Living with fibromyagia — Scope | Disability forum
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Living with fibromyagia

jeanypee3
jeanypee3 Member Posts: 5 Listener
edited October 13 in Rare, invisible, and undiagnosed conditions
Hello, I need contact with new people as I spend most days at home now .
Thank you
Jean 
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  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,781 Pioneering
    Welcome to the community @jeanypee3

    How are you doing today and would like to tell us a bit about yourself?

    Please have a look at our quick guide about our community and feel free to join our recent discussions  

    Let us know if you have any questions :)
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  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,941 Disability Gamechanger
    Hi @jeanypee3 welcome to the community! :)
    Disability Gamechanger - 2019
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  • jeanypee3
    jeanypee3 Member Posts: 5 Listener
    Hello ,
    I have Fibromyalgia and arthritis.
     I was a primary teacher until 2004 . Now I get fed up with being indoors most days , being too tired and in too much pain to face going out.
     I am very anxious about meeting people or phoning family and friends as I don’t want to bother them, even my lovely grown up children .
    i have a husband, but we don’t go out together much now.
    I really need new interests and new contacts .
    thank you
    Jean 



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  • thespiceman
    thespiceman Member Posts: 6,390 Disability Gamechanger
    edited February 2019
    Hello @jeanypee3   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions who guide, advise and help new members. Who join.

    You come to the right place for support and most of important of all new friends.

    I am the same as your self have problems meeting people. Get anxiety and struggle to fit in.

    Have disability and mental health issues.

    Done loads of volunteering and plenty of employment.

    This helps being part of the forum.  Found new friends.

    Have you considering looking at a SCOPE to volunteer something like this.

    Being a community champion. If your interested .  Speak to [email protected]

    The role involves meeting and greeting new members .  Answering any questions and queries.

    Lots are benefits but you can get help with those..  Often give standard answers. Plus also information on any organisations any one wants.

    Lot of the time is spent just being polite, helpful, kind. Use your own experience if you wish to.  Understand I do.

    My own mental health, disability and working in various volunteering roles.  Life skills and talents maybe as well.

    You do the hours you wish to. Me I am here every day a few hours each day or more. All depends on my time.

    Pleasure to meet you.


    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
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  • jeanypee3
    jeanypee3 Member Posts: 5 Listener
    Thank you for the welcome. 
    I need to get used to this site for a while to gain much needed confidence but one day maybe.
    Jean
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  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,781 Pioneering
    edited February 2019
    Thank you for sharing this with us @jeanypee3

    You may find our dealing with chronic pain discussions page useful and our chronic pain advisor may provide additional support. We also have KaleidoScope - our own gallery for members' art work, crafts and photographs and our coffee lounge - where you can chat to other community members about anything.
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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,682 Disability Gamechanger
    Welcome to the community @jeanypee3 :)
    Scope
    Senior online community officer
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  • AnkyieSpon
    AnkyieSpon Member Posts: 138 Pioneering
    Hi @jeanypee3 welcome to the community. I also have Fibromyalgia, Ankylosing Spondylitis, early Osteoarthritis chronic fatigue blah blah ☺ I'm here if you need a shoulder. I know how you feel. I'm literally dragging myself to work each day, the fatigue is killing me. Feel free to get in touch, remember your not alone. 
    Tina 
    (Ankyie Spon)
    I'm a Pain Warrior
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