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Increased pain levels
JadeB
Community member Posts: 62 Courageous
hi guys.
I posted last year about my fatigue levels. I have mild cp and over the last year have been getting more and more fatigued. Also I have been experiencing global pain all over my body. (A flu like ache.) as well as increased tension in my hips and shoulders. The doctors said that if I didn’t already have cp, they’d be sure it’s either ME or fybromialga. But apparently me having cp complicates things. All blood test have come back clear, and I have been put on the waiting list for hydrotherapy. But no one seems to know what it is and what’s causing the weakness, pain and fatigue. Has anything else had a similar experience? X
I posted last year about my fatigue levels. I have mild cp and over the last year have been getting more and more fatigued. Also I have been experiencing global pain all over my body. (A flu like ache.) as well as increased tension in my hips and shoulders. The doctors said that if I didn’t already have cp, they’d be sure it’s either ME or fybromialga. But apparently me having cp complicates things. All blood test have come back clear, and I have been put on the waiting list for hydrotherapy. But no one seems to know what it is and what’s causing the weakness, pain and fatigue. Has anything else had a similar experience? X
Comments
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Hi @JadeB
Thanks for your post. It would not be right for me to speculate as to what is causing the symptoms but what I will say is that it is possible to have cp and the conditions you have mentioned. I'm going to tag in @littlemissinnocent a member who has experienced very similar symptoms and has been through the diagnosis scenario.
Keep in touch.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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@JadeB, Sorry it has taken me so long to respond to this. It definitely sounds quite similar to what I have experienced recently. I understand the frustration, I put a lot down to CP when I really shouldn't have, but I think it is probably something a lot of us do. I'm not sure how much I am allowed to say/ should say on here really. I'm happy to share my experiences, but as I do have a diagnosis now I don't know what is allowed. I can share experience, but wouldn't for one minute want to say your situation is the same.
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@littlemissinnocent hello I hope you are well. I have finally gotten to the bottom of it. After waiting a long while I had an appointment with a rhumotologist and have been diangonsed with fibromyalgia as a secondary condition to my cerebral palsy. I have had a lot of hydro and physio and been on a low level anti depressant to manage the pain. Still getting my head round it all but at least I know what’s what now xx
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