new to all of this! Son diagnosed with CP at 6 - I have no idea what im doing — Scope | Disability forum
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new to all of this! Son diagnosed with CP at 6 - I have no idea what im doing

AlexAndrews24
AlexAndrews24 Member Posts: 1 Listener
edited November 2018 in Cerebral palsy
hi, my name is Alex. I have a son called Riley who is 6 years old. he got diagnosed with Cerebral Palsy this year. we have had a couple of different therapy sessions, he has now got a leg splint (which I don't think is helping)…...I have no idea what im doing or what I need to do. I need someone to show me which way is up. can someone offer me some guidance on the process please? thank you xx
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Comments

  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @AlexAndrews24   Pleased to meet you welcome.

    Thank you for joining and also sharing.

    I am sure one of our team can advise @Richard_Scope he has a lot of knowledge on CP and would be able to help you with any questions you may have.

    Also take a look at our  posts from community members under Cerebral Palsy .  May be of interest to you and give you reassurance and support.

    We are a supportive, friendly community. Care and share.

    Please ask if we can advise on anything some one will know.

    Please take care.


    @thespiceman


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  • Ami2301
    Ami2301 Member, Community Co-Production Group Posts: 7,945 Disability Gamechanger
    Hi @AlexAndrews24 welcome to the community!

    @thespiceman has given you some great links to check out!

    Do let us know if we can be of any further assistance! :)
    Disability Gamechanger - 2019
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  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @AlexAndrews24

    Good Day it’s great to meet you!!!!!!!

    I’m very very sorry to hear about your current problems with your leg split.

    Sorry but did you get the leg splint via the “NHS” ??????

    Can you please let me have some details on the “leg splint” ????

    I will try to help you out with things then!!!!!!!

    Thanks.

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  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Good to meet you and welcome!
    Receiving a diagnosis can be a really confusing and emotional time, even after a year. What you are feeling and experiencing is completely normal and understandable. Are there any specific areas that you think I could help you with?

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,673 Disability Gamechanger
    Hi @AlexAndrews24
    We have some videos around getting a new diagnosis for your child that might help?








    Scope
    Senior online community officer
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