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Getting rapidly worse

crackercracker Member Posts: 324 Pioneering
I have more pain and lack of mobility almost every day. My thumbs are coming out of their sockets frequently when I do something as simple as pick up a book or pull my sleeve over my hand. The bones in my shoulders are eroding fast, much pain when they grind each other and land on nerves.

I am to see another specialist and have another MRS, but all the doctors say nothing can be done. So I an faced with my bones literally crumbling to the point where they will not support my body any mire.

Just whining here, but I am quite frightened and depressed. Thank you all for your support.


  • topshoestopshoes Member Posts: 442 Pioneering
    edited October 2018
    Hi @cracker yes i know what you mean ,i am sorry to hear this ,have you been to the drs about your thumbs  and the rest of what is hurting  
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,489 Disability Gamechanger
    Sorry to hear this @cracker sending lots of hugs your way ❤️
    Disability Gamechanger - 2019
  • exdvrexdvr Member Posts: 314 Pioneering

    Hi @cracker  yes I can totally agree with what you're saying.  Not a day goes by without something or other worsening and unable to find a cure for it.  Yesterday and without notice a leg ulcer opened up and wasn't noticed until my sock was soaking with blood and pus.  Today I can hardly walk 10 steps without my legs collapsing under me.  NHS while good has basically given up on us oldies.  Even at 70 getting older is no joke.  You're not alone.

    Best wishes.

    Best wishes.


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