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Hi, my name is RTX2080!

RTX2080RTX2080 Member Posts: 31 Courageous
Hello everyone, I am based in Lincolnshire and due to my sham of an experiance with the PIP I decided to reach out to others and make friends but also to help others.


  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hi and welcome
    Is there anything we can help you with ?
    Be all you can be, make  every day count. Namaste
  • RTX2080RTX2080 Member Posts: 31 Courageous
    edited November 2018
    Hi Cockney, no thanks I sent my appeal off so its all in the process  however I posted on here a while ago and I cant see it about Capita? thanks.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    Good Evening & Welcome 🙏 

    It will be great to have you onboard.

    Yes “PIP” seems to be a never “ending story”

    We have got many members who have either experienced it right to the end or have just started their journey’s.
  • RTX2080RTX2080 Member Posts: 31 Courageous
    Thanks Steve, Yea its a BIG issue the government needs to prioritise.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

         No probs!!

    Yea look 👀 at the mess “DWP” have made with “ESA”

    ”There’s not going to be much in the pop”

    After that “boo boo”
  • RTX2080RTX2080 Member Posts: 31 Courageous
    Evening Steve, The fact that some people on other sites have contacted me and told me their sufferings whilst being assessed and then waiting for more than half a year to get their appeals back is shocking!! It looks like to me that Capita and the whole outfit needs auditing by the government, How can so many people be passing on their appeals yet the assessors are saying they earned little or no points? I have posted a link showing that they are on a commission based wage, The more assessments they do the more $$s they earn so they aint bothered who passes who fails, its so so wrong. Innocent people suffering..Capita should be ashamed.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    Yes they get paid thousand’s 💰💰 so the more they do the better on them let alone with happens to people like you & me.

    I don’t know how they all sleep 💤 at night!!!!!
  • RTX2080RTX2080 Member Posts: 31 Courageous
    100% agree Steve!! its shocking on every level....shame on them.. Thanks
  • [Deleted User][Deleted User] Posts: 118 Listener
    Hi RTX2080
    nice to meet a fellow Ptsd sufferer .I am 56 and was only diagnosed last year with Cptsd (the same as you from a horrific childhood) I had to work it out myself what was wrong with me 2 years ago I realised what was going on due to a rhumatologist linking my long term depression. Anxiety Panic attacks with a diagnosis of fibromyalgia ...I lookedback wondering when they started and realised I had been struggling probably from 2 years old when apparently I was regularly been picked up by the police to take me home I look back and think i was probably trying to escape! most days i feel like i have been battered with a cricket bat  and now the physical matches  the mental injury  experienced as well...great! . I too was disgusted that i was judged as being well kempt. tidy hair with good eye contact and no signs of memory problems and good communicator....they cant see i have massive gaps in my own life history or the trigging of symtoms like flashbacks..night terrors..or hypervigilence etc ...happen so much i barely leave the house ..of course i look them in the eye im on super alert forgodsake! I analyse every movement around me and i am in a mode that is ready to run ..although i cant run ..i can bearly walk due to the pain and chronic fatigue and when i do go out have to use a mobility scooter which makes me feel more vunerable . I too have the hate of injuctice and unfairness and have my MP involved...I know I feel like someone threwa rock into the middle of my child soul and the ripples in my life reach to this day. What disgusts me is that i feel we fell through the cracks so cruelly in our childhood and now we are being institutionally abused with lies and disregard. I dont know if you know but CPTSD was only included in the ICD 11 this year although it was recognised as a severe end of the spectrum of Ptsd although in1992! This makes me angry not only that its not been brought into the ICD but its been brushed under the carpet so no services are available for sufferers. There is different treatment protocol for Cptsd than for ptsd so we have been let down there too because there is no specialist support for Cptsd sufferers. Ithink the reason why Ptsd was brought to peoples attention was because so many army members have drawn attention to it. The problem is Cptsd starts in childhood and we crumble visibly later . Of course we need help and struggle in ways the majority of people luckily would not be able to comprehend but judging us by how we look is like saying you can see and understand the nervous system by looking what a person looks like is a joke eh! Also have other problems with my health all stemming from the ptsd im guessing however scored 0 the fight is sickening isnt it.I too aknoledge that we at least we know what we have as i recon we are better off knowing than not then we know whatwe are struggling with ...i feel for those who dont know and constantly beat themselves up for not being able to understand themselves . 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger

    No they couldn’t organise a “whats it in a brewery”
  • RTX2080RTX2080 Member Posts: 31 Courageous
    Lol indeed Steve! :smiley:
  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Welcome and did u get the advice you were looking for?
    I am a fibro warrior !💜♏️
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    Yes but “It’s Very Scary Though”
  • RTX2080RTX2080 Member Posts: 31 Courageous
    Hi Debbie, Yes I emailed my local MP as well as others that are related to the disability act and so far had automated emails but I am sure and hopefull something will happen, I had an email the other day from DWP stating this:

    Thank you for your recent email which you sent to various people about concerns you have raised with Personal Independence Payment (PIP).  I have been asked to reply.

    I was very concerned to read about the issues you have raised and in line with our Complaint’s Handling Policy, this will now be investigated and responded to by our Tier 1 Complaint’s Handling Team. They will be in touch within 20 working days.

     Your sincerely...

    I am not sure if others have had this or that its an automated reply for all appeals I would like to ask you all who have appealed have you had this reply please?

    Steve. Yes its very scary in deed. Thank you both.

  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    No probs it’s my Pleasure 😇😇

    Please please let me know if there’s anything else that I can help/support you with!!!

  • RTX2080RTX2080 Member Posts: 31 Courageous
    Thanks again Steve. I am really liking this forum! It  seems we are all supporting one another thats rare these days. Cheers
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    Many thanks 🙏🙏🙏

    Yes this “Site” is the “Best Medication”

         “Believe me”

    Please please jump in but don’t get “Wet”
  • RTX2080RTX2080 Member Posts: 31 Courageous
    I agree Steve! Great community eh..Thanks.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    No probs, anytime my friend!!!!!
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @RTX2080, and a warm welcome to the community from me too!

    Really glad to see you've been in touch with our other community members, and you're liking the forum so far. If we can be of any assistance, do let us know!
  • RTX2080RTX2080 Member Posts: 31 Courageous
    Yeah I really like the interaction with you guys its great thanks. An no its all good im just in need of the government to pull their fingers out lol.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    I think that you will see “pigs fly” before the government pull there “fingers out”

  • RTX2080RTX2080 Member Posts: 31 Courageous
    I'm starting to believe that myself Steve :-(
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @RTX2080

    Yes I think it’s becoming “Reality” my friend!!!!!!!!!!
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @RTX2080   Pleased to meet you welcome. Sorry to hear that your having problems and issues with the whole debacle of PIP.

    Understand and glad to be supportive of anything I can help with. My story is basically I have been continuous being assessed and re assessed over a long period of time.

    Either on ESA and PIP but way before all PIP and ESA ever created.

    My story is not unique but proves how the system is constantly failing those like my self, because every eighteen months one school of assessor says I am fit.

    Eighteen months later unfit and so it goes around for I am saying must be twenty plus ongoing.

    I am very supportive and help many members of our community as I am one of the team of community champions like @steve51.

    My own circumstances are have mental health and disability.  So am like many in our community who suffer. Have done many years working, business and other ventures but there must be a time now to stop revaluating people like myself . .

    No point going on the dole recently had calls from various companies who I was contracted to and they have in principle to stop harassing me. I am not a shirker done what have done.

    Yet no employer wants a mid fifties man with illness and disability. All sad because so much time wasted . Have the skills and qualifications then but continuous negativity by employers.

    Must stop also the constant lying of  reports. Could and can fill an exercise book with all the assessments I have been through.

    One disturbing in my view and opinion is the assessment of your disability outside the room. Before that you have even sat down.

    Behind a door as I am quite in tune to the numerous assessors who shout and cajole there way across my path. Said on that one must have physic powers if the door was closed.

    What has really to change . I have said before should be run like Courts and there are proposals in place will not take place.

    In the sense Governments knows costs too much.

    These include I want to see. Advocate to represent claimant.  To offer a voice to claimant, speak on their behalf. Video recorded. All reports typed up and copy to claimant. Any errors corrected. 

    Inclusion of medical evidence to the claim. Not only  based on daily living but how the disability, illness is important plays in my view a role.  Effects that person as we have seen on the forum too many have illness and conditions, disability.

    Which often is not the case. Add to that no physical assessments. I am totally against that.  What does that prove.

    A lot of this has been said before.

    All I can do is complain in Email or phone or send a letter to my MP.

    Apologise for long post wished to share and thank you for reading.

    Always here to help and to listen.

    You take care


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
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