We want to hear from you: please tell us about your experience of the online community.
donewithit said: Hi i need some advice i have been in the support group of esa for three years and have only ever been to a health assesment once during the initial claim after being declared medicaly unfit for work by my employers medical assessment and being put in the standard rate of care and enhanced rate of mobility by pip before that assesment + a full medical report by my doctor including letter stating i could not walk more than 20 meters without pain and having to stop inbetween. Two weeks before christmas i was informed by letter that my esa had stopped and that i must claim universal credit online . I phoned and asked what the hurry was to get me transfered to universal credit as iam in the support group of esa and cannot work . I was told i had made a claim for universal credit .i said no i have not .they checked the system and said it said i had made an online claim . I said impossible .he checked the system further and discovered no such online application.he reinstated my esa with no gaps. A few days later i received a health assesment form .i phoned and asked why i had to fill this in again he .he replied we do this any time and dont need a reason . I filled it in there have been no changes to my condition other than i was confirmed as having chronic pain and my medication has been strengthened since last assessment . Also they stopped my severe disability premium as my daughter who hass depression anxiety and agoraphobia does not have income awaiting pip assesment ectr and is classed as a none dependant . I get a letter telling me to go for a health assesment . My neighbour drives me and my 14 year old son who is my carer to the appointment and waits outside in the car . I am kept waiting in the waiting are for an hour and a half after showing id and confirming my arrival .about half way through this wait im in agony crying as sitting hurts more and standing hurts slightly less id been standingbin agony moving from one foot to the other in agony .I went to the desk again and asked for somewhere to lie down as i was in so much pain. I was told there wasn't anywhere and she said do you want to leave ? I said no and went back to waiting .I was so self contious that i had started to cry and that all these lines of seated people in front of me were gawping as i hobbled and had tears streaming down my face that i asked my son to put my hood up . I was still crying as i walked into the interview room and explained i was in agony for having waited so long . After the assessment in which i was told my my son would have to go to my neighbours car and wait there during .because of his age .i was walked through the office part and out through the front door to be closer to the front door. On sunday lastweek i get a call from a lady telling me that i had had my esa stopped as i was able to do things i said i could not she said like walk 200 meters or more when i said 20 as i could attend the centre .i could sit in the car for the 45 min journy to the centre (its not its 30 mins tops on a bad day ) i said i did these thing with extreme pain and discomfort and that i thought these thing were measured by how much pain im in to do them and whether i could repeatedly do them . I was told im in to much pain for my conditions (including chronic pain ) and that they beleive i have greatly exagerated my lack of mobility based on the assesment which had various outright lies in . I asked for a manditory reconsiderstion two days later as i had scored no points been told how much pain i should be in basically called a liar without outright saying it and deemed fit after denying basic human right to lay down to stop pain . I asked if the cctv footage of me in so much pain and crying could be included in the manditory reconsideration she did over the phone without me seeing the full assesment she said no its not relevant and wont change the outcome as you still did it . Are they allowed to do this to people ?
Easy, they are a law unto themselves, that is how they get away with it. Next time you have an assessment, phone a few days before the assessment and ask for it to be recorded, that should give them enough time to arrange it. That will put a stop to their lies.
Meanwhile you can make a complaint if you know the name and registration No of the HCP.
https://www.nmc.org.uk/contact-us/complaints-about-us/
The value must be greater than or equal to 1.
Get more out of your online community by signing in or registering