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Fibromyalgia

I would like to know can people recover from fibromyalgia please? Is it a lifelong condition? What's people's views and experiences please?

💜🏴
I am a fibro warrior !💜♏️
Replies
Welcome 🌝 🌝 🌝 🌝 🌝
I have had "Chronic Pain 24 /7" since 2005.
This came about when I was given SRS Treatment on the Base off my Brain.
I am currently on max doses of my meds which include "Morphine Patches"
No "Good"
I have now been given "stronger " Patches.
Still no "Good"
I have also been too endless "Pain Clinics"
Still no "Good"
Seen more "Pain Consultants" than had "Hot 🔥 Dinners!!!!
Still no" Good"
Been to the "House of Commons"
Still no "Good"
Been to a CRPS Hospital in Bristol.
Still no "Good"
Yes I Think 🤔 it's going to be with me for "Life"
Mind you it's time for the "Thinking Cap"
@steve51
I use a power wheelchair if i am gonna be out and about for any length of time this helps conserve energy and minimise my pain. I always make sure i stretch and move around when i come out of it.
Every fay is different and then you have the flare ups on top of that. It really is a juggli g act but understanding yourself and how it impacts you will definitley help. Get a referall to an OT they can be super helpful as can physiotherapist. Let us know how you get on
I have had Our Fun Filled Friend Fibromyalgia since 1999/2000 and I hope it is curable and not a life long condition ... However I been on C.B.T Course, a Chronic Pain Management Course as well as Chronic Fatigue Management Course and kucky enough to have an exceptional G.P and Senior Consultant who headed up a team of excellence regarding Fibromyalgia and C.F.S/M.E so far I have yet to meet someone, and I don't remember anyone else who has. Everyone/Everything I have believe it is lifelong. It had completely destroyed my life and left me with nothing except ever present pain....
Magic Beans and Giant Beanstalk spring to mind when I hear/read about a cure..... But who knows there is always hope and dreams .. Maybe, just maybe one day...
Hope today finds you a little better than yesterday.
Blessings Be
X
Lou
Northants chronic pain support
www.ncpsuk.com
I don’t know if others with fibro get these issues?
About
I don't have bursitis but i do get a lot of pain in my feet. It got so bad I insisted on a x-ray cos i was convinced I was walking on broken bones. When your feet hurt everything hurts.
I would bypass podiatrist and soeak with your GO and get your ultrasound and injections that way. Maybe the podiatrist is not up to date or their website isn't but definitely worth a second opinion. Let us know how you get on.
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@marmalade
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Yesterday I had f2f pip assessment which involves me travelling into town by taxi and should have got taxi home. However, feeling brave with my son I decided to take train home at 5 pm from a busy station and didn’t get a seat. So the journey takes 15-20 minutes and by that time my lower body has seized up in an awkward position and I can barely move my joints. As it’s been years since I’ve been on a train it was really stupid of me and I was taken aback by how much fibro has affected me in this way.
The other factor was it’s a lot of money for taxis and I would have to wait for the money back and we decided it would be nicer to treat ourselves to some takeout food. Again, the station is the nearest place to us to get out takeout food from a specific place and I wanted to treat us after the horrendous ordeal of the assessment.
You have to take your fun where you find it lol.
So im not sure if talking to others helps you or not but that’s why there are threads like this on here.
I’m happy to accept messages as well if you wish to talk privately.
Take care
Debbie
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I hope you have a lovely Christmas.
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But its kind of trial and error. Ull find ur way.