Friends for my daughter with Asperger's

janemtrohear

Hi,

I’m the mum of an Asperger daughter who is struggling with becoming a young adult. I’m hoping to make some online friends who are local to her - as she currently has zero contact in person with anybody of a similar age. 
Also we’ve just had a very disappointing result to our PIP mandatory reconsideration result - delivered on Christmas Eve - yep Happy Christmas from the DWP. She has gone from an enhanced mobility element to the middle rate & now after the mandatory reconsideration a big fat zero points & no award for mobility. 
So if anybody would like to give me advice regarding tribunal - I’m all ears - as we are not going to give up.
Thanks for reading,
Jane x

steve51

Hi @janemtrohear

Good Afternoon & Welcome ???

I am very very sorry to hear about your pip award.

We have got some good info with regards to “pip”

https://search.scope.org.uk/s/redirect?collection=scope-meta&url=https%3A%2F%2Fwww.scope.org.uk%2Fsupport%2Fservices%2Finformation&index_url=https%3A%2F%2Fwww.scope.org.uk%2Fsupport%2Fservices%2Finformation&auth=4RxMuZJo7ufNgzuZI7Ixsg&profile=_default&rank=4&query=Pip

https://search.scope.org.uk/s/redirect?collection=scope-meta&url=https%3A%2F%2Fwww.scope.org.uk%2Fsupport%2Fdisabled-people%2Fmoney%2Fpip%2Ffaqs&index_url=https%3A%2F%2Fwww.scope.org.uk%2Fsupport%2Fdisabled-people%2Fmoney%2Fpip%2Ffaqs&auth=LmnqDzzXazyTWKotZZO%2B3A&profile=_default&rank=7&query=Pip

https://search.scope.org.uk/s/redirect?collection=scope-meta&url=https%3A%2F%2Fwww.scope.org.uk%2FSupport%2FDisabled-people%2Fbenefits%2FDWP-benefits-appeals%2FUpper-Tribunal&index_url=https%3A%2F%2Fwww.scope.org.uk%2FSupport%2FDisabled-people%2Fbenefits%2FDWP-benefits-appeals%2FUpper-Tribunal&auth=J8RBp%2F9tUn3x3rgBxg2xJQ&profile=_default&rank=2&query=Pip

Please please have a good look ? at these & please let me know if you need anything else???

janemtrohear

Thanks so much Steve for all that info - I’m going to have to get very proactive regarding getting professionals on board. My daughter has quite severe Aspergers - diagnosed at 3years old. She attended mainstream primary & a special school for secondary but she left early at 16 due to severe anxiety. She is currently at home & only leaves the house once a week on a Friday to see her cousins children for 2.5 hours. She has no academic qualifications & no motivation with regard to independence skills ( zero money understanding & needs prompting in almost everything ). She has never used a kettle, toaster, microwave or any sort of oven - but because she knew what colour chicken is when raw & cooked ( at the face to face assessment ) they say she can cook a simple meal - if it wasn’t so upsetting it would be laughable. They have totally not understood how autistic she is & how it impacts so greatly on our lives. She is scared of knives & anything hot - & there’s no persuading her to do anything. 
We see no professionals except her GP & we moved areas 2 years ago so we have to start again building up any support - & she’s not interested in engaging with anyone at the moment. I really need advice about whether paying for an autism expert (?) to write a report on her is something that could help us - or if the panel at the tribunal would not take their advice on board. It’s so tiring even thinking about what I’ve got to do to challenge the PIP decision - but we really need the award to help us with caring for her as myself & my husband don’t earn very much.

ChelleM

Hi Jane, Nice to meet you! 

Sorry to hear about your Pip, I have another assessment on Wednesday which I’m not looking forward too! Hope you find the community helpful, I’m always around if you fancy a chat x

janemtrohear

Thanks for the welcome ?

steve51

Hi @janemtrohear

That’s okay just glad to help!!!!!

Please please let me help you further!!!!!

Here’s some more info for you below.

https://www.scope.org.uk/support/families/diagnosis/autism

Please please let me know if there’s anything that I can help/support you with?????

steve51

Hi @ChelleM

It’s great to meet you today!!!!

I do hope that everything goes well for you on Wednesday.

Please let me know if there’s anything that I can do to help you???

Barrettd

hi Just to let my son does not have any friends he is 20 years old very intelligent with 4 a levels and 12 gcse's he went to university for 1month but did not like it so left he know works for me in a office, but struggles with  socialising with others of his own age.
he gets along better with adults.
Regards

janemtrohear

My daughter isn’t academic unfortunately - but she is artistic. It’s a real worry isn’t it when they have no friends ?. We are in Preston btw in case you are near ?

Barrettd

I am in the West Midlands. My son worked so hard at school came out with fantastic grades but he does not have the confidence to pursue a career of his choice he works for me in a office which can be challenging as he can misinterpret social situations and work ethnic rules .

mapchange

@janemtrohear I'm a 21 y/o autistic woman in Bootle (Liverpool!) I could catch the X2 down to see you and your daughter. but I think some online communication would be in order first. do you want my email address?

janemtrohear

That would be great ?? 

Barrettd

Hi could I have your email also incase my son wants to join in the conversations?

mapchange

@Barrettd go'ed lad! I'll dm you first thing tomorrow.