If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Second time in hospital due to loss of use to legs
Options
gazzhoward
Community member Posts: 5 Listener
i have a 19 year old son with minor CP. He competes at athletics and is a very strong athlete.
He is currently in hospital for the second time in three months suffering from a total loss of use to both legs.the first time this happened it continued for a period of 10 days with mobility/movement coming back to full use over that period. during his stay he had an MRI scan, Lumber punch and a nerve check through his body all these tests came back clear. a Neurologist came to see him and basically said that there is nothing to worry about his movement will return and put it down to his CP.
now after three months it has happened again and he is in hospital going through the same tests.
my initial question is, has anyone within this forum experienced the same or knows of any friend, dependant or relative that suffers from CP and has had the same experiences.
we did not get an outpatients appointment from the hospital to see a neurologist we went to the GP who sorted this for us but that is not for anther four weeks.
i would be grateful for any advice or a direction to take in order to ascertain what the cause could be or is it something that my son will have to put up with for the rest of his life.
thanx in advance
Gary
He is currently in hospital for the second time in three months suffering from a total loss of use to both legs.the first time this happened it continued for a period of 10 days with mobility/movement coming back to full use over that period. during his stay he had an MRI scan, Lumber punch and a nerve check through his body all these tests came back clear. a Neurologist came to see him and basically said that there is nothing to worry about his movement will return and put it down to his CP.
now after three months it has happened again and he is in hospital going through the same tests.
my initial question is, has anyone within this forum experienced the same or knows of any friend, dependant or relative that suffers from CP and has had the same experiences.
we did not get an outpatients appointment from the hospital to see a neurologist we went to the GP who sorted this for us but that is not for anther four weeks.
i would be grateful for any advice or a direction to take in order to ascertain what the cause could be or is it something that my son will have to put up with for the rest of his life.
thanx in advance
Gary
Comments
-
Hi @gazzhoward ;
Thanks for your post and it's good to meet you.
I have heard of this anecdotally but I must add that the people who were affected had other impairments alongside their CP. When this happens to your son, does he lose feeling in the legs as well as the ability to move them?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
No he still has feeling and I assume all the sensations that one should have but he just cannot move his legs. He can now move his toes in both feet and his right ankle. I am sure after a number of days, like before, full mobility will come back. I was wondering if anyone else had had any similar experiences.
Thanks very much much for getting back so soon. -
I have no idea if this info will be useful but I have secondary progressive multiple sclerosis and have lost the use of my legs and arms, to a lesser extent, a few times taking me to hospital each time. The cause? A urine infection! I still have no idea why that happens, maybe because I retain water and the infection takes hold wherever there's water (brain is always fuzzy, with the infection, too). Antibiotics are then, sadly, necessary to drag them back into use.
Has your son ever been tested for a UTI? I keep test strips at home now so I can test regularly. I know this to be, particularly, an MS thing but it can presumably happen with anyone. -
He has had urine retention following surgery and when he was initially admitted this time he was catheterised to start off with as he had a large amount of urine in his bladder and he had no feeling to go to the toilet. That has since came out and his bladder function is normal.
Thanx for the reply. -
Ah, maybe connected then. I hope it doesn't happen again, horrid. Good luck the pair of you.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.