Cerebral Palsy
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Increased pain levels

JadeBJadeB Member Posts: 62 Courageous
hi guys. 
I posted last year about my fatigue levels. I have mild cp and over the last year have been getting more and more fatigued. Also I have been experiencing global pain all over my body. (A flu like ache.) as well as increased tension in my hips and shoulders. The doctors said that if I didn’t already have cp, they’d be sure it’s either ME or fybromialga. But apparently me having cp complicates things. All blood test have come back clear, and I have been put on the waiting list for hydrotherapy. But no one seems to know what it is and what’s causing the weakness, pain and fatigue. Has anything else had a similar experience? X


  • Richard_ScopeRichard_Scope Posts: 2,829

    Scope community team

    Hi @JadeB
    Thanks for your post. It would not be right for me to speculate as to what is causing the symptoms but what I will say is that it is possible to have cp and the conditions you have mentioned. I'm going to tag in @littlemissinnocent a member who has experienced very similar symptoms and has been through the diagnosis scenario.
    Keep in touch.
    Specialist Information Officer - Cerebral Palsy

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  • littlemissinnocentlittlemissinnocent Member Posts: 13 Connected
    edited June 2018
    @JadeB, Sorry it has taken me so long to respond to this. It definitely sounds quite similar to what I have experienced recently. I understand the frustration, I put a lot down to CP when I really shouldn't have, but I think it is probably something a lot of us do. I'm not sure how much I am allowed to say/ should say on here really. I'm happy to share my experiences, but as I do have a diagnosis now I don't know what is allowed. I can share experience, but wouldn't for one minute want to say your situation is the same.
  • JadeBJadeB Member Posts: 62 Courageous
    @littlemissinnocent hello I hope you are well. I have finally gotten to the bottom of it. After waiting a long while I had an appointment with a rhumotologist and have been diangonsed with fibromyalgia as a secondary condition to my cerebral palsy. I have had a lot of hydro and physio and been on a low level anti depressant to manage the pain. Still getting my head round it all but at least I know what’s what now xx
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