Find out how to let us know if you're concerned about another member's safety.
Help with going or not going to Tribunal please
Just recieved my mantatory reconsideration notice and it has several, cant find a nicer way of saying, lies. It also states that what I am saying and the medical info they have do not match. Which again is false, if theyve looked into my conditions.
I have Hypermobile Ehlers Danlos Syndome, Postural Orthostatic Tachycardia Syndrome, Sciatica and Post Traumatic Stress Disorder. My physical conditions mean that standing is very painful and difficult, I get very dizzy, my joints dislocate, I am in extreme pain. And the same goes for walking, I walk around my house (few meters at most) and from my home to my car (which is in a desinated space less than 20 meters away) But other than that I use my wheelchair. Many people with my conditions do.
Like I said i have PTSD and I also have really bad anxiety. So the Tribunal scares me no end.
But they have said lies such as 'You used your stick to stand' I dont and never have had a stick. And 'There was no reported dizziness' when I asked for a glass of water because I was dizzy. And ' You do not see a specialist due to your mental health' I have been seeing a senior therapist for CBT for months.
They say that I should be able to walk 20 to 50 meters (which I wish so badly I could do) as I dont have muscle wastage and my muscles have good size and tone. My condition effects my joints, so my muscles could be like a body builder but they wouldnt stop dislocations and pain occuring. So I have standard mobility dispite being unable to walk 20 meters or more. Although I was awarded higher rate back in 2014, they reduced it after having my daughter in 2016, and I asked for another assessment which happened in feburary 2018.
They say I didnt get my wheelchair through wheelchair services. Which is true, because I could afford one at the time and didnt want to have to make the NHS fund it when it could fund someone who really needed it. But that somehow means I dont need the chair?
I suppose I am at a loss as to what to do.
If I go to tribunal are they going to believe these lies dispite my truth. I hate admitting how hard my life is. I try to be a super positive person. But I am not in a good place. It's not even about the money, its if i dont go to tribunal I am saying that their lies are true and that I am not struggling like I say I am (which I actually am)
Can I print information from websites to take with me that say my conditions mean I need to use a wheelchair? Should I make an appointment with my specialist and ask for his help? (although I dont want to burden the NHS)
I wouldnt normally post like this. I just don't know where else to turn.
Thanks for reading. I appreciate the help.
- 52.9K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 148 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 574 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 276 Dating, sex, and relationships
- 263 Exercise and accessible facilities
- 21.2K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 673 Chronic pain and pain management
- 699 Rare, invisible, and undiagnosed conditions
- 751 Autism and neurodiversity
- 926 Mental health and wellbeing
- 297 Sensory impairments
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.