If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Girlfriend was just diagnosed with fibromyalgia

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PIPnewbie
PIPnewbie Community member Posts: 298 Pioneering
We went to her pain specialist appointment and the doctor said that based on a year of trials, forms, etc. she’s in a position to diagnose her.

As some of you know, her PIP application detailed it as suspected fibromyalgia, and she explained in the consultation she was likely to be diagnosed with it “next week” which is today.

The DWP has received her report, but apparently it is best to await their decision before updating them on this diagnosis correct?

Comments

  • poppy123456
    poppy123456 Community member Posts: 57,241 Disability Gamechanger
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    Hi,

    Nooo, you don't need to report this because if she does then they'll class it as a change of circumstances and send out new forms. PIP isn't about a diagnosis, it's how those conditions affect you daily.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • PIPnewbie
    PIPnewbie Community member Posts: 298 Pioneering
    edited October 2018
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    Hi,

    Nooo, you don't need to report this because if she does then they'll class it as a change of circumstances and send out new forms. PIP isn't about a diagnosis, it's how those conditions affect you daily.

    Yes true, have to keep remembering that.

    Surely diagnoses carry weight though, because theoretically couldn’t a person with no diagnosed conditions just lie through their teeth?

    But I am going to tell her to keep this one close to her chest for now.
  • poppy123456
    poppy123456 Community member Posts: 57,241 Disability Gamechanger
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    No because a diagnosis doesn't mean anything. All conditions affect people in many different ways, you never have 2 people the same. I have fibromyalgia and other things too. I was diagnosis, 6 years ago but have had it for almost 10 years. There's so many symptoms that you'll never get 2 people that are affected in the same way.

    There's very few people that claim benefits fraudulently.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • miilreef
    miilreef Community member Posts: 21 Connected
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    In my case extra medical evidence helped a great deal at my tribunal.
    The assessor at the F2F had claimed they had made a detailed assessment of my joints, including rotation, and reported all kinds of lies because they didn’t touch me.
    My Consultant examined and reported on the condition of my joints, naturally a total contradiction of the F2F assessment, 9 months after my F2F and the Tribunal panel told me they had placed great weight on that letter.
    Obviously I had to explain how the joint problems affected me on a day to day basis but the extra evidence led to the assessors report being disregarded in their evaluation.
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