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NICE set to produce guideline for services for adults with Cerebral Palsy

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Richard_Scope
Richard_Scope Posts: 3,636 Scope online community team
The document outlines the steps that need to be taken to change the differences in providing social and medical services for adults with Cerebral Palsy and aims to help local and regional services provide clear pathways to social and medical care.

Read the full article here.
NICE set to produce a guideline for services for adults with Cerebral Palsy

Scope
Cerebral Palsy Programme Lead

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Comments

  • niceboots
    niceboots Scope Member Posts: 198 Pioneering
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    Interesting read... I’d definitely agree with regular reviews. In my case regular physio and orthotics reviews would be invaluable, even if they’re six monthly it would really help. I’m pretty good at self managing my cp, but when I have issues I have to go to the gp and get re-referred. This obviously takes months, so open referrals with regular reviews would be great, and I believe in the long term would save money.
  • Richard_Scope
    Richard_Scope Posts: 3,636 Scope online community team
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    I agree. It seems like a small step in the right direction and has the potential to save money, as you say.

    Scope
    Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.'

    Want to tell us about your experience in the community? Talk to our

    chatbot

    and let us know.

  • Jean_OT
    Jean_OT Community member Posts: 513 Pioneering
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    I note that this is draft guidance and out for public consultation until August 28th. Individuals or organisations can comment via: https://www.nice.org.uk/guidance/indevelopment/gid-ng10031/consultation/html-content-2

    I hope they get lots of engagement on this important matter 

    Jean Merrilees BSc MRCOT

    You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist

  • Stayce
    Stayce Community member, CP Network Posts: 846 Pioneering
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    Interesting - I have to say I’m less impressed with the drugs for muscle relaxant recommendations as It implies that the drug I am prescribed (due to not tolerating the ‘popular’ others) is not being recommended. So I am probably going to have problems if this goes ahead!
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