If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Pain that is disturbing sleep

Jennygill Community member Posts: 4 Listener
I have restless leg sindrum and I have pain in my feet like brambles scratching everywhere on my feet to get rid of it I try to put my feet in freezing water but the pain is consturntle nob stop the worst pain I could think of and sometimes now I'm beginning to get it in my hand and I try to think of over things to get over the pain just try to block it out my mind. 


  • Chloe_Scope
    Chloe_Scope Posts: 10,581 Disability Gamechanger
    HI @Jennygill I am really sorry to hear this! That cannot be a pleasant experience for you at all. Are you currently on any medication to help you sleep?

  • Misscleo
    Misscleo Community member Posts: 647 Pioneering
    Had this problem for years morphine & codine iv found works the best.
    But the pain killers are a problem in them selves 
  • April2018mom
    April2018mom Posts: 2,882 Disability Gamechanger
    Are you seeing a pain specialist? It might be a good idea to ask for a referral to a pain medicine doctor. They should be able to recommend effective coping skills and techniques as well as traditional medicine. Also look at therapy. A good therapist can help you learn how to control your pain. 
  • debbiedo49
    debbiedo49 Community member Posts: 2,904 Disability Gamechanger
    I get that as well most nights. I try to grip a pillow with my feet to calm them down but it barely helps. I don’t know if it’s part of my fibro or part of the meds. Would love it to stop. I feel for you. Here’s what NHS UK says


    Restless legs syndrome, also known as Willis-Ekbom disease, is a common condition of the nervous system that causes an overwhelming, irresistible urge to move the legs.

    It can also cause an unpleasant crawling or creeping sensation in the feet, calves and thighs. The sensation is often worse in the evening or at night. Occasionally, the arms are affected too.

    Restless legs syndrome is also associated with involuntary jerking of the legs and arms, known as periodic limb movements in sleep (PLMS).

    Some people have the symptoms of restless legs syndrome occasionally, while others have them every day. The symptoms can vary from mild to severe. In severe cases, restless legs syndrome can be very distressing and disrupt a person's daily activities.

    What causes restless legs syndrome?

    In the majority of cases, there's no obvious cause of restless legs syndrome. This known as idiopathic or primary restless legs syndrome, and it can run in families.

    Some neurologists (specialists in treating conditions that affect the nervous system) believe the symptoms of restless legs syndrome may have something to do with how the body handles a chemical called dopamine. Dopamine is involved in controlling muscle movement and may be responsible for the involuntary leg movements associated with restless legs syndrome.

    In some cases, restless legs syndrome is caused by an underlying health condition, such as iron deficiency anaemia or kidney failure. This is known as secondary restless legs syndrome. 

    There's also a link between restless legs syndrome and pregnancy. About 1 in 5 pregnant women will experience symptoms in the last three months of their pregnancy, although it's not clear exactly why this is. In such cases, restless legs syndrome usually disappears after the woman has given birth.

    Read more about the causes of restless legs syndrome.

  • Nanywytch
    Nanywytch Community member Posts: 4 Listener
    I suffer from 24/7 neurological pain. To my face after a surgery went wrong leaving me with severe nerve damage l recently had a special scan done at Leeds as they blew it up to show me my nerves they saw l have part of a drill bit in my face which is part of the issue. My drugs are causing me to be tired all the time gain weight and the side effects are kidney and liver decease l have blood tests every month because until they find someway of stopping my pain am stuck. A person told me about cannabis oil but my consultant said this wouldn't help me  currently l have a lot of things wrong with me l have a brain tumour caused by the pain l have had 2 strokes they say my brain is trying to Deflect the pain away
    Our bodies cannot cope being In constant pain my consultant says l know more anatomy than his student 2nd year Drs he had students in when l saw him this week he asked then how does a facial nerve grow back if it's been killed they didn't know he asked me and l told them l am so thankful to my surgeon he has saved my life and is still looking to help me get well 

  • Sawbill12
    Sawbill12 Community member Posts: 8 Listener
    Retired paramedic. Had chronic spinal pain for 30  years. Been seeing consultant for past 5 years .had all kinds @ types of medication. Nothing works. Consultant told me she no longer can help. Every joint in my body exraid. They say it’s general wear @ take due to lifting hundreds of patients over a period of 30 years.also had a Stroke and I’m diabetic type 2.on insulin @ metformin
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.