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CP and Narcolepsy

Hi
My 18 year old has just been diagnosed with narcolepsy and has had CP from birth. There seems to be almost no precedence for this, narcolepsy being extremely rare and even rarer combined with CP. We no longer have a CP consultant and the sleep disorder consultant only sees his bit. I think we need some help on recognising what impact they have on each other and managing it.
Richard, any advice on where I go from here?
My 18 year old has just been diagnosed with narcolepsy and has had CP from birth. There seems to be almost no precedence for this, narcolepsy being extremely rare and even rarer combined with CP. We no longer have a CP consultant and the sleep disorder consultant only sees his bit. I think we need some help on recognising what impact they have on each other and managing it.
Richard, any advice on where I go from here?
Replies
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They are great.
Looks like I am doing the right thing then.