Help needed!

Fran96
Fran96 Online Community Member Posts: 5 Listener
I was diagnosed with terminal brain cancer nearly 3 years ago and have fortunately outlived my prognosis. My ds1500 ran out recently and instead of being asked for a new one, the ESA sent me for an assessment. I was declared fit to work as I have no mobility issues. Macmillan advised me to get a mandatory reconsideration with a new ds1500. ESA have denied me my benefit again even with the new ds1500 saying that my mobility score was not high enough. Regulation 35 stated that those with terminal illness cannot be asked to work, yet I have a horrid 4 page letter arguing against this. ESA have screwed me over time after time and I am now using macmillan financial advice on a regular basis. Does anyone have any advive/similar experiences. I'm going to have to appeal this decision and go to court. It's so stressful and I'm worried that all the stress is going to tip me back into progression

Comments

  • Dotty123
    Dotty123 Online Community Member Posts: 491 Empowering
    All you can do is go court then you get money till goes court stay strong good luck 
  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    That's shocking! I hope you get some help soon x
  • debsidoo
    debsidoo Online Community Member Posts: 325 Empowering
    Hi @Fran96
    Sorry about your situation. It’s a long shot but you could try lobbying your local MP and see if they can explain why rule 35 is not in place for you.Some MPs have been known to enquire on these things on behalf of constituents.If not I would seek legal advice as if you are classed as terminal you should be fast tracked onto the system.Good luck 
         Debsidoo.x
        
  • CockneyRebel
    CockneyRebel Online Community Member Posts: 5,195 Championing
    Hi Fran and welcome

    Well done on still being with us and beating your prognosis, you must be a strong person.
    You should get in touch with your MP and also Amber Rudd, it is inhumane that they are putting you though this.
    Might I suggest that you also call the Scope help line for a more personal contact
  • Dotty123
    Dotty123 Online Community Member Posts: 491 Empowering
    What’s number for scope helpline plz 
  • Adrian_Scope
    Adrian_Scope Posts: 11,720 Online Community Programme Lead
    edited March 2019
    Hi @Dotty123,

    You can get in touch with the Helpline on 0808 800 3333 You can also use Type Talk by dialling 18001 from a textphone followed by 0808 800 3333. You can also find out more information about the helpline and other ways to access it on our helpline page.

    Best wishes,
    Adrian
  • Dotty123
    Dotty123 Online Community Member Posts: 491 Empowering
    Hi all can you tell me I paid £6 to post tribunal papers sign next day it’s been delivered will right person of got it thanx
  • Dotty123
    Dotty123 Online Community Member Posts: 491 Empowering
    Hi I sent my appeal papers to wrong place I live in wallsend Tyne wear anyone no address to send it