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PIP home assessment
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gordy1957
Community member Posts: 1 Listener
Hi everyone
I had a home visit on Thursday this week . It was a nurse, and the first thing she said as she saw me and sat down was 'i don't usually have to come and see patients with your illness.
I have a very rare illness called Progressive supranuclear palsy , which is very life shortening .
Anyway she was very polite and went through the list on the form, it took about 1 1\2 hrs and I was exhausted by the time she had finished.
I am currently on a lifetime DLA , higher rate allowance, and am convinced that my support will be reduced even though I've had a specialist confirm my life expectancy of less than 3 yes remaining. It is a worry as I would not be able to pay for my private home speech and physiotherapy sessions which I have weekly. I have these to extend my quality of life plus increase my life expectancy as I have young children.
I will post on site when I receive their decision. I do know that PIP are cutting benefits with Parkinsonian type illness's especially the care component.
I had a home visit on Thursday this week . It was a nurse, and the first thing she said as she saw me and sat down was 'i don't usually have to come and see patients with your illness.
I have a very rare illness called Progressive supranuclear palsy , which is very life shortening .
Anyway she was very polite and went through the list on the form, it took about 1 1\2 hrs and I was exhausted by the time she had finished.
I am currently on a lifetime DLA , higher rate allowance, and am convinced that my support will be reduced even though I've had a specialist confirm my life expectancy of less than 3 yes remaining. It is a worry as I would not be able to pay for my private home speech and physiotherapy sessions which I have weekly. I have these to extend my quality of life plus increase my life expectancy as I have young children.
I will post on site when I receive their decision. I do know that PIP are cutting benefits with Parkinsonian type illness's especially the care component.
Comments
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Hi @gordy1957, and a warm welcome to the community!
Thank you for sharing this with us, and well done on getting through it. Fingers crossed for the outcome you're hoping for- in the meantime, you may be interested in our rare conditions discussions!
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