Cerebral Palsy
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

CBD oil?

a_foakesa_foakes Member Posts: 20 Connected
edited October 2018 in Cerebral Palsy
I'm thinking of using CBD oil to help my daughter who has CP, mixed spastic and dystonic, all 4 limbs. I'd be really interested to hear if anyone else has also tried this, what sort of strengths of oil worked, when best to use etc.? 

Thanks for reading this post! 

Replies

  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    Hi @a_foakes
    I have been using 5% CBD oil for the last 5 weeks twice per day. I haven't noticed any improvements at all if I'm honest. I have done further research and 5% is very low, so that is probably why. I know of people on much stronger CBD oil who absolutely swear by it.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • a_foakesa_foakes Member Posts: 20 Connected
    Thanks Richard, that's really helpful though I'm sorry to hear it hasn't brought you any improvements. I've found a very good website that stocks higher concentrations but don't know if you'd be interested to hear about it or whether I can post that sort of information. Do let me know if you would and I'm sure I can find a way. Take care and thanks again.
  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    Hi @a_foakes
    I would be really interested in that information.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • debs182debs182 Member Posts: 26 Connected
    a_foakes said:
    Thanks Richard, that's really helpful though I'm sorry to hear it hasn't brought you any improvements. I've found a very good website that stocks higher concentrations but don't know if you'd be interested to hear about it or whether I can post that sort of information. Do let me know if you would and I'm sure I can find a way. Take care and thanks again.
    I would like to know what website too please, I tried some a few months ago for my fibro but it didn't do a thing but then again I did buy it off ebay so probably wasn't even proper cbd 
  • a_foakesa_foakes Member Posts: 20 Connected
    edited October 2018
    Of course it's CBD brothers 
    [link removed by moderator]

    Hope it's ok to post that. Please do let me know if not and I'll take it down. 
  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    edited October 2018
    We have also had the news today that medicinal products made from cannabis will be available on prescription in the U.K. from November 1st. I will include some information about the changes to accessing medicinal cannabis here.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @a_foakes, I've removed the link because of our community guidelines on advertising, but really promising news about the prescription changes!
  • a_foakesa_foakes Member Posts: 20 Connected
    Thanks Pippa and sorry about the inadvertent advertising. I'll make sure it doesn't happen again!
  • skyblue59skyblue59 Member Posts: 13 Connected
    Hi a foakes, I asked a specialist uroligist nurse about that and she said it is mostly for pain but doesn't work for much other than that. I don't want to disappoint u. It might work for u though. Hope all goes well for u both. 
  • a_foakesa_foakes Member Posts: 20 Connected
    That's really helpful, thank you and to be honest even if it just gives her a little pain relief that would be amazing. 
  • skyblue59skyblue59 Member Posts: 13 Connected
    Your welcome. It's available in different chemists and health shops too. Aww hope she feels better soon.
     Linda x
Sign in or join us to comment.