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Sharing my PIP assessment / fibrolymagia exp for support and discussion

rebecca71rebecca71 Member Posts: 1 Listener
I have just experienced my first PIP assessment at home. I felt humiliated and it was degrading. It is bad enough to live with an invisible health condition but I now feel angry that people genuinely affected in all areas of their life have to go through this.
I researched carefully that I would meet the desciptors and I had my partner and OT with me.
We live with the minute by minute challenges of health problems and ATOS employed by DWP feel it is necessary to come from a stance of you making us feeling guilty for trying to claim a benefit to help with the extra costs of a health condition. 
Anyone else had PIPS awarded for Fibromyalgia? Or a similar experience? Any support be great.


  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Hi @rebecca71 and a very warm welcome to the community! I am so sorry to hear that the assessment left you feeling like this! There will be other people on the community who get PIP for an invisible disability like Fibromyalgia. I am going to move your discussion to the PIP board in the forum and hope others will respond. If you need anything at all then please do not hesitate to be in touch :)

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    PIP isn't awarded based on a diagnosis, it's how those conditions affect you daily. Lots claim PIP because of how fibro affects them but we're all different and no 2 people are the same. What might affect one person may not affect another person and this why you can't possibly compare 2 people with the same condition.

    Ring DWP and ask for a copy of the assessment report, this will give you some idea what the decision will be as they mostly go with the report. Good luck. 
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
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