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Hi, my name is Linduska!

LinduskaLinduska Member Posts: 4 Listener
Hi my name is Linda my Slovakian friend calls me Linduska an endearment in her country. 

I am a career for my mum who has Parkinson's and dementia. We were told 6 weeks ago she is at end of life but is still with me and my 3 sister's who look after at home giving palliative care.  My mum lives with me and I mainly take care of her and work 40hrs a week. I have done this for the last two years and also comforting her through the loss of mum's eldest of six and only son forgetting my own grief and continuing in going to work keeping life as normal as we all could for mum. She has had a broken arm and recently a unbroken fema now has a plate in her left leg.  We also know she has small strokes which progressed her Parkinson's.  I've had no time off work through all of this and have now hit my limit of stress after being told mum is on end of life. That pushed be beyond all i can cope with. Ive had 8 wks off work witj stress and now rske pills and the company i work for have now stopped my sick pay and forced me back to work cause i cant survive without pay.  I thought mental health was  taken seriously. I'm far from being ready yo go back as we are still nursing mum. We are not entitled to night nurses that we were assigned for a few week which gave me s chance to get sleep. I now sleep in a chair in my mum's room to make sure she makes through the night. My frustration is beyond words and am wondering can I work with these people who have belittled my mums life and how precious it is to me I lost my Dad 20yrs ago so she is my last contact to him. My heart is torn into many shards and finding very hard to cope with I go back this Wednesday my tum is doing somersalts already. How can.people be so cold to other people's needs. 😢😢😢😢 

Replies

  • Ami2301Ami2301 Member Posts: 7,418 Disability Gamechanger
    Hi @Linduska

    Welcome to the community :)

    I am so sorry for what you are going through. You are a truly amazing woman for doing everything that you do! I'm sorry I don't know what advice to give you about work and nurses for your mum, hopefully another member may have some advice and will get in contact soon.

    You're in my thoughts
    Disability Gamechanger - 2019
  • Richard_ScopeRichard_Scope Posts: 2,724

    Scope community team

    Hi @Linduska

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know. 


    Scope
    Specialist Information Officer - Cerebral Palsy

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