If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
PIP home assessment
gordy1957
Member Posts: 1 Listener
Hi everyone
I had a home visit on Thursday this week . It was a nurse, and the first thing she said as she saw me and sat down was 'i don't usually have to come and see patients with your illness.
I have a very rare illness called Progressive supranuclear palsy , which is very life shortening .
Anyway she was very polite and went through the list on the form, it took about 1 1\2 hrs and I was exhausted by the time she had finished.
I am currently on a lifetime DLA , higher rate allowance, and am convinced that my support will be reduced even though I've had a specialist confirm my life expectancy of less than 3 yes remaining. It is a worry as I would not be able to pay for my private home speech and physiotherapy sessions which I have weekly. I have these to extend my quality of life plus increase my life expectancy as I have young children.
I will post on site when I receive their decision. I do know that PIP are cutting benefits with Parkinsonian type illness's especially the care component.
I had a home visit on Thursday this week . It was a nurse, and the first thing she said as she saw me and sat down was 'i don't usually have to come and see patients with your illness.
I have a very rare illness called Progressive supranuclear palsy , which is very life shortening .
Anyway she was very polite and went through the list on the form, it took about 1 1\2 hrs and I was exhausted by the time she had finished.
I am currently on a lifetime DLA , higher rate allowance, and am convinced that my support will be reduced even though I've had a specialist confirm my life expectancy of less than 3 yes remaining. It is a worry as I would not be able to pay for my private home speech and physiotherapy sessions which I have weekly. I have these to extend my quality of life plus increase my life expectancy as I have young children.
I will post on site when I receive their decision. I do know that PIP are cutting benefits with Parkinsonian type illness's especially the care component.
Replies
Thank you for sharing this with us, and well done on getting through it. Fingers crossed for the outcome you're hoping for- in the meantime, you may be interested in our rare conditions discussions!