If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Pain amplification syndrome- how can I support my son?
Hi guys I have joined hoping for info more than anything. My boy had a fall last year and it has left him with pain amplification syndrome basically his nerve endings are misfiring and causing him loads of pain, unable to climb a step or walk very far cannot walk at all without a crutch has to have a wheelchair for distance. I've joined a couple of forums but perhaps we're missing something. Both my daughter and I have been diagnosed with fibromyalgia and hypermobility. My daughter recently confirmed as having EDS too. We have asked rheumatologist about my son but he reckons hes not hypermobile despite physio saying hes showing signs and chiro saying hes more hyper mobile than both my daughter and I. I've tried finding groups or places he can join locally as hes 16 almost 17 and totally isolated has no friends, hasn't been to school since oct half term as hes had constant headaches. So wondered if you guys know of anything or maybe give me some advice of anything I could be doing to help and support him xx thank you