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PIP home visit

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dee51
dee51 Community member Posts: 6 Listener
edited March 2019 in PIP, DLA, and AA
Hi, thanks so much for accepting me. I am a 51 year old lady with recently diagnosed autism, bi polar, Elhers Danlos Syndrome. I was awarded PIP in 2016 after providing lots of information etc. They said there was enough evidence to assess me without a face to face. I got enhanced care and just scraped mobility by getting 8 points, which was a shock as I have severe mobility problems. However, overall, I was pleased with the outcome, and did not want to rock the boat by fussing over mobility. I was chuffed to have done everything myself without any help, and be awarded what I was, high rate care, standard mobility.
I had to recently complete a PIP review form after two years. I sent in twice as much information and evidence this time. However, 8 weeks later they have decided to do a home visit. When I rang and asked why, I was told there was not enough information, which is ludicrous as there were over seventeen medical reports and twenty written sheets of A4.
Everyone I spoke to, both at the DWP, and Atos were very rude and did not give me any real ASR’s, only saying that because I had got worse than two years ago, mainly for mobility and physically, they needed to see me After an original melt down, I now realise that I am lucky to be offered a home visit. But I am really worried. I could not do their first visit offer, as I had an urgent hospital appointment. And the second date they have given me is a Monday morning when most of my friends who support me, are working. And I am not allowed to change it as you are only allowed to rearrange first. Because of my autism, I cannot have support from a support worker as I prefer familiar people and find it impossible to connect with outside staff. I have tried, but it made me more ill! Now I am worried I may have to do this alone. Any advice? Has anybody else been in this situation? I am really familiar with the descriptors for PIP, so I can answer all their questions no problem. But if I do so, I am worried that they will see me as capable and hold it against me.

Comments

  • [Deleted User]
    [Deleted User] Posts: 27 Connected
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  • Adrian_Scope
    Adrian_Scope Posts: 11,381 Scope online community team
    edited March 2019
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    Hi @dee51, I'm really sorry to hear this. It sounds like a very difficult situation. I think it's probably very important for you to have someone present who can support you through the process. If a support worker's not an option, is there anyone at all who you might be able to ask to take some time off to help you?
    Community Manager
    Scope
  • dee51
    dee51 Community member Posts: 6 Listener
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    I had to ask eight people. All working. Well, they would be, it’s on a Monday Morning when they are visiting! I am sure PIP purposely choose times when they know it is difficult for family and friends to attend. But I have found a great friend Whois a teacher and currently on.y working Tuesday to Friday.
  • twonker
    twonker Posts: 617 Pioneering
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    dee51 said:
    I had to ask eight people. All working. Well, they would be, it’s on a Monday Morning when they are visiting! I am sure PIP purposely choose times when they know it is difficult for family and friends to attend. But I have found a great friend Whois a teacher and currently on.y working Tuesday to Friday.


    Someone to give you moral support is fine. However the assessor will not want to hear them talk about your difficulties - it is for you to explain that to the assessor.

  • Adrian_Scope
    Adrian_Scope Posts: 11,381 Scope online community team
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    Hi @dee51, I'm glad you managed to find someone for moral support. Hope the assessment isn't too stressful today. 
    Community Manager
    Scope
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