Disabled people
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Replies

  • RoddyRoddy Member Posts: 389 Pioneering
    edited February 2019
    Absolutely disgraceful. Thank you for bringing this to my attention. Everybody should read it.

    It is bad enough that the DWP often refuse to take GP records and Hospital Specialist statements into consideration when assessing our claims. Every persons medical records should be totally confidential and not used without our full consent under any circumstances. 

    Furthermore if it wasn't for ash5896 making us aware of this, how would we have ever found out? Particularly those tens of thousands disabled people who are equally unaware of this site perhaps... 
  • ash5896ash5896 Member Posts: 118 Pioneering
    Absolutely....
    Ash 
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    @ash5896 we discussed this the other day see here and you will see many are not happy about this, including me, I will be instructing my Medical teams not to engage with this diabolical idea. https://community.scope.org.uk/discussion/56521/dwp-want-full-direct-access-to-claimants-medical-records

    Im going to also complain to all the relivant people. 
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • RoddyRoddy Member Posts: 389 Pioneering
    I don't know the reason or the cause, for all of these recently implemented 'acts' against the elderly, the sick and the disabled. Cutbacks galore throughout every department and penalising us continuously. What have any of us done to deserve this? 

    I can appreciate that there's no endless pot of money, and of course there are some that claim fraudulently, but that is a small minority in terms of factuality. Not many of us ask for much! Just enough to get us by and to live with a level of common decency, but recent measures, incompetent acts and inconsideration towards the disabled and ONLY the disabled, is a terrible state of affairs indeed. 
  • wildlifewildlife Member Posts: 1,314 Pioneering
    Will this mean that if we deny them access they will refuse to accept evidence from us that we've got from our own medical professionals. Then where will we be. 
  • ash5896ash5896 Member Posts: 118 Pioneering
    It’s ridiculous! It sees we are the easy target. With all this Brexit stuff going on they are sneaking their secret agenda in. If it does happen we need to join forces and protest till it’s scrapped 
    Ash 
  • RoddyRoddy Member Posts: 389 Pioneering
    edited February 2019
    I'd like to know the 'brains' behind this idea. How such a person can sleep at night. Such people have no place in a modern-day civilised government of any party. It's unlikely that whoever it is, was elected by their voters, knowing the mind behind 'the promises' of a better tomorrow. It is shameful to the extreme. 



  • RoddyRoddy Member Posts: 389 Pioneering
    wildlife said:
    Will this mean that if we deny them access they will refuse to accept evidence from us that we've got from our own medical professionals. Then where will we be. 
    They already do!  How many cases are there which proves that medical professionals and hospital specialist statements, are often brushed aside and the word of a 'nurse' at a DWP assessment centre, is the decisive to determine the level of our disabilities, our illnesses and our mobility needs. These things are happening TODAY and NOW to tens of thousands of disabled people throughout the UK 
  • michfinchmichfinch Member Posts: 173 Pioneering
    Sorry, I’m happy that they can look into my records. Anything not to have to see those incompetent ATOS Healthcare “Professionals”, who don’t have a clue about Epilepsy.
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    I don't mind to a point as ive said I have very, very, sensitive Medical stuff I don't want the DWP or total strangers knowing, I give them what they need to give or not give me my benefits.

    Im like a loose canon waiting to explode, I do lots of campaigning to try and bring hope for us disabled, we will and can only take so much, but one thing I can assure you when my time is up I will go out with a bang believe me when I say this, so many people are dying because of all these cruel politicians and policy's.

     
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • RoddyRoddy Member Posts: 389 Pioneering
    On top of our own individual issues on a daily basis, I find it sad that a large majority of disabled people have justified reasons of complaint against the 'recent & ongoing' decisions made by DWP Assessments.  The very people that we are totally reliant upon, and depend upon to do things right, correct and ethical. Or is this too much to ask for or to expect? 

    Every day, practically every post made (particularly by new members) comes another tale of discrimination for example, or for DWP/Local Authority decisions. We all seem to have experienced this at some point and especially more recently. It's effecting us all, as is evident.  
  • mini1mini1 Member Posts: 13 Connected
    Hi,  we are disable people that this government don't want (can  we complete against able body people No,)   Note that this government gives company'stax relief if they go  robotic,.   To this government disable people are cost and a burden to the system.,   What  is scary to me is that able_ body people don'  realise when robots take over they're jobs , Then they're will become a   burden to the government and a cost,  ( We all have to unite ) .(, Please note everybody that this is just my point of view of life and how I see things....Paul...
  • RoddyRoddy Member Posts: 389 Pioneering
    edited February 2019
    When caring or supporting becomes a burden, then you should not call yourself fit to be caring and supportive, or suggest that you want to provide such things. This can be said of our government in my view. 

    It's almost like a witch-hunt these current times. Rounded-up, herded in for assessments and then it's easier and quicker for the DWP to say 'NO' than to bother spending time. Many of these decisions have already been made by our assessor, even before they have seen us. Tapping away their well-rehearsed 'interview' on their keyboard and their questions already answered. Oblivious to the actuality of us, and in less than one hour a 'Nurse' has decided our fate and taken our faith.  
  • michfinchmichfinch Member Posts: 173 Pioneering
    edited February 2019
    I’ve never had to rely upon the state until I had a near Nervous Breakdown and massive increase in Epilepsy and now Anxiety and Depression plus Asthma. I have paid into this system since 1978, had all the worry about paying wages etc etc as an employer, now I need help, I expect it. My Dr, the Govt appt Psycologist and my Specialist agree. Too much to ask?
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    @michfinch I also have had my own Business and making a fortune, and paid many, many thousands a year in Tax, rates etc. Ive fell on hard times like many of us and there's nothing I could do.

    Im totally knackered now and have to rely on the pittance I get in benefits ....To be honest I wish I didn't have to it's just sole destroying .... im getting to old for all this **** from the DWP and government.... They will not take away my last request I can guarantee that..
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • michfinchmichfinch Member Posts: 173 Pioneering
    edited February 2019
    I’m with you all the way. I too am getting too old for this and it’s beginning to take over my life. It’s affected my Health - I’m on more medication now than when I started this tormented DWP journey. ATOS Healthcare are basically calling all the higher qualified Medical Professionals who know me/us liars now and that they can’t do their job. ATOS are not as qualified therefore in no position whatsoever to overrule decisions made by people who are not only senior to them in Qualifications, but also know us/our history. Anyway, end of, promised myself I’d have a day off as yesterday I was incandescent with rage at “computer says no” attitudes! Good luck to all, have a peaceful day.
  • mini1mini1 Member Posts: 13 Connected
    Another day of pain and trying to get my legs to function, life is one big tester with many hurdles in the way (pip assessment) being the highest so far, But I will not let this get me down, I’ve got two beautiful grand children that’ keeps me fighting and a reason to live .....Paul....
  • ash5896ash5896 Member Posts: 118 Pioneering
    I worked all my life and after an accident which caused a spinal cord injury it’s been life changing. I’ve had to jump through hops to get my PIP. You pay in all your life and when something goes wrong your brushed aside. What really annoys me how the government and DWP try and discriminate against the disabled, sick and vulnerable it’ll never change unless we stand up together. There will always be something. I know for sure they’re not getting access to my records as there is very personal information on there which does not relate to my disability so not sure why they should be allowed to see it 
    Ash 
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    edited February 2019
    michfinch said:
    I’m with you all the way. I too am getting too old for this and it’s beginning to take over my life. It’s affected my Health - I’m on more medication now than when I started this tormented DWP journey. ATOS Healthcare are basically calling all the higher qualified Medical Professionals who know me/us liars now and that they can’t do their job. ATOS are not as qualified therefore in no position whatsoever to overrule decisions made by people who are not only senior to them in Qualifications, but also know us/our history. Anyway, end of, promised myself I’d have a day off as yesterday I was incandescent with rage at “computer says no” attitudes! Good luck to all, have a peaceful day.
    We have rights and I fully intend to fight them with mine @michfinch it bad enough keep being persecuted by this government, as ive said I campaign on various aspects of the way Disabled and vulnerable are being treated? 

    This is another reason why? The Government admit.

     

    “The National Health Service (NHS) is the national healthcare system for the UK, and is not designed to administer welfare benefits. Although doctors are responsible for issuing medical statements to patients, they are not responsible for making the decision on eligibility for benefit. For example, GPs and their representative body, the British Medical Association, have made it clear that they do not want to be guardians of the benefit system. The primary role of the GP or hospital doctor is to diagnose and treat any medical conditions that the patient presents to them and a clinician does not routinely consider the functional restrictions or disabling effects of the medical conditions that they treat. They are unlikely to have received specific training in assessing disabilities in their medical education, and may have difficulty in giving an accurate assessment or forming an opinion in relation to the functional restrictions experienced by their patient. They are also unlikely to have any knowledge of the legislative requirements in relation to benefit entitlement”

     

    So the DWP etc, as far as I’m concerned they only need the evidence I supply, which is about my functionality NOT my deep inner personal evidence that I prefer not to disclose “Hence my full records”

    Also most if many Drs etc don’t NOT know about day to day life and how we try and cope. So they can bog off.

    As for the assessment providers they are a complete joke, I know a couple of people that worked for these parasites and admit the training is at best **** to say the least, I can't go to far into those reasons for now. But believe me it not your welfare they care about, these I know that worked for them have told me it's all money and bonus driven but they have all see the light realising working for those companies are certainly not what they signed up for, it was only all come to light when they started the job.

    Now they all work in other caring rolls with job satisfaction and compassion to their patience. 

    I will I'll bring this all to light at some point in the future.

    Time will tell after many of my buttons have been pushed one can only take so much before there's a breaking point.
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • michfinchmichfinch Member Posts: 173 Pioneering
    With Epilepsy I have terrible memory loss and I have to write everything down - if I don’t it’s lost. I like to use my on-line DWP Journal which is now like War and Peace. All I know is I was on ESA, was switched to UC and appealing both ESA and PIP. All I want to know is that someone not on a bonus sees me as a human being not a number and is qualified to overrule a Dr, a Psycologist, a Specialist etc and is Specialist in Mental Health.
  • RoddyRoddy Member Posts: 389 Pioneering
    The way that we are being treated by the DWP and their so-called medical professionals, is incompetent at the very least. Distorted & fabricated information is commonplace as so too are lies and total disdain. The already sick are being made even more ill and solely due to the stress, the neglect and the sense of being victimised and kicked in the head by a bunch of blinkered muppets in an office. Folks that have had issues all of their life find themselves being awarded zero points, stripped of all assistance and being signed-up for work. Don't work, you don't get. They may as well chuck us all in the Army. Added to this that the retirements age is increased as soon as you reach 'the retirement age' and once again you're brought-back to book. 

    If the DWP cannot and do not believe the signed statements of our Drs, our Consultants, or Hospital Specialists, our Care & Support Workers, our Medical Diagnosis, the Treatments, the Operations, the constant tests we receive etc. & etc. then why bother employing such people in the NHS or even have an NHS for that matter?  NOBODY enjoys being ill, sick, disabled or incapable. NOBODY at all, and yet these callous DWP decision makers most definitely enjoy the power of being able to make our lives even more unbearable. 

    Just like some of you, I was fortunate enough to have spent some time working my bones off 24/7 and doing everything 'normal' for their want of the word. Further down the line, I had to give up work to single handed care for my two children and my mother all of whom had a variety of different & serious health issues. DWP altered my life in an instant, and they're still having a detrimental effect on my life some 30 years later now that I am seriously sick, ill, elderly and disabled myself. I've had to stand back and watch as my Son with severe special needs has been stripped of his care, his care centres and his relatively limited independence. My Daughter, of 29 years been unable to work since leaving her special needs school and hounded by the Jobcentre and losing benefit, and now myself: Living alone in a care & support sheltered accommodation for the elderly, sick and disabled and unable to stand, sit comfortably, insomnia and constantly in pain of one kind or another. Hospitalised for 3 months. Convalesced for 15 months. On the priority list for a liver transplant and suffering from an incurable bone disease. DWP grant me ZERO points following an assessment, seize back my mobility car, and my already breadline  monthly income is halved. Report for work, they demand... MONTHS down the line a court with common sense and decency awards me 19 points instantly overnight and I'm still awaiting confirmation of my awarded higher rate of PIP Mobility. 

    NOBODY has any idea what I've been made to endure at the hands of DWP , but you can certainly guess and you'd be 99.9% correct as you've been there yourselves in your own terrible way. If I could only move from my chair unaided, stand for a few minutes before passing out, I'd be outside No 10 with a baseball bat. 
  • wildlifewildlife Member Posts: 1,314 Pioneering
    @Roddy Yes most of us do know what you've been through. I certainly do. I had to ring 999 a week after reading my assessment lies. I'd had 5 Occular Migraines where you loose your vision and see wavy lies. My hubby insisted i get checked out to make sure it wasn't a stroke. 7 Months later I ended up at A & E at 10 pm after a 7 hour panic attack. Ended up on medication for the first time for anxiety and still having panic attacks 2 years after my report popped through the letter box. I've got loads of other things wrong with me including pain 24/7. Nine tummy ops and 5 road accidents didn't help but according to my assessor I had no upper body problems. Most of my disabilities are things you can't see so i rely on evidence or being believed. I'm waiting for my son's ESA report any day now in the post. Dreading it as expecting another battle...    
  • RoddyRoddy Member Posts: 389 Pioneering
    wildlife said:
    @Roddy Yes most of us do know what you've been through. I certainly do. I had to ring 999 a week after reading my assessment lies. I'd had 5 Occular Migraines where you loose your vision and see wavy lies. My hubby insisted i get checked out to make sure it wasn't a stroke. 7 Months later I ended up at A & E at 10 pm after a 7 hour panic attack. Ended up on medication for the first time for anxiety and still having panic attacks 2 years after my report popped through the letter box. I've got loads of other things wrong with me including pain 24/7. Nine tummy ops and 5 road accidents didn't help but according to my assessor I had no upper body problems. Most of my disabilities are things you can't see so i rely on evidence or being believed. I'm waiting for my son's ESA report any day now in the post. Dreading it as expecting another battle...    
    It truly is ridiculous AND horrendous. I don't know of anybody that hasn't or isn't going through the same with these blasted assessors. Even some of those with terminal illness etc. Even when the DWP finally admit 'that they made a few errors' there's still no apology or any admission to their catalogue of neglect, mental abuse and total disdain...

    Do you know, that even one of my own assessors had their own disabled child's entitlement removed... The DWP should lose their entitlement to any wages. They are unfit for purpose. Period. 
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    edited February 2019
    @roddy Quite right, this is absolutely disgraceful and discrimination towards disabled.

    As a stated fact these assessments are very wrong, they believe a lie is the truth, and a lie is the truth and will bend it in any direction to suit them, I also get what the DWP do this for it's a form of persecution and punishment for being ill, disabled, they don't worry how much it costs, or about saving money.

    The bottom line IS....

    Im afraid nothing will ever change from this hostile environment, this has become a punishment process and a conveyor belt.
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • RoddyRoddy Member Posts: 389 Pioneering
    @Government_needs_reform

    It appears to me that the only forward with this, is to take legal action, and by this I mean individually and not as a group. I am in the process myself however it takes an awful lot of work, time and expense and there's still no guarantee at the end of it all. I must have already spent-out £1000+ on having photocopies done for me and to even Protectively Issue my claim at court cost £2,800. Yes, I'm thankfully covered by Legal Help, but if your benefits have been stopped its extremely difficult to obtain. 

    The crucial thing of course is who to sue? The Assessor? The DWP? The Council perhaps? The Ombudsmen or even the NHS itself?  Answer: Mission Impossible

    In a round-about way, my own situation can be proportioned to my Housing Provider as it was they that provided ALL of those mentioned above with inaccurate and misleading information about me. It is hoped, that this will have a Domino Effect on them all. 'Hoped' being the word, though I have a very good chance of winning my Discrimination case, says my specialist team of legal representatives... 
  • michfinchmichfinch Member Posts: 173 Pioneering
    Oh oh dear I’m on the Naughty Step for not attending the Centre which tells you are fit for work overruling my Dr, their
    Psychologist and  my Specialist! I’ve got to give reasons why I didn’t attend.... 
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    edited February 2019
    Roddy said:
    @Government_needs_reform

    It appears to me that the only forward with this, is to take legal action, and by this I mean individually and not as a group. I am in the process myself however it takes an awful lot of work, time and expense and there's still no guarantee at the end of it all. I must have already spent-out £1000+ on having photocopies done for me and to even Protectively Issue my claim at court cost £2,800. Yes, I'm thankfully covered by Legal Help, but if your benefits have been stopped its extremely difficult to obtain. 

    The crucial thing of course is who to sue? The Assessor? The DWP? The Council perhaps? The Ombudsmen or even the NHS itself?  Answer: Mission Impossible

    In a round-about way, my own situation can be proportioned to my Housing Provider as it was they that provided ALL of those mentioned above with inaccurate and misleading information about me. It is hoped, that this will have a Domino Effect on them all. 'Hoped' being the word, though I have a very good chance of winning my Discrimination case, says my specialist team of legal representatives... 

    @roddy Yes it does make sense doing it as an individual case, I certainly wish you well.

    Touch wood ive not got this problem, for suffered at the hands of this system, ive been very lucky so far "Touch Wood" my PIP from DLA is ongoing and will see me into retirement, my ESA Support Group Just got renewed at the end of 2018.

    The only issue I will be challenge with is migrating to UC? I will drag that process out for as long as I can then tell them to shove it. I will then try and manage on my PIP till retirement if I can.

    I count myself very fortunate mine was all Paper Based, I did supply a lot of undisputable functional evidence, and forced them to call my Medical people but they didn't I offered it to them on a plate so there was no disputing what evidence I sent in even the DWP Decision Maker even stated "I agree you have great difficulty" 

    As ive said I do campaigns to help others that are not so fortunate as me to get the right result and I will carry on doing it too, I will force the truth down this governments throat if it kills me.

    Im and have been working in the background preparing evidence from various contacts through my campaigning, and I have some pretty good evidence.

    I just can't believe how this is really affecting so many it's absolutely disconnected and discrimination.

    I just feel so sorry for many disabled like yourself that are suffering at the mercy of the DWP.
    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • RoddyRoddy Member Posts: 389 Pioneering
    @Government_needs_reform

    Unless the current legislation regarding UC is overturned, ALL people entitled to Benefits will come under UC. PIP claimants however will not be affected as such, but then again all DWP payments will be made monthly... The obvious problem, seems to be is the transition, as UC have no say as such with ESA or vice versa. You are simply paid by UC at their rate until or unless YOU can provide THEM with written confirmation from ESA.  Also during this transition, your entitlements to other benefits can be effected, like Housing Benefit, and in some cases your entitlement to free prescriptions! I had my own stopped for example which caused me all kinds of grief. 

    It appears to be a smoother transition for those with permanent life-long disabilities, but not always. The DWP has made this their own problem which in turn has meant lengthy delays and responses an many hours on a telephone and getting nowhere fast. The additional problem is that you never get to speak with the same person, and from the moment you've had your time, they are onto the next, then the next and then the next. Sometimes of course, they've forgotten what was said to who or when. It's total confusion all around. 

    Promised call-backs never happen.  Expected/promised mail never arrives and they even claim not receiving your own, even if its sent recorded delivery. 

    I received letters dated two weeks prior, giving me 10 days to reply and requests for bank statements, medical records, the whole caboodle as provided to them some 4 weeks before. It is administration gone AWOL at each and every level.

    If we ran our lives and conducted ourselves in the same ways as they do, we'd all be pushing-up daisies by now or locked-up. 
  • Government_needs_reformGovernment_needs_reform Member Posts: 858 Pioneering
    @roddy as ive said ive had quite an easy ride to be honest, yes I fully understand the process of how UC works and its payments. Ive managed to hold a good few £s back for any eventuality and problems that may arise.

    permanent life-long disabilities.....Spot on and they full know well my situation regarding those, hence my PIP being ongoing. Capita did my Paper Based assessment and not a single lie, everything was well justified and documented even stated No further reviews needed. 

    Yes I fit the ESA exemption criteria on 4 accounts but they didn't put me on that YET...
    Not worrying to much regarding UC.

    Heres a few pic, messages I made for this corrupted system.





    ⬇️
    I created one of the campaign election videos for Labour, and Jeremy Corbyn,
    This is a new version of Emeli Sande, Hope "You Are Not Alone
    I highlighted everything that's wrong with this country from benefits, NHS, UC etc, but now we have to put up with the hate now that is the Tories. 

    You can see the video here.
    https://m.youtube.com/watch?v=P5o8hRHh9IY


  • RoddyRoddy Member Posts: 389 Pioneering
  • RoddyRoddy Member Posts: 389 Pioneering
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