Employment and Support Allowance (ESA)
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Worried about losing ESA

poorsoulpoorsoul Member Posts: 33 Connected
I Have severe social anxiety and depression recently filled in form about esa worried about losing it

Replies

  • Oscarej11Oscarej11 Member Posts: 4 Listener
    Hello, I understand where you’re coming from.. what makes you feel this way?
  • Richard_ScopeRichard_Scope Community Team Posts: 2,496 Scope community team
    Good to meet you. Please don't worry while you are here, you are amongst friends and people who are experiencing very similar things. What makes you think you will lose ESA? We have lots of discussions about ESA that may help..

    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Hi,

    Was is the ESA50 work capability assessment form you filled in? Or the ESA3 form?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    work capability I think not 100 percent sure whats the differerence
  • poorsoulpoorsoul Member Posts: 33 Connected
    Good to meet you. Please don't worry while you are here, you are amongst friends and people who are experiencing very similar things. What makes you think you will lose ESA? We have lots of discussions about ESA that may help..
    I always fear the worst when filing in these forms if labour were in power I would be more confident in things being dealt with fairly but with the torys there is no empathy they want as many people off esa as possible.They offer bonus payments to dwp to do so.

  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Hi @poorsoul, and welcome!

    I'm sorry to hear you're feeling worried. It's often the waiting time that can be hardest to deal with! Please do keep us updated. You're among friends here and we'll advise where we can.
  • poorsoulpoorsoul Member Posts: 33 Connected
    Thanks pippa hopefully I wont need the face to face and get my esa but things like that rarely happen im afraid nothing I can do but wait and see.
  • poorsoulpoorsoul Member Posts: 33 Connected
    Everything I said about my panic attacks severe social anxiety and depression has been ignored.In my form I said I cant travel to a face to face assessment and to my horror have been asked to travel to Glasgow on the 14th of January or face benefit cuts.I CANT GO and would rather someone gave me a lethal injection and put me out my misery totally devasted,:'(
  • [Deleted User][Deleted User] Posts: 0 Listener
    edited December 2018
    You can ask for a home assessment but you need to get a letter of support from a medical professional for it. I got one from my GP and the assessment company then agreed and said I could have a home assessment (I've got agoraphobia among other things), they don't always agree though but it's worth trying. Have you got someone who can help you? 

    There might be a charge for the letter.
  • poorsoulpoorsoul Member Posts: 33 Connected
    edited December 2018
    I will go to a doctor asap to try and get a letter im happy to pay for it my mum phoned today but they are very busy and she will try again on Monday.If I dont get help from dr I still cant go.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    It's not the present government that have done this, the rules for ESA have always been the same and were there even before the Tories.

    When filling out the form did you put the reasons why you can't travel to the assessment?  Do you attend other appointments? Did you send evidence to support your claim? They very rarely contact anyone for any evidence, the onus is on you to make sure it's sent.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • CockneyRebelCockneyRebel Community champion Posts: 5,259 Disability Gamechanger
    You will need your GP to be very specific about your not being able to attend, there is no room for doubt. So "may cause panic attack" for example will not be good enough.

    Please bee mindful of the language in your post, and remove the "F" word
    thanks
    Be all you can be, make  every day count. Namaste
  • poorsoulpoorsoul Member Posts: 33 Connected
    I told them everything about my panic attacks severe social anxiety and depression I also told them I cant travel it made no difference they still insist that I travel :(
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Do you attend other appointments? for example, your GP?
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • charlie79charlie79 Member Posts: 161 Pioneering
    You need a GP letter stating your Housebound due to agoraphobia and would need a home visit. I suffer from PTSD agoraphobia anxiety and depression. My GP wrote a letter so i didnt have to attend the assessment centre.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    If you attend other appointments but then ask for a home assessment then this can go against you. They could turn around and tell you, as you can attend other appointments then you can attend the assessment centre for the face to face assessment. I've heard this happen many times.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • charlie79charlie79 Member Posts: 161 Pioneering
    I dont leave my house and have all apts home visits. In your case I would contact CAB and ask there advise. Do you have a carer
  • [Deleted User][Deleted User] Posts: 0 Listener
    I must have been one of the lucky ones.
  • charlie79charlie79 Member Posts: 161 Pioneering
    Also can you only attend familiar settings with trusted person. I have a friend who can only go to her GPS


  • poorsoulpoorsoul Member Posts: 33 Connected
    I rarely leave my house only to get my money from bank cash machine 5 minute walk then straight home.I will only go to doctor to get note lucky that dr is also short walk about 4 minutes from house.I am being asked to travel on a bus or train which I never do due to my severe social anxiety around others in a confined space.
  • charlie79charlie79 Member Posts: 161 Pioneering
    if you do have to go to the assessment take some one with you you trust. Going on your own goes against you. do not go dressed to the nines  dress how you would on a normal day. Also get a taxi and say the person who was with you booked and planned the journey. 

  • charlie79charlie79 Member Posts: 161 Pioneering
    I used to work in a doctors
  • poorsoulpoorsoul Member Posts: 33 Connected
    Whatever happens I wont be going I already told them this whatever will be will be I may be another death due to these wrong decisions just a stastistic ignored by the tory government.

  • Zebra88Zebra88 Member Posts: 55 Courageous
    Would you be able to get a taxi? If you call the assessment centre and agree it beforehand they will reimburse your costs for a return journey if you keep the receipt. Sorry if that isn't much help but it might be easier than using public transport if it comes to it.
  • poorsoulpoorsoul Member Posts: 33 Connected
    I am not going I dont care what happens I dont really care if I die I will be away from the world and my anxiety depression and everything else it just does not matter anymore if the dr cant help me I dont want to be alive

  • charlie79charlie79 Member Posts: 161 Pioneering
    Fight i have respect for you posting on this forum. Your someones morning smile. Believe in yourself. Even my cat agrees lol. keep smiling and just message me on forum even if i cant help ill try my best
  • poorsoulpoorsoul Member Posts: 33 Connected
    I will do what I can the dr the cab the mandatory reconsideration and the appeal if necessary its harder every time these assesments happen and the pressure is immense.They have been told to get the numbers down and we are seen as easy targets.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Have you contacted the health assessment providers and told them you're unable to attend the assessment centre and would like a home assessment? Also contact your GP for a letter of support for the home visit.

    If a face to face assessment is needed then you'll need to attend. Failing to attend will mean your ESA could stop.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    I will be going to the dr in order to get aletter of support for a home visit due to health issues I am unable to travel as I stated in the form that wont change.Thank you to all who have replied for your advice.
  • charlie79charlie79 Member Posts: 161 Pioneering
     I got a GP Letter stating i needed a home visit tell the dr to put on it you suffer anxiety depression agoraphobia ect this will also be medical evidence to back your case. It's important to state these things. It will justify a home visit. Always send copy or drs letter and keep original in case they mislay or lose evidence. x
  • [Deleted User][Deleted User] Posts: 0 Listener
    I hope everything goes well @poorsoul

  • Sam_ScopeSam_Scope Member Posts: 7,732 Disability Gamechanger
    edited December 2018
    poorsoul said:
    I am not going I dont care what happens I dont really care if I die I will be away from the world and my anxiety depression and everything else it just does not matter anymore if the dr cant help me I dont want to be alive

    Hi @poorsoul
    I am so sorry to hear how much you are struggling right now, you are a member of our community and we care.

     If you are having thoughts of suicide, it is important that you discuss them with someone who is qualified to help. Please call the Samaritans on 116 123 (free) or email them at [email protected] 

     You might also benefit from reading MIND’s information on how you can help yourself.

    If you feel that you may be an immediate danger to yourself, please call 999 or go to your local hospital right away.

    Scope
    Senior online community officer
  • poorsoulpoorsoul Member Posts: 33 Connected
    I have visited the dr today sadly the policy is they no longer do letters of support as it was taking up to much of there busy schedule.The dr saw how worried I was and said that she will contact the dwp and try to arrange a home visit for me.That has eased my worries for the moment thanks for your concern.I would like to wish everyone at scope a happy new year for 2019 and will let you know when I hear more from the dwp regarding a home visit.
  • poorsoulpoorsoul Member Posts: 33 Connected
    charlie79 said:
     I got a GP Letter stating i needed a home visit tell the dr to put on it you suffer anxiety depression agoraphobia ect this will also be medical evidence to back your case. It's important to state these things. It will justify a home visit. Always send copy or drs letter and keep original in case they mislay or lose evidence. x I believe they deliberately mislay lose evidence and even claim no letter or fax was sent they are some low life in high places that do that type of thing.


  • poorsoulpoorsoul Member Posts: 33 Connected
    I got a letter from the DWP today stating that due to the medical evidence provided by my Dr I have been granted a home visit.More information about this will be given to me in due course needless to say im delighted with this news although still anxious about the interview I dont have to leave my house,
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Glad to hear that. A home visit assessment is the same as if you're going to one of their centres. The only different is that it's in your own home. It's not a good or bad thing. They will ask you questions about your condition and how you're affected. You'll be assessed on your ability to do any type of work.

    While the HCP is in your home you'll be watched from the minute they arrive, so be aware of that. Have someone with you for support as that can help. You will need to answer all the questions yourself though. Good luck.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    I live with my parents and I have a voice recorder app installed on my phone which I will use to record my interview in case needed for appeal.This along with support from my Dr should hopefully be enough to keep my ESA.I will keep using the forum for support and lnform scope of how I get on when the dr from dwp has done the assessment.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    poorsoul said:
    I live with my parents and I have a voice recorder app installed on my phone which I will use to record my interview in case needed for appeal.This along with support from my Dr should hopefully be enough to keep my ESA.I will keep using the forum for support and lnform scope of how I get on when the dr from dwp has done the assessment.
    Please do not use your phone. If you use your phone to record the assessment and they catch you doing this, the assessment will be stopped, your file will be returned to DWP and you'll likely be refused that benefit. You will also not be able to use that recording at a Tribunal.

    My advice to you is if you're going to record it is to get permission before doing so. They need 48 hours notice and you must use the correct devices. This must be CD or tape recorders and you must produce 2 identical copies, 1 copy must be handed in at the end of the assessment.

    Another little advice, forget the recording and concentrate on the evidence you need to send.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    why are you not allowed to record the interview I thought it was allowed to protect yourself against intrusive questions like why have you not killed yourself

  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You can record the assessment but you need permission to do this. To get permission you must ring the health assessment advisor and the number is at the top of your appointment letter.

    As i advised, if you record it secretly and they catch you then you'll be refused that benefit. You must use two CD/tape recorders and record two identical copies.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    For ESA they will also record it for you but you must ask them and it could delay your assessment. See link.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    @poppy123456 they dont make things easy for you do they sadly I dont have 2 recorders I was just trying to protect myself as I have heard they dont always write down what you say and try to make out your fine.If it is supposed to be a fair assessment why would they object to a recording whether done with or without there consent proving they have something to hide.


  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    They don't no. Remember, we only ever hear the bad stories. People do have nice HCP's that give honest reports, without telling any "lies" I've had multiple assessments for PIP and ESA and have never had a bed report and i've been claiming benefits for 7 years.

    You're much better off concentrating on the evidence to send, than recording an assessment.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    @poppy123456 My evidence from the dr is in its all up to the assessment from the dwp dr without the recording I just have to hope that the answers are written down as I say them and an honest report is done.If that is the case then I should remain in the support group without having to appeal.
  • poorsoulpoorsoul Member Posts: 33 Connected
    On saturday the dreaded brown letter of doom cam through my door a telephone assesment is happening in 8 days i got my mum to phone them and explain i dont have a phone and struggle to talk on one.They insisted that i had to do it with mum only there as moral support.The same worries as before remain and any advice would be welcome thanks :'(

  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    If you kept a copy of the form you sent back then have a read of that before the assessment takes place because part of it will be to verify what you wrote in that. The other part will be to get any other information they need. I can't tell you what questions they will ask exactly because i don't know how your conditions affect you.

    You can put the phone onto loud speaker so your mum will be able to hear what is said. If you don't understand the question or you didn't hear it, ask them to repeat it.

    Assessment times can be anything from 20 to 120 minutes. All you can do, is do your best. Do come back and let us know the outcome.
    Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • Tori_ScopeTori_Scope Community Team Posts: 2,780 Disability Gamechanger
    Very best of luck @poorsoul. As Poppy has said, you can only do your best.
    Online Community Coordinator, she/her

    Want to tell us about your experience on the community? Talk to our chatbot here and let us know what you think
  • poorsoulpoorsoul Member Posts: 33 Connected
    Thanks for the feedback poppy and tori i appreciate that it feels good knowing i have some support on here.If the worst happens i know that i have the backing of my mum and the Doctor on my side in an appeal situation which i believe is a fairer review than the DWP who are on a bonus for cutting off ESA and using sanctions to save money.They do this despite knowing the effects it will have on human lives many of whom have used suicide as a way out of the misery this causes.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    edited January 13
    You're welcome. Just for you to know that no one receives a bonus of any kind for those that are found fit for work. It's a complete myth. Sanctions have nothing to do with this either. DWP also don't write the reports, the health assessment providers write them.


    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    edited January 13
    I dont think i would qualify for UC there are so many things that i cannot do that would enable me to qualify for that im in the ESA support group and i am unable to do any kind of work due to my condition so if i lose my benifits my life is over.I will probably be found dead and be just another stastistic like many others before me who have died due to this cruel regime Sanctions are not a myth they do happen and heap real misery on people.
     
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    I actually got you mixed up with another member here, so excuse my advice above about the UC claim. I advise so many people here i do sometime get confused and it's been a long and rather stressful day today :/

    I've edited my reply above and removed the advice about UC. 

    The good news here is that you can't be found fit for work without a face to face assessment so if they can't get enough of inforrmation from the telephone assessment then your file will be returned to the pile to wait for the face to face assessments to start back up again. Then your money will continue to be paid as normal while you wait.

    Sanctions don't apply to those in the support group, which is why i said that doesn't apply here. Being found fit for work really isn't a sanction as such. I didn't say they are myth. I said the bonus's people think they receive are a myth.

    Good luck and do let us know the outcome.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    Thanks poppy its easy to get mixed up when you have to deal with many questions do you know if sanctions apply if you miss the telephone call as i sleep heavily a lot of the time and might not hear the call or be so stressed out i dont answer.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    You're welcome. Missing the phone call without good reason is the same as failing to attend and this is one of the reasons you can be found fit for work. Money stops if found fit for work.

    Do you have someone there that can answer the phone for you? Then put the phone onto loud speaker.

    Also one other thing, even though you do have a specitic time for the assessment, this doesn't mean they will call at exactly that time. Assessments before you could go over do delays with ringing are possible. Very much like when you attend the face to face assessments, you rarely go in on time, at least i never have.

    I know exactly how you're feeling regarding this, even i get extremely anxious for the work capability assessment.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • poorsoulpoorsoul Member Posts: 33 Connected
    My mum is to answer the phone hopefully all will go well she will pass it on to me to answer questions as best i can if im struggling to much she will take over and i will feed her my answers to pass on.
  • poppy123456poppy123456 Community champion Posts: 22,214 Disability Gamechanger
    Good luck.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
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