Find out how to let us know if you're concerned about another member's safety.
Hi, my name is LaLa098!

LaLa098
Member Posts: 2 Listener
Hi i have fibro, and my doctor has also diagnose CFS, or ME. I am waiting for a special fatigue clinic hosoital app.
I have not long been awarded lower end pip
Due to having Fibromyalgia, but am finding even harder to cope now. I have also just lost my son to suicide, and my brain is a total mess. I am finding everything almost impossible to deal with and sort out. I have many other problems to, ie, family, debt, transport, home, etc. I dont know where to start anymore, and cant do this on my own. It seems every time i find some help, something comes along and puts a spanner in it, and i end up having to start the process all over again. I need to find help that can come to my home to see me. Is that at all possible anywhere. Are there people or organisations that could do this? Thankyou
I have not long been awarded lower end pip
Due to having Fibromyalgia, but am finding even harder to cope now. I have also just lost my son to suicide, and my brain is a total mess. I am finding everything almost impossible to deal with and sort out. I have many other problems to, ie, family, debt, transport, home, etc. I dont know where to start anymore, and cant do this on my own. It seems every time i find some help, something comes along and puts a spanner in it, and i end up having to start the process all over again. I need to find help that can come to my home to see me. Is that at all possible anywhere. Are there people or organisations that could do this? Thankyou
Comments
-
Hi lala098
I too have Fibro/ME and other things going on . Iknow the worst thing for it is stress. I alsoam completely overwhelmed and isolated much of the time. Have you thought of voluntary organisations ? i had a lady visit me from age concern ( although you have to be over 50 to qualify. Maybe your local library or council may point you in the right direction? Good luck xx -
Hi @LaLa98A very warm welcome to our community. I'm sorry to read that you are dealing with so much at the moment. I want to assure you that you are amongst friends here and we love a chat.I have found some websites that may help.Remember, we're always here if you need a chatScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hello @LaLa098 Sorry to hear about what is happening to you.
Understand as I am sure all of the community can be supportive to you.
Have you contacted CRUSE . This is an organisation for those going through bereavement.
Helpline 0808 808 1677
Website https:// wwwcruse.org.uk.
You can talk to them in need of comfort and ask for any support.
What is important right now is that we as a community can help and give any support, advice and guidance.
Something to look at is finding an advocate to represent you and finding what is needed to help you.
Looking on line and finding that what is suitable .
It is finding that I do think would be helpful to you.
One organisation is to consider The Salvation Army.
Have a helpline 020 7367 4500 .
https://salvationarmy.co.uk.
info @salvationarmy.org.uk.
Understand in times of crisis and pain you are going through you need some one. They could be some one to turn to.
I am and the community are always here anytime.
Pleasure to meet you.
Take care
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
Brightness
Categories
- 52.9K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 149 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 575 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 277 Dating, sex, and relationships
- 263 Exercise and accessible facilities
- 21.2K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 674 Chronic pain and pain management
- 700 Rare, invisible, and undiagnosed conditions
- 751 Autism and neurodiversity
- 928 Mental health and wellbeing
- 298 Sensory impairments
Complete our feedback form and tell us how we can make the community better.