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We have nobody who knows the person best

Hi any advice please, my daughter has a chronic lung condition and aspergers and her pip review papers came in last tuesday. I only have until the 28th to have the forms back so with Xmas that has left me more or less a week to get everything. A little unreasonable i think but the main problem i have is that I have years of medical evidence but as my daughter has just gone through the transition from child to adult care, there is nobody who knows her best, she has seen her new consultant at the Brompton once, he said we will carry on her treatments, he needs to request her full medical history and won t be seeing her for six months while they wait for this then there is her respiratory nurse who I have only spoken to on the phone this afternoon, her old nurse stopped seeing her last month. Her gp have never had much to do with her care except to make repeat prescriptions, what do I do, I have to put down somebody who knows her best also her respiratory nurse did this last time and no f2f was required, I have printed off copies of various medical evidence from now back to when she was tiny bit i really don't know what to do
Replies
if I was in your situation I would add a covering letter in the section for any other information explaining she has just transitioned to adulthood but tell them you give them permission to contact any healthcare workers she has been seeing up till then.Although they are no longer her care team they still have professional knowledge about her needs which will be evidence towards her claim particularly if they have seen her in the last few months.Anyone who has knowledge about her daily needs can give evidence to back up the claim they do not need to be medical professionals.Therefore the input her old nurse can give will still be valid.
Good luck Debsidoo.x
Fill in the forms as usual, and do a a general write up enclosing and referring to her medical history as requisite. In doing this keep with the Descriptors as they apply.
But it happens a ll the time here, too, usually because of money (payment to medical facilities or professionals from the government). We are at the mercy of impenetrable walls of rules and regulations, often cruel.
I do hope you get your extension.
A letter will usually not focus on these exact things unless you’re a hugely disciplined letter writer.
I’m not sure why you think you need a “person who needs her best”. I’ve already dealt with it. It’s icing on the cake rather than the key
There is some argument that you really should not abide by all what the DWP say or write. You have to be satisfied that the request has some legal backing.