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Helping my daughter with CP be more comfortable

Hi my daughter is 26 with cerebral palsy which effects all four limbs she’s non verbal as well so it’s very difficult to know what’s wrong she was on baclofen but this has been changed to Tizanidine she seems to sleep during the day but of a night she goes off to sleep ok but is then continuely waking through the night she doesn’t seem comfortable in her wheelchair either she keeps pushing herself forward and has been getting terrible anxiety for the couple of years to the point where she’s losing weight. Hoping someone can help me with some suggestions Many thanks in advance
Replies
Welcome it is great to meet you today 🌝 🌝 🌝 🌝 🌝
I am very very sorry to hear about your current situation.
Sorry for more questions but how was things with the "Baclofen"
Was the "Baclofen" used for her limbs????
Why was it changed to the "Tizanidine"
I spent over 10yrs in a Rehab Centre where Baclofen was used daily on a number of patients.
Please please let me know if you need any further help???
it was changed because she was on the highest dose of baclofen but it wasn’t really doing anything so they changed it but her posture and spasticity still hasn’t improved so I’m wondering now if there’s something else that’s making her anxious
I’ve ordered some magnesium spray I’m going to try that so fingers crossed
Many thanks for your info - is there anything else that they can offer you instead???
Sorry but when I worked within the rehab unit Baclofen was the preferred treatment option!!!!!!
Please please let me know if there is anything that I can help you with anything????
Sorry to hear about your daughters anxieties, I'm just wondering if her wheelchair could be causing some anxiety, does she currently have a manual or powered wheelchair?
Disability Gamechanger - 2019
she has a manual one and she had a new seating system moulded in April last year because they thought it might be that but no she’s still anxious
Disability Gamechanger - 2019
Yes I also though the move from a “manual to powered chair” gave me such a “boost”
The “independence”on me was “huge”
I have found some info on the current meds!!!
Please please let me know if you want me to let you have this info??
Sorry about that !!!!!
Here’s the info for you below.
https://www.webmd.com/drugs/2/drug-1024/tizanidine-oral/details
Please let me know if there’s anything else that I can help/support you with??
Specialist Information Officer - Cerebral Palsy
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