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We want to hear from you: please tell us about your experience of the online community.

DLA to PIP

saffymill

I live in Belfast and just had 5 long months of changing from DLA to PIPS. Its been so stressful and at 66 yrs old I dont need that stress. I recieved the your DLA is ending letter in the middle of April 2018 Returned the PIPS 2 14th May with a mountain of up to date medical evidence and the CAB who helped fill it in said "we will be surprised if you get a face to face with all that evidence" of course I got a face to face on 11th July 2018. After almost five months to the day I got a decision letter which awarded enhanced rates for care and mobility. The stress has been incredible and I felt like a liar despite my obvious multiple conditions. I need full time care to manage my conditions and need a ton of medical equipment eg wheelchair hoist hospital bed oxygen catheters adapted shower etc and can do very little for myself as I am registered visually impaired. Reading through the points awarded I dont agree with them all as the assessor stated I can dress myself -I cant- but yet got points for things I felt I shouldnt have.
The change brings stress beyond belief and at times I almost gave up.

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Comments

thespiceman

Hello @saffymill Pleased to meet you welcome. Thank you for joining. Thank you for sharing. So sorry what has happened during your assessment.

I know you are not alone in your ordeal with your assessment. There are many members who can identify what you have experienced and suffered..

I am one.

I hope I can offer words of comfort. By saying glad your here and how we as a community can help and advise.

Give you support. Listen to you and be friendly.

Hope that helps. Please ask any thing you wished to know. Please ask.

Some one will be able to give you an answer.

Please take care

@thespiceman

Liam_Alumni

Hi @saffymill, welcome to the community.

Yadnad

saffymill said:

I live in Belfast and just had 5 long months of changing from DLA to PIPS. Its been so stressful and at 66 yrs old I dont need that stress. I recieved the your DLA is ending letter in the middle of April 2018 Returned the PIPS 2 14th May with a mountain of up to date medical evidence and the CAB who helped fill it in said "we will be surprised if you get a face to face with all that evidence" of course I got a face to face on 11th July 2018. After almost five months to the day I got a decision letter which awarded enhanced rates for care and mobility. The stress has been incredible and I felt like a liar despite my obvious multiple conditions. I need full time care to manage my conditions and need a ton of medical equipment eg wheelchair hoist hospital bed oxygen catheters adapted shower etc and can do very little for myself as I am registered visually impaired. Reading through the points awarded I dont agree with them all as the assessor stated I can dress myself -I cant- but yet got points for things I felt I shouldnt have.
The change brings stress beyond belief and at times I almost gave up.

The stress really builds up after the third or fourth re-assessment every two years when you have to go through the whole cycle again. At 70 I had had enough having had 3 re-assessments in 5 years with the need to fight every one to get the correct result - 0 points to Enhanced Care & Mobility.
I just couldn't cope with the appeal system nor the thought of this going on until I die. I just had my claim closed down.

Chloe_Alumni

Hi @saffymill and a warm welcome to the community! I know many members will unfortunately be able to relate to your experience, thank you for taking the time to share this with us all. I am glad to hear that you have received enhanced for both. Please do have a look around the community and let me know if there is anything else that we can do to help