If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.
polymicrogyria (PMG)

Hi, we are parents of 2 children, our 4 year old daughter Jessica, & 16 month old Edward who was recently diagnosed with polymicrogyria (PMG). He is currently around a 5 month level developmentally & coming to terms with the diagnosis & uncertainty of his future is proving really difficult 😣 it will be good to hear from other parents of children with disability. We are in Doncaster, South Yorkshire. Xx
Replies
Sorry to hear this, I am sure many parents within our community will be happy to get in contact with you to offer support. Here are some resources which may be of use to you
- Coming to terms with your child's diagnosis
- Watch other parents talk about how to avoid feeling overwhelmed
- Mindful monsters activity cards - created by Scope
- How to talk to friends and family
- Supporting each other as parents
- Finding local support services
I hope these help, please let us know if you need anything elseDisability Gamechanger - 2019
I am a parent advisor for a service for parents who have recently had a child diagnosed with a disability or impairment or going through diagnosis. This support is over a period of six weeks and we are there to support the parent with any emotional issues or practical support that we can offer. We have a link to a referral form and also a telephone number for you to contact - http://www.scope.org.uk/navigate or phone 0808 801 0510 or email [email protected]
I hope that we can support you if you feel this would be beneficial.
Beverley
Parent Advisor
Navigate