PIP and Asperger Syndrome — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

PIP and Asperger Syndrome

maddymad
maddymad Member Posts: 1 Listener
Hello ! I am a new member as I have been recommended to access this site for advice . My son is 26 and receives ESA and was awarded DLA for life . We now have to apply for PIP and would appreciate any help ! Maddie 

Comments

  • LittleGizmo86
    LittleGizmo86 Member Posts: 79 Courageous
    Hi @maddymad and welcome

    Is there any specifics you would like help with?

    The main general advice with the transfer is to make you aware that DLA and PIP are very different. With PIP it is not about what conditions you have but how they affect you on a day to do basis. Cooking, communicating, washing/dressing etc.

    The first step i would recommend is to look on line at the pip descriptors of what your son can or cant do to give you an idea of what points you may be able to claim. You will then need evidence to support those claims for points. For example instead of evidence of what conditions he has, try to gather evidence that states his specific difficulties. For example has trouble socialising, has trouble going out alone, does not have capacity to cook etc. They rarely contact health professionals for info so be as clear as you can in the application form and send in as much evidence to back up those claims as you can.

    Good luck and let us know any specific help you may require :)
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @maddymad, and a warm welcome to the community!

    Two good resources to start with are Scope's information on PIP, and the PIP self-test online. Have a look, and do come back to us with any questions!


  • teresa1988
    teresa1988 Member Posts: 3 Listener
    My son has been refused pips twice, don't know how he will survive financially when he doesn't have his dad and me.
  • Yadnad
    Yadnad Posts: 2,856 Connected
    My son has been refused pips twice, don't know how he will survive financially when he doesn't have his dad and me.
    Don't worry, I've failed three times. It's not the end of the world, People will always find a way round everything. Money isn't the be all and end all, Things will eventually come right in the end.

  • Tardis
    Tardis Member Posts: 214 Pioneering
    My child is younger than yours, so I was able to get functional evidence from school.  Is there anyone involved in your son's care who could write a report for him?  You can write a letter yourself detailing all you have to do to help him and why.  Put plenty of actual examples on the form (don't just tick boxes) saying what happens and when and why and how you deal with it.    Take your time, and ask the DWP for extra time if you need it.  
  • Tardis
    Tardis Member Posts: 214 Pioneering
    @yadnad Not very helpful to the OP?
  • teresa1988
    teresa1988 Member Posts: 3 Listener
    Hi, thanks for the advice our son is 21, he wasn't diagnosed until he was 15.
  • poppy123456
    poppy123456 Member Posts: 31,364 Disability Gamechanger
    My son has been refused pips twice, don't know how he will survive financially when he doesn't have his dad and me.
    Hi,

    When he was refused the first time did you ask for a Mandatory Reconsideration and then take it to Tribunal or did you start a new claim? Starting a new claim isn't the answer. Asking for the MR then Tribunal, if that fails is always the better option because they will continue to keep refusing if you use the same evidence each time. PIP isn't about a diagnosis, it's how you're affected by those conditions.
  • teresa1988
    teresa1988 Member Posts: 3 Listener
    My son didn't want to take it any further at the time. It took him a long time to accept his diagnosis. He doesn't worry about the future. We will have to do something because financially he couldn't cope with out us. 
  • Yadnad
    Yadnad Posts: 2,856 Connected
    Tardis said:
    @yadnad Not very helpful to the OP?
    Is it not? The point is that there are others in a worse position.
  • jamie86
    jamie86 Member Posts: 6 Listener
    Hi there 
    my partner is due to get a mobility car on 26th October and he gets pip on 31st October will he still get his full pip this month or will they take his mobility rate thanks 

Brightness

Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.