Please can you point me in the right direction to get some help for my friend/neighbor that lives in Epsom Surrey.
Her 11 yr old daughter began having seizures 2 yrs ago which are uncontrollable with medication.
She has them almost daily and is admitted to hospital at least once a month.
Her brain is shrinking causing brain damage, she had not been to any school as she needs constant care so during the past two years both have basically become housebound.
A social worker and epilepsy team are involved with the family but still have not provided the basic help ie wheelchair, home adaptions or assistance with hospital appointments etc. It's taken them almost two years just to arrange a few hours home schooling.
She is a single mum on benefits & doesn't like asking for help but It's clearly obvious she is struggling. I help as much as possible, with appointments & food shopping but I'm sure there must be professional people or charities that are able to give correct help.
Two years ago her daughter attended school and was doing usual activities a child her age does but since the seizures started neither of them have any quality of life, they are mearly existing which is heartbreaking to see