscleo Member Posts: 647 Pioneering
    You can google directions by going to bus and train thats local to you.
    Also many bus companys realise the cost and will sell you a day ticket.
    Its useful cos if you get on wrong bus you can get off and try again.
    Also other passengers will help put you on right bus and tell you where to get off.
    Give yourself alot more time than you 1st think. Then you will arrive calm
  • debsidoo
    debsidoo Member Posts: 325 Pioneering
    Hi Yadnad
    Have you tried calling the hospital to see if you can book hospital transport.
    I know it is available to some people in our area so you could give it a go.
        Debsidoo.x
  • Goldmangler
    Goldmangler Member Posts: 2 Listener
    I went on one of these pain management courses some time ago. "Mindfulness," they said. "Do a bit more each day," they said. "Reduce your pain medications," they said. I was worse at the end of the course! Still they insisted that it must have done some good on 'another level' which I was just not noticing. Oh yes, and had I thought of taking up the ukelele? - What!!?
  • Yadnad
    Yadnad Posts: 2,856 Connected
    I can relate to those comments in many ways.
    Mindfulness and whale music is something that I had to endure in the Mental Health Day Centre for many months - in truth, years. I used to fall asleep!
    Reducing the medication is told to me on a regular basis by the pain clinic. On one occasion I was told that I am only taking it because I believed that I was in pain! It was also the only thought of being in pain that I took the medication.

    Well this is going to be fun! Looks like another few hours of sleep, bored out of my skull is awaiting me as well as being told that pain is nothing more than a belief and that can be overcome.


  • Yadnad
    Yadnad Posts: 2,856 Connected
    edited May 2018
    debsidoo said:
    Hi Yadnad
    Have you tried calling the hospital to see if you can book hospital transport.
    I know it is available to some people in our area so you could give it a go.
        Debsidoo.x

    It's not in the hospital, it's in a village hall way out in the country, many miles from where I live.
    Presumably if I stay after the course I will be invited to join the local line dancing class for the over 65's!

  • Yadnad
    Yadnad Posts: 2,856 Connected
    edited May 2018
  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    Hi had the pleasure of attending a pain clinic coursed.it was sooo patronising .lots of Leung in the movement and eating sultanas slowly too relieve pain .i last 2 session that were 2 hours of painfully sitting and be told we should all stop giving intoo our pain .if only 
  • Yadnad
    Yadnad Posts: 2,856 Connected
    Hi had the pleasure of attending a pain clinic coursed.it was sooo patronising .lots of Leung in the movement and eating sultanas slowly too relieve pain .i last 2 session that were 2 hours of painfully sitting and be told we should all stop giving intoo our pain .if only 

    You are joking? This I got to see.

  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    We all got passes a sultana .we then had too close our eyes and feel the texture ,shape etc .then too chew very slowly ..they also discussed issues of pain on emotions like anger etc .then the teacher got very irritate when we couldent do it seriously .perhaps she should of taken her own advice lol.i will never forget that day 
  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    There was one poor guy laid out on the floor as had severe back problems .they Dident have the extra time too help him .so we all had too help him 
  • debbiedo49
    debbiedo49 Member Posts: 2,904 Disability Gamechanger
    Is it compulsory? 
  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    They made me feel like it was .as it was through the pain clinic.there was meant too be six sessions of two hours a week .i only made two .which actually turned out in my favour .as I demanded too see a specialist .a lot of people that are in the pain clinic are pushed intoo doing these courses .trying too save money on treatments 
  • debbiedo49
    debbiedo49 Member Posts: 2,904 Disability Gamechanger
    Who pushes it?
  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    You might get a more positive outcome from yours .but wasn't for me .i think some of the people who had lower pain problems as in one condition ,did get on well .i have multiple things and just couldent cope
  • Yadnad
    Yadnad Posts: 2,856 Connected
    There was one poor guy laid out on the floor as had severe back problems .they Dident have the extra time too help him .so we all had too help him 

    Was this a genuine course or an audition for a TV comedy sketch?

    I can fully understand not being able to take all of this seriously, I will certainly go for the first of the four visits only to have it brighten my day - sultanas all squishy, whale music etc - I wonder if they have progressed to waterboarding yet?

  • Yadnad
    Yadnad Posts: 2,856 Connected
    Is it compulsory? 

    I don't actually know. Reading the invitation in front of me it doesn't say anything about it being compulsory but you never know! Pain clinics are so keen today to get people off pain relief medication that they might use failure to attend as a good reason to tell the GP to not prescribe anything for the future in the belief that if pain was a problem you would have gone on the course.
  • littleruthie123
    littleruthie123 Member Posts: 490 Pioneering
    They also spent a lot of time telling us how much are tablets were costing,and did we actually need them?
  • Yadnad
    Yadnad Posts: 2,856 Connected
    They also spent a lot of time telling us how much are tablets were costing,and did we actually need them?

    The guilt trip as well!!!

    I thought that the pain clinics was there as professionals in their particular field to determine what medications would be best to alleviate pain and not to act as judge and jury over the health budget. Stupid statement - since when does the NHS decide that costs are more important than treating a patient. 

     

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