Hi, my name is kay23! — Scope | Disability forum
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Hi, my name is kay23!

kay23 Member Posts: 1 Listener
When i was about 15 I was diagnosed with lichen schlerosus and my skin specialist said she thinks I've probably had it for around 7 years before being diagnosed at the age of 15. I felt really distressed because she said you can get skin cancer in the future and also because I don't hear a lot a girls my age saying to me they got the same issue. Also, when people don't know what the condition is itself, it makes the situation more difficult because it feels really uncomfortable sometimes. But I got used to it after about 2 and a half years. Then one day I was sitting at my aunt's house and saw the same medication that I use for my lichen schlerosus in her medication box, I asked my aunt have you got lichen schlerosus, she said yes she has got the condition but she got it after having her children. Also, I had a focal seizure in bed in the summer, it was my first one but it wasnt a surprise to me because my mum has been diagnosed with epilepsy and also I was getting a range of symptoms before and after the seizure for example, twitching, a few episodes of sleep paralysis. 


  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @kay23   Pleased to meet you welcome.

    Thank you for joining and sharing. I am sure many of our community will be supportive and hope we can help and advise.

    I am one of the team of community champions who advise, help and support new members who join.

    Have a look around our forum and you will find we are all friendly. Please ask if we can help or something you wish to know.

    Please take care.

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,798 Disability Gamechanger
    Hi @kay23, and a warm welcome to the community. It's great to have you here!

    Thanks for sharing this with us. If we can be of any assistance, do let us know.


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