Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Servere disable premium

jude1967jude1967 Member Posts: 53 Courageous
edited June 2018 in Disabled people
I read that the government's has reinstated the servere premium back and that we should be able to get it ..well that's been not my case as I still waiting now for my 7 mnths back money I owed from my medical and there been a landlines victory the government have now said that the money should be available ,I am sitting waiting still after seven mnths 2aiting for my medicak,,yes 7 mnths waiting and having still not 4eci3ved my back money or my servere disable premium 2hich the government has now said it 2as illegal and that we should have our disable premium. .still not even been payed even though 7mnths of waiting I have been registered disable for 25 yrs and universal credit has caused me so much grieg,so has anyone now recurved the severe premium payment and the back money the government has said it's going to pay back I have to lookeverytime online the government new changes they pit out in force and still never get payed 


  • Richard_ScopeRichard_Scope Posts: 2,836

    Scope community team

    Hi @jude1967
    Thanks for your post and a warm welcome to our community. The Government has reinstated the Severe Disablement Premium. However, I'm unsure of the timescales around back payment of the premium.
    I will include a link to the ESA and Universal Credit conversation here
    If you need anything further let us know. 
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • jude1967jude1967 Member Posts: 53 Courageous
    Thank you Richard for your reply.
    I changed over to uc it's been my worst nitemare .I have had to fight them from day one with this it took 7 months for my my assessment and I only just got my first payment and as yet no back payment.they had to find a neurosurgeon to deal with my assessment which took 7 months to find .Which I sat through and went and before I had this assessment I had many conversation about this whole system as I was told wen u have to wait if don.t even read  on condition but if was quick to stop all my payments .I never took the loan to the me over as I first claim as I had saved money payed my own rent out of my benefits prior ..as I saved for a yr to transition over.now I payed cash out all my saving which to I was told I should.t have payed my rent ..but they weren't the ones that has to answer housing association.now I am still fighting for my back money towards the 8 month of them finding a neurosurgeon to do it..It's been frustrating .I realised on the premium before to pay for my care as everything stoped .then to read it back and reinstated..hopefully I can pay for the care which my sons have.done and they were the ones who told me.its frustrating as they get annoyed universal credit wen u question them ..they play they have no time limit to pay me back the 7mnths already I am like is this for real..
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    Where is the link to that?  Only seen it going to court. Unlawful to take it due to change in circumstances.


    UC expects pip to cover your expenses. 
    Result well they have stuffed up so probably aren't!
    Social care is a lottery and assessment, lack of funding.

    Basically the government are squeezing money off every single claimant. 
    Do not follow me, I don't know where I am going.
  • jude1967jude1967 Member Posts: 53 Courageous
    I only came across it myself as I was sitting on the fone to uc it's through the courts that I reckon government monster it came up as I was messing around on Google in a q waiting to talking to uc as they said I was having my back payment which they said 7 days that It came up on my Google..as I seen it..so I was in the Q a he on the fone and I had to sign into my uc journal.made me laugh the guy couldn.t understand why I hand.t been sorted it.i told him I was told I through my journal .Which he checked.he told me he can.t believe they told me they send me a letter.nice to find out he told me uc don.t send any letter no more it's the journal..then he read it for himself and he email my manager thus dealing with me..so nice to no they can.t even get that right..so I better belief wats going on 
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    edited June 2018
    Can you provide this link please.
    Do not follow me, I don't know where I am going.
  • whistleswhistles Member Posts: 1,590 Disability Gamechanger
    It's saying those on sdp are covered by the announcement, those on edp are not.
    It doesn't actually say when they will contact those affected. 

    Do not follow me, I don't know where I am going.
  • jude1967jude1967 Member Posts: 53 Courageous
    I am on uc.i have had this struggle .it took 7 months for my medical assessment that was them finding a person in my case a neuro to do mine as I rare condition.they had the paperwork .I was suppose to have heard for my appointment it took longer to find someone with the Neuro side to do the medical.so I been fighting for every payment every myth it's been a nightmare to get one payment correct since November.one time I got payed 45 for month then I a nightmare to get payment correct every single month.. even though I a. Relying on other people then..for food which I been lucky I have my children even though they got their own families for food which they buy ..so I am getting it not even correct ..it's a complete nitemare for us that entitle to things.. 
  • bandadbandad Member Posts: 8 Connected
    I’ve recently been moved from ESA WRAG back into ESA Support, following my tribunal. My new claim includes £64.30 per week Severe Disability Premium, and they backdated it to the date of my tribunal hearing. It does exist, I hope you get yours sorted quickly. x 
  • jude1967jude1967 Member Posts: 53 Courageous
    It's been a nitemare from start of this claim.i gone through stages.as I disable I been confinde to my home like a prisoner.i been so depressed .I never had to sit and talk every time ..I was shocked how damaging this universal credit treats us..racism comes to mind.i my sons cared for me from age my youngest wen first found out look after me with brain surgeries.they got no carers allowance then as they were all under age.but now since universal credit..they all payed out.even though they have families of their own.this is been nightmare ..I never she'd more tears than wat they have put me through..
Sign in or join us to comment.