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Should I reapply for my daughters PIP?
Hi. My name is Annie and I am looking for help for my daughter who is 20. She has a rare chromosome abnormality which causes a lot of autistic expression, she also suffers from panic disorder, anxiety, mobility problems as her feet turn in and her legs hurt and to top it off, she got glandular fever when she was 14 and now suffers from chronic fatigue. When she was diagnosed with the 9p chromosome issue,at 12 we applied for DLA for her and got medium rate along with high rate mobility. She was under CAMHS and saw a geneticist and paediatrician. When she turned 16, they sent a nurse out to assess her for PIP and she was once again successful at medium rate for care and high rate mobility, in fact, they initially awarded low rate mobility and then changed it without us having to say anything. Eight months ago, we were sent a letter of review in which I said there was no change to her condition and they sent a lady out to check her out. The lady did no physical evaluation at all and said it was because ME changes so often and she assured us that she was confident that my daughter would continue receiving PIP. She was turned down and lost all her privileges like free prescriptions and her blue badge which we never actually used, but it would have come in handy if she'd ever driven or gone out alone which she doesn't. I, as her representative, appealed the decision, but were once again turned down and she was worried about going to an appeal as she struggles with social situations and travelling is very difficult so she said not to worry about it. Part of the problem I feel is that she had been discharged from CAMHS and the paediatrician and the genetics in London and as she rarely leaves the house, she rarely sees the GP unless I go with her and most of her visits are over the phone now. We have got her GP to write a letter defining her conditions and she is going to see someone in adult mental health in September and we are going to ask for a letter from that person too. I know that she may be turned down if we reapply now so I'm trying to find out the best way forward. Any helpful hints or tips or contacts would be gratefully received.
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