CP and vertigo? — Scope | Disability forum
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CP and vertigo?

CarolD_P
CarolD_P Member Posts: 5 Listener
edited April 2021 in Cerebral palsy
Hi,
I’m posting this about daughter. Is there anyone else here that suffers from vertigo symptoms? My daughter’s symptoms started at 16 after ear infections and worsen during times of stress (on and off all through her final year at Uni). Virus or a problem with the ears has been ruled out, and the conclusion is that it is CP causing the vertigo. Apparently, studies have been done regarding vertigo and CP, but not with people with Hemiplegia (my daughter has Hemiplegia affecting her left side). Are there alternative therapies that work on dizziness? Medication doesn’t control it sufficiently.
Thanks.

Comments

  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Hi @CarolD_P
    Welcome to the community! Unfortunately I don't know of any alternatives, a few members of the community suffer with vertigo and they may be able to suggest ideas :) Also if you take a look at the Specific Conditions section you will find CP, there are lots of discussions. Wishing you all the best :)
    Disability Gamechanger - 2019
  • CarolD_P
    CarolD_P Member Posts: 5 Listener
    Thanks, I’ll have a look. Couldn’t see as I was looking through discussions, but I’m still learning to navigate the site.
  • tess1
    tess1 Member Posts: 7 Listener
    Hello carol. 
    I have suffered with vertigo and labrinthitis for about 6 years, I am under the e.n.t clinic.  Medication hasn't worked or the eply manoeuvre etc... (I am suffering with brain fog. So excuse the way I am putting things.)
    Anti-histamenes are supposed to help as well as travel sick tablets, you could try the travel wrist bands for travel sickness . Also Google exercises for vertigo,  one I had done to put the crystals back in place.
    Lay down with head hanging over the bed, support the patient head with your hands. (your taking all the weight .) turn the head to one side and hold for about (I think 5) minutes,  then sit the patient up for another (5 I think ). Lay back down and do same on opposite side, and sit back up. Your daughter can also do this herself by cushioning her neck and laying her head right back . This is one of the manoeuvres.  She should really be referred to the e.n.t clinic as it could be minears disease.  
    Hope I have been a bit of help.  
  • CarolD_P
    CarolD_P Member Posts: 5 Listener
    Hi Tess,
    Thanks for your response. My daughter has had MRI and balance tests and the conclusion was it was probably CP causing it. The consultant was interested in her case as he said there is only research on vertigo with people with “severe” CP, hers is described as “mild” (sorry, I always hate rating severity of a condition). She was told she could access physio if it continues. Stress does seem a factor, but it can happen at any time and for short periods or be prolonged. I am sorry you suffer with this too, I know it can be very hard to manage as nothing seems to work. I did wonder whether alternative therapies would have an effect, such as acupuncture.
    Thanks,
    Carol
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,673 Disability Gamechanger
    edited August 2018
    Hi @CarolD_P
    We have a community how to guide that might help you! :) And you can find the CP category here.
    Scope
    Senior online community officer
  • tess1
    tess1 Member Posts: 7 Listener
    Hello carol.  
    Bless her,  it's horrible.  I wouldn't know if alternative therapies etc... Would help. I suppose we have to try them to find out. I haven't been diagnosed with cp. I'm still waiting to find out why medicine etc... Isn't working.  Taking ages for the appointment for the mri scan appointment to come through.  
    I hope everything goes well for you both if you try alternative therapies.  
  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @CarolD_P
    Good to meet you. As you know there is not yet a proven link between vertigo and Cerebral Palsy but research continues. Is your daughter experiencing a stressful time at the moment?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • CarolD_P
    CarolD_P Member Posts: 5 Listener
    Hi,
    She has suffered from vertigo symptoms on and off since aged 16 (now 22). This worsens during times of stress, particularly with A’levels and final year at University. Is there a link to some research, I’m interested to know more? The consultant she saw was interested in her case, couldn’t account for the symptoms except for Cerebral Palsy. We’d like to find something that will help alleviate the symptoms.
  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @CarolD_P
    I could not find any concrete research into the link between both impairments. Just very brief mentions of positional vertigo and spastic Cerebral Palsy. I would go back to your G.P. to discuss possible treatments for vertigo. Also, it might be worth your daughter exploring mindfulness and relaxation techniques and see if that alleviates any of the symptoms.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

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  • CarolD_P
    CarolD_P Member Posts: 5 Listener
    Interesting thanks. Thanks.

    Carol
  • lulu29
    lulu29 Member Posts: 1 Listener
    CarolD_P said:
    Hi,
    She has suffered from vertigo symptoms on and off since aged 16 (now 22). This worsens during times of stress, particularly with A’levels and final year at University. Is there a link to some research, I’m interested to know more? The consultant she saw was interested in her case, couldn’t account for the symptoms except for Cerebral Palsy. We’d like to find something that will help alleviate the symptoms.

    Hi, I have CP and frequent vertigo. My gp thought that the vertigo was connected to ENT cold sinus problems which I also get frequently. However, an ENT specialist has just diagnosed it as migraines. The medication worked, and vertigo has more or less gone!  Maybe this is what happening with your daughter?  

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