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Told my PIP will stop

sarah50sarah50 Member Posts: 119 Pioneering
edited September 2018 in PIP, DLA and AA
I have just been told my pip will stop. I sent the form back in May saying nothing had changed. I had a face to face in June. I have been waiting 4 months to hear the decision. I honestly do not recognise the report they have based this on in several areas it is the exact opposite of what I told them. I am going to ask for a mandatory reconsideration and if necessary a tribunal. But how can they blatently lie like this?

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sarah50 Pleased to meet you welcome.

    Thank you for joining and sharing.

    Yes they do and can. Understand so sorry what has happened. You have come to the right place for support and may I add also the community

    Have a look at our information and advice. Talk about PIP.  These are the stories of our community members who have been through similar to you.

    Including my self. Sorry to tell you this.

    All I can add is that you are not alone and we as a community will advise. Offer support, information. Give you guidance and hope to help.

    We are a friendly community. Care and share. Please ask the community anything.  Some one will know.

    I suggest CAB to talk to about MR and the procedure what to do next. Have a look at our information as well.

    Pleasure to meet you and wish you success in any appeal.

    Please take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
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  • sarah50sarah50 Member Posts: 119 Pioneering
    Thankyou for your kind words, I was so thrown when I got the letter today. I feel so low they said because I'm not on prescription medcines and I'm not under a specialist team. They have decided I can do all things unaided
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sarah50 Thank you for reply. What is important is to make sure that you have the necessary support.

    I would suggest always try to have some evidence of your health conditions.   At any assessments.

    DWP do not apply for medical evidence and the assessors in my humble honest opinion have and are not experienced  in any medical conditions.

    Knowledge and expertise lacking. Found out this early on. Been doing this twenty years plus on and off.

    Had in the early days retired Doctors.  Now last one a nurse clueless about addiction histories.

    Education is the key here and learning what is needed. I would always suggest find support. To help with forms, evidence and look at seeking copies of anything you have medical evidence .

    Understand this is confusing for you and complex.  I would add if it is possible have look at various posts and comments from members.

    Plus look at the web Benefit and Works or Disability news to give you some insight . What is happening.  There websites. Useful and not intended to scare you but it does help.

    I have become very savvy on a learning curve . Due to certain members on here . Know who they are and thanks to them much aware of what is happening.

    Great to talk to you and hope you please can and will need to ask any of the community advice.

    Wish you well for a positive outcome.

    Take care

    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • sarah50sarah50 Member Posts: 119 Pioneering
    They did suggest in the refusal letter that they had based their decision on medical evidence. The thing is I don't have any. I was diagnosed with ME, fybromyalgia and depression. After the diagnoses my GP prescribed various antidepressants, but none of them helped some made me significantly worse. As I'm no longer taking meds I have no need to see my doctor and I with help from my husband manage my condition as best I can. It is not in itself life threatening. I feel I know what's best for me.
  • mikehughescqmikehughescq Member Posts: 5,392 Disability Gamechanger

    Use this form to start an MR.

    https://www.gov.uk/government/publications/challenge-a-decision-made-by-the-department-for-work-and-pensions-dwp

    Only 17% of MRs win so you're most likely going to appeal. 71% win at appeal.

    Ignore the refusal. It's a template based letter where they pick the closest applicable paras. and use those. When they say medical evidence they just mean the HCP report.

    The actual reason this occurred is because filling in the form with "no change" and no supporting evidence triggers a face to face.

    When you do your MR and appeal give 2/3 examples of how the HCP report was way off but leave it at that and focus on your own evidence. This does not have to be medical. It can be anecdotal.

    Your biggest single issue is that you have two medical conditions which split the medical profession ME and Fibro. Some believe they are discrete conditions. Some believe they are syndromes i.e. a name given to something when differential diagnosis has run out of options. It is a big barrier to get past and even though you should get a relatively high award you will at best get a low award.

  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    sarah50 said:
    They did suggest in the refusal letter that they had based their decision on medical evidence. The thing is I don't have any. I was diagnosed with ME, fybromyalgia and depression. After the diagnoses my GP prescribed various antidepressants, but none of them helped some made me significantly worse. As I'm no longer taking meds I have no need to see my doctor and I with help from my husband manage my condition as best I can. It is not in itself life threatening. I feel I know what's best for me.
    What you describe would fit many many claimants.
    If the prescribed medication doesn't work - why bother taking it. If seeing a GP or Consultant will not change anything or reduce the difficulties you find yourself in - why bother seeing them.

    Then to find that because you don't take the medication that was prescribed or see a 'specialist' that can only say 'yes I know what is wrong with you but there is nothing I can do for you' you are treated as fit and healthy with no disabilities by the DWP is plainly wrong.


    This begs the fact that to get anywhere you are expected to waste the time of a GP/Consultant by making appointments and accept the prescription drugs but never take them. Talk about 'window dressing' to appease the DWP.
     



  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    I don’t get it, seriously.
    They say it’s  based on how your condition affects your daily life not a diagnosis.

    BUT if your not under a specialist, doctor or on medication and proved no supporting evidence your awarded nothing!!!

    Am I just totally thick or is it the case they just make up the rules as they see fit? 😡
  • sarah50sarah50 Member Posts: 119 Pioneering
    I solemnly believe that the sole purpose of the system is to deny all claims unless the evidence is so overwhelming they can't find an excuse not to pay. The hope being that we don't have the strength to fight for what's fair.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited September 2018
    sarah50 said:
    I solemnly believe that the sole purpose of the system is to deny all claims unless the evidence is so overwhelming they can't find an excuse not to pay. The hope being that we don't have the strength to fight for what's fair.
    My belief as well. It is almost as bad as admitting that you drive a car (a Motability one at that) and finding that because of that admission there cannot be any mental or physical difficulties. Let's be honest how can a disabled person drive a car?:  :'(
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @sarah50 you probably right.
    i had a conversation with a family member who has just claimed PIP for the first time, awards 0 points!! 
    They called DWP about taking the decision further and was told by the call handler, very few people are awarded PIP the first time they claim!

    Disgusting
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    edited September 2018
    susan48 said:
    @sarah50 you probably right.
    i had a conversation with a family member who has just claimed PIP for the first time, awards 0 points!! 
    They called DWP about taking the decision further and was told by the call handler, very few people are awarded PIP the first time they claim!

    Disgusting
    Well they do have a point though - if they made an award to everyone that made a claim for PIP it would cost the government an awful lot of money!
    The easiest answer is to deny them the award and wait and see if the claimant puts pen to paper and complain.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Of course all claims aren't denied, that's ridiculous.  Plenty of people claim PIP successfully without any problems at all but we never hear their story.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • susan48susan48 Member Posts: 2,229 Disability Gamechanger
    @Yadnad, I take your point but , as your only too aware, the process doesn’t work.
    They push disabled vulnerable people to breaking point then waste million on tribunals.

    Im not thinking clearly sorry if that doesn’t make sense 
  • sarah50sarah50 Member Posts: 119 Pioneering
    I have a question and I'm very sorry that it's very personal and embarrassing. I sometimes need my partner to clean me after the toilet. In the report it says, 'your physical exam showed impairments in your crouch spine and leg power but there were no significant impairments to prevent you using aids. Therefore I decided you need an aid to manage your toilet needs rather than assistance.' My question is: Is there an aid for this? Sorry for being so graphic x
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    I think what they're saying in this situation is that if you can hold onto a hand rail, while cleaning yourself then you'll score 2 points for using an aid, rather than scoring more points for needing assistance. As assistance is needed, did you state why you need this, and what would happen to you if you used an aid? Is it unsafe for you to use an aid, if so then why is it unsafe?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • YadnadYadnad Member - under moderation Posts: 2,862 Disability Gamechanger
    sarah50 said:
    I have a question and I'm very sorry that it's very personal and embarrassing. I sometimes need my partner to clean me after the toilet. In the report it says, 'your physical exam showed impairments in your crouch spine and leg power but there were no significant impairments to prevent you using aids. Therefore I decided you need an aid to manage your toilet needs rather than assistance.' My question is: Is there an aid for this? Sorry for being so graphic x
    In times gone by in the Royal Household there was a specific person whose job was to wipe and clean the bum of the Monarch
    He/she had the grand title of ' Groom of the Stool'

    It was a job envied by many as they were allowed to get close up and personal with the Monarch.

    https://uk.answers.yahoo.com/question/index?qid=20090807085628AAtxyfo

    Maybe the assessor is referring to that? Or maybe a modern day version of what the Romans used - a toilet brush - could be a little prickly though!

    The Romans had a better idea - they used to sit on the toilet (some 30 or so in a row and next to each other so no privacy), they were each handed a wooden stick with a piece of 'foam' attached to the end of it so that they could clean that part of the body more easily.

  • mikehughescqmikehughescq Member Posts: 5,392 Disability Gamechanger
    The actual issue here is that people, encouraged by DWP, believe medical evidence is the be all and end all. It is not. Anecdotal evidence, giving real world examples of what happened when you attempted or last did a specific activity, are more than sufficient if done in detail.
  • sarah50sarah50 Member Posts: 119 Pioneering
    As suggested I could hold a hand rail but it doesn't solve the problem that I cant twist round to reach, perhaps my arms are unusually short. I did explain all this at the assesment but I can't demonstrate what I can't do. This really all comes back to the point that I don't recognise, who this report was written about as they appear to have put the exact opposite of my answers. If it wasn't so serious it would be laughable 😂 Thankyou for all your replies, my husband will be delighted to be referred to as the groom of the stool and I will be sure to tell him what an absolute privilege it is 😂 he will be so pleased. X
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