PIP, DLA and AA
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Appealing PIP decision

sparkey0151sparkey0151 Member Posts: 9 Listener
edited August 2018 in PIP, DLA and AA
Hi had my pip face to face assessment, last month got no points, i was on DLA and dwp, any way the upshot is i have lost £800 ish a month, the reason i was on the highest rates where that in 2016 i was infected with legionella which resulted in me having a hole in my left lung, this was the start of a year battle, i then got pneumonia in both lungs and was put in critical care in the royal liverpool hospital where they found i had hairy cell leukemia, i spent 3 months in hospital 6 weeks of this was spent in intensive care, so i then got out of hospital and 6 days later started chemotherapy caldera brine for 5 days  then a week break then injections to help my bone marrow to grow this was worse than the chemo, it has left me with severe fatigue depression and i get breathless quite easy, the face to face medical was a farce to say the least and the reasons for not awarding me pip are somewhat of a made up story by the so called medical assessor, at this point i must stress im not after the top rate just what i am entitled to, i am going to appeal there decision, as i know there are people who get everything there not entitled to, this has left me feeling angry, this system is a disgrace.

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sparkey0151   Pleased to meet you welcome.

    Thank you for sharing. Sorry what has happened to you and I wish you well in your recovery.

    We are a friendly supportive community. 

    Have a look at our advice , information for Talk about PIP. I wish the best in a successful outcome.

    All I can also say we here to help, advise and be supportive what you are going through.  With care and concern.

    May I also add it is always worth seeking some additional support from CAB. They have a wealth of benefit knowledge and expertise.

    Ask the community anything. Some one will know.

    Ready to listen.

    Please take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
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  • sparkey0151sparkey0151 Member Posts: 9 Listener
    I have spoken to my gp and Mcmillan are going to help, i have spoken to pip on the phone and they say i need to send them a letter from my gp which tells them how my fatigue and depression affect me, i fully except i am not probable entitled to the higher rate but i am shocked they can just say your not entitled to anything, most people never fully recover from cancer, my fatigue issues are down to having a low platelet count ie 101 normal 150 to 450, this is well documented on correspondence from hematology, if they drop to 80 i will need additional treatment ie chemo, this was pointed out to me on my last visit to my specialist, so im very concerned to say the least, then you get these cowboys telling lies and steeling your entitlement and putting you through more stress to get it back, i believe they are on commision to get people of benefits, wonder does any one no if this is true, don't know how these assessors sleep at night, suppose the backhanders help though.  
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sparkey0151 Thank you for your post. Sorry what you are going through. How can we as a community help.?

    I know the situation, issues, problems all around PIP. I still am mystified like you are regarding assessors.

    All I can add we a community are here to support you with kindness and care and I hope sensitivity.

    Please I forgot to add. My opinion is to contact your MP. Understanding what you have been through. There always interested to hear what is happening.  To our community.

    I am sure that I know be some reassurance to you that others have done so.   Because I think as a member of the community the truth is evident. Also they are beginning to realise what is going on.

    Keep in touch I am always here and have care and concern for all our community. Especially those who are struggling and need some one to listen to. Am here.  To support and give much help as I can.

    You are an important member of our community now.

    Please take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    I will do this, this sort of underhanded behavoure needs to be exposed, its a sad fact but this assesment process is so floored and they tell blatent lies , i will just aft to go through the process at the moment, but it has opened my eyes to how these so called medical professionals do buissines they are no more qualified than me but can dismiss real health facts and go above the specialists, i am the type of person that wont complain only go to the doctors if im very bad, but i feer this has changed my stiff uper lip atitude, i aim to get what im entitled to and not a penny less, and i would suggest to anyone to do the same this has got to be a breach of humen rights as i thought having cancer you are classed as diabled anyway, my lukimia is chronic so as i write there is no cure but it progresses very slowly and is a rare form of lukimia so not a lot of data, life is what it is im not complaining about being ill and im not as bad of as some but i do take offence to being treated this way, and even if i get the money back i will continue to expose everything i can about there under handed behavoure, and use social media to its fullest
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sparkey0151 Thanks for your post I hope you do. I know from my own personal experience wish I had to contact my own MP.

    This just a glimpse of me. Been on benefits on and off twenty years. All the time like your good self working but been born disabled and have still struggled and strived.

    What gets to me is in all of twenty years plus. Got assessed and reassessed on and off every 18 months.  One so called those days retired Doctor. Says fit to work. Down sign on struggle get  mental illness, plus addiction. Sign off sick then told unfit to work next 18 months here we go again and so it went on . Sometimes maybe 2 years but constant round a bout.   Fit to work sign on and then sign off unfit to work.

    Constant walk over by assessors lying all the stories around it all.

    Till last year had a support worker took my case up and arguing to some young girl .  Nurse she was clueless.  Who was naïve no idea and even with me knowing got going to get better ever.

    Won that for ESA support group at last .

    Last assessment bar the nightmare of PIP a few months a go. Got standard rate but lost the car. Yet I have to say what a farce, nightmare, scary and may I add.  Got points and have no desire to ask for more. Because frightened might lose the lot if I appeal.

    Going to have to buy a car use my small savings have no choice. 

    Sorry for my story sharing to you. Understand this we as a community are all being supportive to everybody.

    Hope you get the outcome you deserve. Best wishes to you.

    Pleasure to meet you

    Take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    Could you tell me why you feel you would lose everything if you argue with them, i feel they do try to intimidate people but im at the stage where im looking for a fight and im prepared to go all out, i wont let this scum push me about, im certain there is a human rights violation with these situations and if enough people kick up a fuss who knows, on saying that though this country is corrupt as hell and freedom of speech etc is a thing long gone, I had been told about the lying & corrupt ways of the PIP but thought it may be individual cases, how wrong i was, i wont share my true feelings about the lying **** who threw me under the bus but i think you get my drift, 
  • Liam_AlumniLiam_Alumni Scope alumni Posts: 1,113 Pioneering
    Hi @sparkey0151, how are you getting on? Any news on your appeal?
    Liam
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    I have sent the paperwork saying i disagree with there decision, backed up by a letter from my Gp , so just waiting to see what happens,
  • YadnadYadnad Posts: 2,856 Member
    I have spoken to my gp and Mcmillan are going to help, i have spoken to pip on the phone and they say i need to send them a letter from my gp which tells them how my fatigue and depression affect me, 
    How on earth can a GP write a letter stating how anybody lives with a condition.
    For a start unless you have him/her live in with you for a week, they can't.

    Some might say that you should explain to the GP just what is the impact of the condition then he/she will know and then can write a letter. Unless I am needing help, that would be no different than the claimant writing the same letter - 'my patient tells me that.....' Hearsay evidence at best.

    I would suggest writing a diary of 7 days setting out what happened, when and why.
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    Its hardly hearsay, my gp has all my information sent from my Hematologist, it is well documented with reference to my fatigue and shortness of breath etc. 
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    My g p wrote me a letter to support my pip application at tribunal and the panel seemed to take it on board. I had made an appointment with my gp just to discuss that and he typed notes while asking me how my conditions affect me. On the report it was all in his opinion and not my patient states that .... so it’s not hearsay that are qualified doctors and mine has known me a long time. So it’s definitely a bonus to get your g p to support you if they are willing to. 
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    I know, i never went to my gp much till i got ill so its not hearsay its fact and as pointed out by my GP i was a very active person, having an attitude its hearsay coming from a professional, this is the very attitude these so called health professionals who conduct the face to face medicals, there no more  a medical professional than me, how can someone have leukemia and be well ?
  • YadnadYadnad Posts: 2,856 Member
    My g p wrote me a letter to support my pip application at tribunal and the panel seemed to take it on board. I had made an appointment with my gp just to discuss that and he typed notes while asking me how my conditions affect me.
    So he was typing a letter at the same time as asking you how your conditions affected you?
    Has he ever seen you for himself in your own environment when these difficulties arise?
    If that was all he was doing, generally repeating what you were telling him is hearsay evidence.

    When I see my GP or indeed any of the many consultants I may complain how difficult life has been but that does not translate into a factual report of what the GP or consultant thinks or believes.
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    So how does keeping a daily diary make any difference based on your theory ? my description of my day to day health problems are backed up by my blood counts, etc and the scaring on my lungs backed up by x rays, i did not get a letter of my doctor that day he told me he would compile it based on my strong medical evidence, and anyway what is your problem, im not trying to get anything im not entitled to.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    edited August 2018
    Please can everyone be mindful of the fact that everyone will submit different pieces of evidence. Yes there will be the 'suggested pieces' and I appreciate you all just want people to get the best claim, yet there are no 'wrong' piece of evidence if it covers what your needs are. Thanks :)
    Community Partner
    Scope

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  • brighidbrighid Member Posts: 23 Connected
    I think the point is that you know how your condition affects you the best and PIP insisting on a letter from GP is just giving you a hoop to jump through. 
  • YadnadYadnad Posts: 2,856 Member
    brighid said:
    I think the point is that you know how your condition affects you the best and PIP insisting on a letter from GP is just giving you a hoop to jump through. 
    The hoop in this question, like many of them, is there to back up what you say. If the assessor or the DWP was to believe everything everyone says the system would collapse.
  • sparkey0151sparkey0151 Member Posts: 9 Listener
    I do agree with that, my point all along has been my situation is not questionable, i would sooner work full time like i was in 2016, i did not know anything about benifits
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